Co-designing strategies to support patient partners during a scoping review and reflections on the process: a commentary

Research Involvement and Engagement

Tracy Wasylak¹  Jananee Rasiah²  Fiona Clement³  Tamara L. McCarron³  Karen Moffat⁴  Maria Jose Santana⁵ 

[1] Alberta Health Services, 10301 Southport Rd SW, T2W 1S7, Calgary, AB, Canada;Faculty of Nursing, University of Calgary, Professional Faculties 2259 2500 University Drive NW, T2N 1N4, Calgary, AB, Canada;Faculty of Nursing, University of Alberta, 3-141 Edmonton Clinic Health Academy (ECHA), 11405 87 Avenue, T6G 1C9, Edmonton, AB, Canada;The Department Community Health Sciences, Teaching Research and Wellness Building, 3280 Hospital Drive NW, T2N 4N1, Calgary, Alberta, Canada;O’Brien Institute for Public Health, Teaching Research and Wellness Building, 3280 Hospital Drive NW, T2N 4N1, Calgary, Alberta, Canada;The Department Community Health Sciences, Teaching Research and Wellness Building, 3280 Hospital Drive NW, T2N 4N1, Calgary, Alberta, Canada;O’Brien Institute for Public Health, Teaching Research and Wellness Building, 3280 Hospital Drive NW, T2N 4N1, Calgary, Alberta, Canada;Patient Partner, Calgary, Canada;The Department Community Health Sciences, Teaching Research and Wellness Building, 3280 Hospital Drive NW, T2N 4N1, Calgary, Alberta, Canada;O’Brien Institute for Public Health, Teaching Research and Wellness Building, 3280 Hospital Drive NW, T2N 4N1, Calgary, Alberta, Canada;The Department Psychology, University of Calgary, 2500 University Dr NW, T2N 1N4, Calgary, AB, Canada;

关键词: Patient and public involvement;    Co-production;    Patient engagement;    Scoping review;   

DOI  :  10.1186/s40900-021-00272-3

来源: Springer

【 摘 要 】

BackgroundPatient partners can be described as individuals who assume roles as active members on research teams, indicative of individuals with greater involvement, increased sharing of power, and increased responsibility than traditionally described by patient participants who are primarily studied. A gap still remains in the understanding of how to engage patients. The objective of this commentary is to describe the involvement of four patient partners who worked with researchers during a scoping review.Main bodyWe describe approaches to meaningfully engage patient partners in conducting a scoping review. Patient partners were recruited through existing patient networks. Capacity development in the form of the training was provided to these four patient partners. Engagement strategies were co-designed with them to address potential barriers of involvement and acquiring the necessary skills for the successful completion of this scoping review.ConclusionInvolving patients partners early in the project established the foundational relationship so patient partners could contribute to their fullest. We witnessed the success of working alongside patient partners as members of the research team with a clear and mutually agreed upon purpose of the engagement in health research activities and how this seemed to contribute to an effective and rewarding experience for both researcher and patient partner.

【 授权许可】

CC BY