Everyday wishes of older people living with dementia in care planning: a qualitative study

BMC Health Services Research

Tomoka Sakaguchi¹  Hiroshi Yatsuya¹  Md Razib Mamun¹  Yoshihisa Hirakawa¹  Chifa Chiang¹  KM Saif-Ur-Rahman² 

[1] Department of Public Health and Health Systems, Graduate School of Medicine, Nagoya University, Nagoya, Japan;Department of Public Health and Health Systems, Graduate School of Medicine, Nagoya University, Nagoya, Japan;Health Systems and Population Studies Division, icddr,b, Dhaka, Bangladesh;

关键词: Dementia;    Everyday wishes;    Activities of daily living;    Older people;    Qualitative research;   

DOI  :  10.1186/s12913-022-07606-1

来源: Springer

【 摘 要 】

BackgroundThe dementia care policy in Japan emphasizes the views of people living with dementia in care planning. An exploration of the everyday wishes of older people living with dementia can help clarify their priorities and assist in improving dementia care. This study aimed to explore the everyday wishes of older people living with dementia in Japan.MethodsThis qualitative study was conducted in Aichi prefecture in Japan. Older people with mild to moderate dementia were considered for inclusion. Participants were recruited from a dementia outpatient clinic. In-depth interviews were conducted with 36 participants in the same dementia outpatient clinic from January to October 2019. Audio-recorded interviews were transcribed verbatim. Inductive content analysis was carried out to analyze the data.FindingsParticipants expressed their everyday wishes within five themes (desire of being connected, freedom to decide, involvement in activities, status quo, and self-reliance). Older people living with dementia loved the connection with their family and wanted to have an enjoyable life by engaging in several activities without others’ interference. They desired to maintain the status quo and not be a burden to others.ConclusionsThis study provides evidence on the everyday wishes of people living with dementia. Identified wishes are mostly on emotional aspects of their daily lives. The findings of our study might help provide care for the people living with dementia considering their wishes. Further exploration, including people with severe dementia, is needed.

【 授权许可】

CC BY