Health Research Policy and Systems | |
The MULTI-ACT model: the path forward for participatory and anticipatory governance in health research and care | |
Danilo Devigili1  Stephanie Kramer2  Monica Di Luca3  Deborah Bertorello4  Roberta Guglielmino4  Paola Zaratin4  Gabriele Dati4  Giampaolo Brichetto4  Mario Alberto Battaglia5  Valentina Tageo6  | |
[1] Collectibus Srl Società Benefit, Milano, Italy;European Brain Council, Brussels, Belgium;European Brain Council, Brussels, Belgium;Laboratory of Pharmacology of Neurodegeneration-DiSFeB at the University of Milano, Milano, Italy;Italian Multiple Sclerosis Society Foundation, Genova, Italy;Italian Multiple Sclerosis Society Foundation, Genova, Italy;Department of Life Sciences, University of Siena, Siena, Italy;Wise Angle Consulting SL, Barcelona, Spain; | |
关键词: Participatory governance; Mission-oriented research; Patient engagement; Co-accountability; Responsible research and innovation; | |
DOI : 10.1186/s12961-022-00825-2 | |
来源: Springer | |
【 摘 要 】
The COVID-19 pandemic has unmasked even more clearly the need for research and care to form a unique and interdependent ecosystem, a concept which has emerged in recent years. In fact, to address urgent and unexpected missions such as “fighting all together the COVID-19 pandemic”, the importance of multi-stakeholder collaboration, mission-oriented governance and flexibility has been demonstrated with great efficacy. This calls for a policy integration strategy and implementation of responsible research and innovation principles in health, promoting an effective cooperation between science and society towards a shared mission. This article describes the MULTI-ACT framework and discusses how its innovative approach, encompassing governance criteria, patient engagement and multidisciplinary impact assessment, represents a holistic management model for structuring responsible research and innovation participatory governance in brain conditions research.
【 授权许可】
CC BY
【 预 览 】
Files | Size | Format | View |
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RO202202219455733ZK.pdf | 1763KB | download |