What patients want to know, and what we actually tell them: The ABIDE project

Alzheimer’s & Dementia: Translational Research & Clinical Interventions

Niki Schoonenboom¹  Kees Kalisvaart¹  Ellen M.A. Smets²  Rogier Lutz³  Agnetha D. Fruijtier³  Wiesje M. van derFlier³  Femke H. Bouwman³  Leonie N.C. Visser³  Gerwin Roks⁴  Mariska Kleijer⁵  Marlijn deBeer⁶  Jules J. Claus⁷  Liesbeth Hempenius⁸  Leo Boelaarts⁹ 

[1] Department of Clinical Geriatrics Spaarne Gasthuis Haarlem the Netherlands;Department of Medical Psychology Academic Medical Center Amsterdam UMC Amsterdam Public Health Research Institute Amsterdam the Netherlands;Department of Neurology Alzheimer Center Amsterdam Amsterdam Neuroscience Amsterdam UMC Vrije Universiteit Amsterdam Amsterdam the Netherlands;Department of Neurology ETZ Hospital Tilburg the Netherlands;Department of Neurology LangeLand Ziekenhuis Zoetermeer the Netherlands;Department of Neurology Reinier de Graaf Gasthuis Delft the Netherlands;Department of Neurology Tergooi Hospital, Blaricum the Netherlands;Geriatric Center Medical Center Leeuwarden Leeuwarden the Netherlands;Geriatric Department NoordWest Ziekenhuis Groep Alkmaar the Netherlands;

关键词: diagnostic process;    informational needs;    information provision;    informative topics;    memory clinics;   

DOI  :  10.1002/trc2.12113

来源: DOAJ

【 摘 要 】

Abstract Background We studied to what degree and at whose initiative 25 informational topics, formerly identified as important, are discussed in diagnostic consultations. Methods Audio recordings of clinician–patient consultations of 71 patients and 32 clinicians, collected in eight Dutch memory clinics, were independently content‐coded by two coders. The coding scheme encompassed 25 informational topics. Results Approximately half (Mdn = 12) of the 25 topics were discussed per patient during the diagnostic process, with a higher frequency among individuals receiving a dementia diagnosis (Mdn = 14) compared to others (Mdn = 11). Individual topics ranged from being discussed with 2/71 (3%) to 70/71 (99%) of patients. Patients and/or care partners rarely initiated topic discussion (10%). When they did, they often enquired about one of the least frequently addressed topics. Conclusion Most patients received information on approximately half of the important informational topics. Providing the topic list to patients and care partners beforehand could allow consultation preparation and stimulate participation.

【 授权许可】

Unknown