Research Involvement and Engagement | |
‘All hands-on deck’, working together to develop UK standards for public involvement in research | |
Julie Simpson1  Bob McAlister2  Barbara Moore3  Philippa Yeeles4  Hothan Esmael4  Ade Adebajo5  Paula Wray6  Una Rennard6  Simon Denegri7  Sally Crowe8  Martin Quinn9  Angela Martin1,10  | |
[1] Chief Scientist Office, Edinburgh, Scotland;Health and Care Research Wales Public Involvement Delivery Board, Cardiff, UK;Health and Care Research Wales Support and Delivery Centre, Cardiff, UK;NIHR Central Commissioning Facility, Twickenham, UK;NIHR INVOLVE, Sheffield University & Barnsley Hospital NHS Trust, Barnsley, UK;NIHR INVOLVE, Southampton, UK;NIHR National Director for Patients, Carers and the Public, London, UK;Oxford, UK;Public Health Agency, Belfast, Northern Ireland;Research and Development Division, Welsh Government, Cardiff, UK; | |
关键词: Patient and public involvement; Research; Standards; Partnership; Collaboration; Improvement; Framework; | |
DOI : 10.1186/s40900-020-00229-y | |
来源: Springer | |
【 摘 要 】
BackgroundPublic involvement in research is an established part of the research process in the UK, however there remain questions about what good public involvement in research looks and feels like. Until now public involvement practitioners, researchers and members of the public have looked for answers in examples shared across networks, published case studies, guidance and research articles. Pulling these strands together, the UK Standards for Public Involvement provides six statements (standards) about public involvement in research. They were produced by a partnership of organisations from Scotland, Northern Ireland, Wales and England with contributions from involvement practitioners, public partners, researchers and research funders.Main bodyEach standard has reflective questions, which are designed to encourage standard users to use approaches and behaviours that improve involvement, over time. The standards are designed to be used as a practical tool, and reflect the agreed hallmarks of good public involvement in research for example, flexibility in approaches used, shared learning, and mutual respect.The standards development process is described from the initial idea and scoping, via the appraisal of existing standard sets and integration of values and principles in public involvement in research. The collaborative writing process of and consultation on the draft standard set is described, together with what changed as a result of feedback. The initiation of a year-long testing programme with forty participating research organisations, the experiential feedback and the resulting changes to the standards is summarised.ConclusionThis commentary paper describes, in some detail, a process to develop a set of six standards for public involvement in research in the UK. Producing a complex, national public involvement initiative is not without its challenges, and in supplementary material partnership members reflect on and share their experiences of standards development. The next phase of integration and implementation is explored with concluding comments from those that tested and helped improve the standards.
【 授权许可】
CC BY
【 预 览 】
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