The MULTI-ACT model: the path forward for participatory and anticipatory governance in health research and care

Health Research Policy and Systems

Danilo Devigili¹  Stephanie Kramer²  Monica Di Luca³  Deborah Bertorello⁴  Roberta Guglielmino⁴  Paola Zaratin⁴  Gabriele Dati⁴  Giampaolo Brichetto⁴  Mario Alberto Battaglia⁵  Valentina Tageo⁶ 

[1] Collectibus Srl Società Benefit, Milano, Italy;European Brain Council, Brussels, Belgium;European Brain Council, Brussels, Belgium;Laboratory of Pharmacology of Neurodegeneration-DiSFeB at the University of Milano, Milano, Italy;Italian Multiple Sclerosis Society Foundation, Genova, Italy;Italian Multiple Sclerosis Society Foundation, Genova, Italy;Department of Life Sciences, University of Siena, Siena, Italy;Wise Angle Consulting SL, Barcelona, Spain;

关键词: Participatory governance;    Mission-oriented research;    Patient engagement;    Co-accountability;    Responsible research and innovation;   

DOI  :  10.1186/s12961-022-00825-2

来源: Springer

【 摘 要 】

The COVID-19 pandemic has unmasked even more clearly the need for research and care to form a unique and interdependent ecosystem, a concept which has emerged in recent years. In fact, to address urgent and unexpected missions such as “fighting all together the COVID-19 pandemic”, the importance of multi-stakeholder collaboration, mission-oriented governance and flexibility has been demonstrated with great efficacy. This calls for a policy integration strategy and implementation of responsible research and innovation principles in health, promoting an effective cooperation between science and society towards a shared mission. This article describes the MULTI-ACT framework and discusses how its innovative approach, encompassing governance criteria, patient engagement and multidisciplinary impact assessment, represents a holistic management model for structuring responsible research and innovation participatory governance in brain conditions research.

【 授权许可】

CC BY