Defining a patient-centered approach to cancer survivorship care: development of the patient centered survivorship care index (PC-SCI)

BMC Health Services Research

Mandi L. Pratt-Chapman¹  Hannah Arem²  Sean Cleary³  Yan Wang³  K. Holly Mead³ 

[1]George Washington University Cancer Center, George Washington University, 2600 Virginia Ave, NW, #300, 20037, Washington, DC, USA

[2]Healthcare Delivery Research, MedStar Health Research Institute, 20008, Washington, DC, USA

[3]Department of Oncology, Georgetown Medical School, 20007, Washington, DC, USA

[4]Milken Institute School of Public Health, George Washington University, 950 New Hampshire Ave, 20052, Washington, DC, USA

关键词: Patient-Centered;    Survivorship Care;    Index;    Measures;    Confirmatory Factor Analysis;   

DOI  :  10.1186/s12913-021-07356-6

来源: Springer

【 摘 要 】

PurposeThis study presents the validation of an index that defines and measures a patient-centered approach to quality survivorship care.MethodsWe conducted a national survey of 1,278 survivors of breast, prostate, and colorectal cancers to identify their priorities for cancer survivorship care. We identified 42 items that were “very important or absolutely essential” to study participants. We then conducted exploratory and confirmatory factor analyses (EFA/CFA) to develop and validate the Patient-Centered Survivorship Care Index (PC-SCI).ResultsA seven-factor structure was identified based on EFA on a randomly split half sample and then validated by CFA based on the other half sample. The seven factors include: (1) information and support in survivorship (7 items), (2) having a medical home (10 items) (3) patient engagement in care (3 items), (4) care coordination (5 items), (5) insurance navigation (3 items), (6) care transitions from oncologist to primary care (3 items), and (7) prevention and wellness services (5 items). All factors have excellent composite reliabilities (Cronbach’s alpha 0.84-0.94, Coefficient of Omega: 0.81-0.94).ConclusionsProviding quality post-treatment care is critical for the long-term health and well-being of survivors. The PC-SCI defines a patient-centered approach to survivorship care to complement clinical practice guidelines. The PC-SCI has acceptable composite reliability, providing the field with a valid instrument of patient-centered survivorship care. The PC-SCI provides cancer centers with a means to guide, measure and monitor the development of their survivorship care to align with patient priorities of care.Trial registrationClinicalTrials.gov ID: NCT02362750, 13 February 2015

【 授权许可】

CC BY