Can a Peer Support the Process of Self-Management in Narcolepsy? A Qualitative Narrative Analysis of a Narcoleptic Patient

Frontiers in Psychology

article

Christian Franceschini¹  Giuseppe Plazzi²  Chiara Fante⁴  Marco Filardi²  Maria Claudia Folli¹  Francesca Brazzi¹  Fabio Pizza²  Anita D’Anselmo²  Francesca Ingravallo⁵  Elena Antelmi⁶ 

[1] Department of Medicine and Surgery, University of Parma;Department of Biomedical and Neuromotor Sciences, University of Bologna;IRCCS Institute of Neurological Sciences;Istituto per le Tecnologie Didattiche (ITD), National Research Council (CNR);Department of Medical and Surgical Sciences (DIMEC), University of Bologna;Neurology Unit, Movement Disorders Division, Department of Neurosciences, Biomedicine and Movement Sciences, University of Verona

关键词: narcolepsy;    case report;    clinical psychology;    peer support;    self-management;    coping strategies;    narrative medicine;   

DOI  :  10.3389/fpsyg.2020.01353

学科分类：社会科学、人文和艺术（综合）

来源: Frontiers

【 摘 要 】

Introduction Narcolepsy type 1 (NT1) is a chronic and rare sleep disorder typically arising during adolescence and young adulthood. The main symptoms are excessive daytime sleepiness and cataplexy, a prototypical fall down elicited by huge emotions. Social relationships, school, work, and general health perception are frequently impaired in patients, who often show lower quality-of-life scores. We report which management strategies a young patient (DMG) adopted to cope with NT1 during his growth, avoiding exhibiting serious impairments to his global functioning.

【 授权许可】

CC BY