The legacy of hope summit: a consensus-based initiative and report on eating disorders in the U.S. and recommendations for the path forward

Journal of Eating Disorders

Elissa Myers¹  Donald Blackwell²  Carolyn Costin³  Michael E. Berrett⁴  Ovidio Bermudez⁵  Dena Cabrera⁶  Cheri A. Levinson⁷  Stuart B. Murray⁸  Michael Lutter⁹  Stephanie Setliff^1,10  Kristina Saffran^1,11  Craig Johnson^1,12  Kelly L. Klump^1,13  Margo Maine^1,14  Christine M. Peat^1,15  Nancy Hemendinger^1,16  J. D. Ouellette^1,17  Carrie J. McAdams^1,18  Gayle E. Brooks^1,19  Carolyn Becker^2,20  Beth Hartman McGilley^2,21  Douglas W. Bunnell^2,22 

[1] Academy for Eating Disorders, 11130 Sunrise Valley Drive, Suite 350, 20191, Reston, VA, USA;Bowman and Brooke LLP, Lake Mary, FL, USA;Carolyn Costin Institute, 29066 Cliffside Dr., 90265, Malibu, CA, USA;Center for Change, Berrett and Company, LLC, 1790 N State Street, 84057, Orem, UT, USA;Child and Adolescent Services, Eating Recovery Center and Affiliates, 7351 Lowry Blvd., Suite 200, 80230, Denver, CO, USA;Clinical Services, Rosewood Centers for Eating Disorders, 950 West Elliot Road, Suite 201, 85284, Tempe, AZ, USA;Eating Anxiety Treatment Laboratory, Behavioral Wellness Clinic/Louisville Center for Eating Disorders, Department of Psychological and Brain Sciences, University of Louisville, Louisville, KY, USA;Eating Disorders Program, Translational Research in Eating Disorders Laboratory, Department of Psychiatry and Behavioral Sciences, USC Keck School of Medicine, University of Southern California, 2250 Alcazar Street, Suite 2200, 90033, Los Angeles, CA, USA;Eating Recovery Center of San Antonio, Precision Psychiatry, 8105 Rasor Blvd #235, 75024, Plano, TX, USA;Eating Recovery Center, 4708 Alliance Blvd, Suite 300, 75093, Plano, TX, USA;Equip Health, Project Heal, 2674 Costebelle Drive, 92037, La Jolla, CA, USA;Family Institute, Eating Recovery Center, 7351 Lowry Blvd., Suite 200, Denver, CO, USA;MSU Foundation, Michigan State University Twin Registry, Department of Psychology, Michigan State University, 316 Physics Road – Rm. 107B, 48824, East Lansing, MI, USA;Maine and Weinstein Specialty Group, LLC, 433 South Main Street, Suite 327, 06110, West Hartford, CT, USA;National Center of Excellence for Eating Disorders, Psychiatry, University of North Carolina at Chapel Hill, CB #7160, 27599-7160, Chapel Hill, NC, USA;Office of Health Education, Suffolk County Department of Health Services, Office of Health Education/Division of Preventive Medicine, North County Complex, Veteran’s Memorial Highway, Box 6100, Bldg. 016, 11788, Hauppauge, NY, USA;Peer Coaching, University of California San Diego Center for Eating Disorders Treatment and Research, 11175 Negley Ave., 92131-1819, San Diego, CA, USA;Psychiatry With Tenure, Brain-Body Perceptions Research Program, UT Southwestern Medical Center, 6363 Forest Park Road, BL 6.204, 75390, Dallas, TX, USA;The Renfrew Center of Florida, 7700 Renfrew Lane, 33073, Coconut Creek, FL, USA;Trinity University, One Trinity Place, 78212, San Antonio, TX, USA;UKSM-W (Volunteer), 10500 E Berkeley Square Pkwy St 103, 67206, Wichita, KS, USA;Westport, USA;

关键词: Anorexia nervosa;    Bulimia nervosa;    Binge-eating disorder;    Avoidant/restrictive food intake disorder;    Advocacy;    Standards;    Body image;   

DOI  :  10.1186/s40337-021-00501-w

来源: Springer

【 摘 要 】

BackgroundSeveral unsuccessful attempts have been made to reach a cross-disciplinary consensus on issues fundamental to the field of eating disorders in the United States (U.S.). In January 2020, 25 prominent clinicians, academicians, researchers, persons with lived experience, and thought leaders in the U.S. eating disorders community gathered at the Legacy of Hope Summit to try again. This paper articulates the points on which they reached a consensus. It also: (1) outlines strategies for implementing those recommendations; (2) identifies likely obstacles to their implementation; and (3) charts a course for successfully navigating and overcoming those challenges.MethodsIterative and consensual processes were employed throughout the Summit and the development of this manuscript.ResultsThe conclusion of the Summit culminated in several consensus points, including: (1) Eating disorder outcomes and prevention efforts can be improved by implementing creative health education initiatives that focus on societal perceptions, early detection, and timely, effective intervention; (2) Such initiatives should be geared toward parents/guardians, families, other caretakers, and frontline healthcare providers in order to maximize impact; (3) Those afflicted with eating disorders, their loved ones, and the eating disorders community as a whole would benefit from greater accessibility to affordable, quality care, as well as greater transparency and accountability on the part of in-hospital, residential, and outpatient health care providers with respect to their qualifications, methodologies, and standardized outcomes; (4) Those with lived experience with eating disorders, their loved ones, health care providers, and the eating disorders community as a whole, also would benefit from the establishment and maintenance of treatment program accreditation, professional credentialing, and treatment type and levels of care guidelines; and (5) The establishment and implementation of effective, empirically/evidence-based standards of care requires research across a diverse range of populations, adequate private and government funding, and the free exchange of ideas and information among all who share a commitment to understanding, treating, and, ultimately, markedly diminishing the negative impact of eating disorders.ConclusionsWidespread uptake and implementation of these recommendations has the potential to unify and advance the eating disorders field and ultimately improve the lives of those affected.Plain English summaryA cross-disciplinary group of eating disorder professionals, thought leaders, and persons with lived experience have come together and reached a consensus on issues that are fundamental to the battle against the life-threatening and life-altering illnesses that are eating spectrum disorders. Those issues include: (1) the need for early detection, intervention, prevention, and evidenced-based standards of care; (2) the critical need to make specialized care more accessible and affordable to all those in need; (3) the importance of developing uniform, evidenced-based standards of care; (4) the need for funding and conducting eating spectrum disorder research; and (5) the indispensability of advocacy, education, and legislation where these illnesses are concerned. During the consensus process, the authors also arrived at strategies for implementing their recommendations, identified likely obstacles to their implementation, and charted a course for successfully navigating and overcoming those challenges. Above all else, the authors demonstrated that consensus in the field of eating spectrum disorders is possible and achievable and, in doing so, lit a torch of hope that is certain to light the path forward for years to come.

【 授权许可】

CC BY