Development and evaluation of the Singapore Caregiver Quality of Life Scale - Dementia

Journal of Patient-Reported Outcomes

Wee Shiong Lim¹  Allyn Hum²  Dennis C. C. Seow³  Geok Ling Lee⁴  Shirlyn H. S. Neo⁵  Irene Teo⁶  Grace M. Yang⁶  Gretchen Tan⁷  Yin Bun Cheung⁸ 

[1] Department of Geriatric Medicine, Institute of Geriatrics and Active Aging, Tan Tock Seng Hospital, Singapore, Singapore;Department of Geriatric Medicine, Institute of Geriatrics and Active Aging, Tan Tock Seng Hospital, Singapore, Singapore;Department of Palliative Medicine, Tan Tock Seng Hospital, Singapore, Singapore;Department of Geriatric Medicine, Singapore General Hospital, Singapore, Singapore;Department of Social Work, Faculty of Arts and Social Sciences, National University of Singapore, Singapore, Singapore;Division of Supportive and Palliative Care, National Cancer Center, Singapore, Singapore;Lien Centre for Palliative Care, Duke-NUS Medical School, Singapore, Singapore;Division of Supportive and Palliative Care, National Cancer Center, Singapore, Singapore;Program in Health Services & Systems Research and Centre for Quantitative Medicine, Duke-NUS Medical School, Level 6, Academia, 20 College Road, 169856, Singapore, Singapore;Program in Health Services & Systems Research and Centre for Quantitative Medicine, Duke-NUS Medical School, Level 6, Academia, 20 College Road, 169856, Singapore, Singapore;Centre for Child Health Research, Tampere University, Tampere, Finland;

关键词: Caregivers;    Dementia;    Measurement scale;    Quality of life;   

DOI  :  10.1186/s41687-020-00252-3

来源: Springer

【 摘 要 】

PurposeTo develop and evaluate a measurement scale for multi-domain assessment of the quality of life of family caregivers of persons with dementia (PWD) in Singapore, a multi-ethic society in South-East Asia where English is the lingua franca.MethodsItems from the Singapore Caregiver Quality of Life Scale (SCQOLS), which was originally developed in the context of advanced cancers, were adopted as candidate items. Furthermore, a multi-disciplinary panel reviewed dementia-specific caregiver quality of life scales to identified items not covered in SCQOLS for inclusion as candidate items. A pilot study of 31 family caregivers of PWD was conducted to solicit inputs on candidate items; 102 family caregivers of PWD were surveyed for evaluation of the scale’s measurement properties.ResultsFactor analysis confirmed a 5-domain structure of the 63 candidate items. The Root Mean Square Error of Approximation was 0.056 and Comparative Fit Index was 0.928. Convergent validity of the total and domain scores was demonstrated in terms of correlation with the Brief Assessment Scale for Caregivers and its sub-scales. The scores also showed an expected pattern of correlation with hours spent on caregiving per week. Known-group validity was demonstrated by differences in mean scores between functional staging groups. Cronbach’s alpha of the total and domain scores ranged from 0.89 to 0.95. Test-retest reliability (intraclass correlation coefficient) ranged from 0.77 to 0.92.ConclusionsThe Singapore Caregiver Quality of Life Scale – Dementia (SCQOLS-D) is a quality of life measurement scale for family caregivers of persons with dementia that is valid and reliable.

【 授权许可】

CC BY