Coding practice in national and regional kidney biopsy registries

BMC Nephrology

Ronald Cornet¹  Anthony Dorman²  Cristina Capusa³  Amélie Dendooven⁴  Colin Geddes⁵  Sabine Leh⁶  Juan M. López-Gómez⁷  Rosnawati Yahya⁸  Mårten Segelmark⁹  Myrurgia A. Abdul-Hamid^1,10  Agnieszka Perkowska-Ptasinska^1,11  Russell Villanueva^1,12  Niels Marcussen^1,13  Helmut Hopfer^1,14  Tri Q. Nguyen^1,15  Loreto Gesualdo^1,16  Sean Barbour^1,17  Michio Nagata^1,18  Mariela Garau^1,19  Kerstin Amann^2,20  Mark Helbert^2,21  Han Peetermans^2,21 

[1] Amsterdam University Medical Center, Amsterdam, The Netherlands;Beaumont Hospital, Dublin, Ireland;Carol Davila University of Medicine and Pharmacy, Bucharest, Romania;Ghent University Hospital, Ghent, Belgium;Antwerp University, Antwerp, Belgium;Glasgow Renal and Transplant Unit, Glasgow, UK;Haukeland University Hospital, Bergen, Norway;Hospital General Universitario Gregorio Marañón, Madrid, Spain;Hospital Kuala Lumpur, Kuala Lumpur, Malaysia;Lund University, Lund, Sweden;Maastricht University Medical Center, Maastricht, The Netherlands;Medical University of Warsaw, Warsaw, Poland;National Kidney and Transplant Institute, Quezon City, The Philippines;Odense University Hospital, Odense, Denmark;University Hospital of Basel, Basel, Switzerland;University Medical Center, Utrecht, The Netherlands;University of Bari Aldo Moro, Bari, Italy;University of British Columbia, Vancouver, Canada;University of Tsukuba Hospital, Tsukuba, Japan;University of the Republic, Montevideo, Uruguay;Universitätsklinikum Erlangen, Erlangen, Germany;ZNA Middelheim Hospital, Antwerp, Belgium;

关键词: Kidney biopsy registry;    Systematic review;    Coding;    Renal pathology;    Nephropathology;   

DOI  :  10.1186/s12882-021-02365-3

来源: Springer

【 摘 要 】

BackgroundKidney biopsy registries all over the world benefit research, teaching and health policy. Comparison, aggregation and exchange of data is however greatly dependent on how registration and coding of kidney biopsy diagnoses are performed. This paper gives an overview over kidney biopsy registries, explores how these registries code kidney disease and identifies needs for improvement of coding practice.MethodsA literature search was undertaken to identify biopsy registries for medical kidney diseases. These data were supplemented with information from personal contacts and from registry websites. A questionnaire was sent to all identified registries, investigating age of registries, scope, method of coding, possible mapping to international terminologies as well as self-reported problems and suggestions for improvement.ResultsSixteen regional or national kidney biopsy registries were identified, of which 11 were older than 10 years. Most registries were located either in Europe (10/16) or in Asia (4/16). Registries most often use a proprietary coding system (12/16). Only a few of these coding systems were mapped to SNOMED CT (1), older SNOMED versions (2) or ERA-EDTA PRD (3). Lack of maintenance and updates of the coding system was the most commonly reported problem.ConclusionsThere were large gaps in the global coverage of kidney biopsy registries. Limited use of international coding systems among existing registries hampers interoperability and exchange of data. The study underlines that the use of a common and uniform coding system is necessary to fully realize the potential of kidney biopsy registries.

【 授权许可】

CC BY