The experience of postpartum bleeding in women with inherited bleeding disorders

Research and Practice in Thrombosis and Haemostasis

卷:3

Jessica Petrucci¹  Georgina Floros¹  Michelle Sholzberg²  Heather VanderMeulen²  Filomena Meffe³  Katie N. Dainty⁴ 

[1] Department of Medicine St. Michael's Hospital University of Toronto Toronto Ontario Canada;

[2] Department of Medicine University of Toronto Toronto Ontario Canada;

[3] Department of Obstetrics and Gynecology St. Michael's Hospital University of Toronto Toronto Ontario Canada;

[4] Institute of Health Policy, Management & Evaluation University of Toronto Toronto Ontario Canada;

关键词: blood coagulation disorders;    female;    inherited;    postpartum hemorrhage;    postpartum period;    pregnancy;   

DOI  :  10.1002/rth2.12246

来源: DOAJ

【 摘 要 】

Abstract Introduction Postpartum hemorrhage (PPH) affects 6% of all deliveries and is the leading cause of maternal death worldwide (19.7%). The incidence of PPH in women with inherited bleeding disorders is substantially greater than in unaffected women; however, estimates of relative risk are highly variable. To date, their experience with postpartum bleeding has not been well studied. Objective We set out to explore the experience with, understanding of, and attitudes regarding postpartum bleeding among women with inherited bleeding disorders. Methods This qualitative study involved focused interviews of women with inherited bleeding disorders about postpartum bleeding. Women followed at a multidisciplinary clinic for women with inherited bleeding disorders who have experienced childbirth within the last 5 years were included in the study. The interview style was semistructured. Interviews continued until the point of saturation of themes. All interviews were transcribed and then analyzed using qualitative descriptive analysis. Results We interviewed 10 women with inherited bleeding disorders. Themes that emerged were normalization of excessive vaginal bleeding, difficulty distinguishing normal from abnormal postpartum bleeding, and empowerment of women by having a clear delivery care plan. Conclusion In this study, women with inherited bleeding disorders were desensitized to heavy vaginal blood loss. As a result, excessive postpartum bleeding was not recognized by many of the women we interviewed. Results highlight the importance of a multidisciplinary delivery care plan for these women. Findings revealed key areas for targeted multidisciplinary intervention.

【 授权许可】

Unknown