Palliative care in the home: a case study of secondary histiocytic sarcoma in a 3-year-old child

Journal of Health Sciences

卷:3

Zuzana Karabová¹  Lubica Ilievová² 

[1] Faculty of Health Sciences and Social Work, Department of Nursing, University of Trnava, Slovakia.Children’s University Hospital and Clinic, Department of Pediatric Hematology and Oncology, Bratislava, Slovakia.;

[2] Faculty of Health Sciences and Social Work, Department of Nursing, University of Trnava, Slovakia.;

关键词: paediatric;    palliative;    secondary cancer;    histiocytic sarcoma;    home care;    hospice;   

DOI  :  10.17532/jhsci.2013.119

来源: DOAJ

【 摘 要 】

This article describes the medical, psychological, and social challenges encountered during home-based, family-centred palliative care of a 3-year-old female with secondary histiocytic sarcoma diagnosed during treatment for T-cell acute lymphoblastic leukaemia. Histiocytic sarcoma is an exceedingly rare cancer in adults, but even less frequent and highly aggressive when presenting as a secondary cancer in children. Comprehensive, multidisciplinary paediatric hospice care services are not widely available across Slovakia,thus limiting the number of patients and families offered such highly specialized end-of-life care. This case study illustrates the primary benefits for the child and family of such a program as well as the impact on the medical and nursing professionals working in the fi eld of paediatric haematology-oncology.

【 授权许可】

Unknown