Sexuality and sickle cell anemia

Revista Brasileira de Hematologia e Hemoterapia

Viviane De Almeida Côbo¹  Cibele Alves Chapadeiro¹  João Batista Ribeiro¹  Helio Moraes-souza¹  Paulo Roberto Juliano Martins¹ 

[1] ,Universidade Federal do Triângulo MineiroUberaba MG ,Brazil

关键词: Anemia;    sickle cell;    Sexuality;    Quality of life;    Humans;    Adult;   

DOI  :  10.5581/1516-8484.20130027

来源: SciELO

【 摘 要 】

BACKGROUND: Sickle cell disease, the most common hereditary blood disease in the world, is the result of an atypical hemoglobin called S (Hb S) which, when homozygous (Hb SS) is the cause of sickle cell anemia. Changes of puberty, correlated with a delayed growth spurt, begin late in both male and female sickle cell anemia individuals with repercussions on sexuality and reproduction. The objectives of this exploratory and descriptive study were to characterize the development of sexuality in adults with sickle cell anemia by investigating the patient's perception of their sex life, as well as the information they had and needed on this subject. METHODS: Twenty male and female sickle cell anemia patients treated at the Hemocentro Regional de Uberaba (UFTM) with ages between 19 and 47 years old were enrolled. A socioeconomic questionnaire and a semi-structured interview on sexuality, reproduction and genetic counseling were applied. RESULTS: This study shows that the sickle cell anemia patients lacked information on sexuality especially about the risks of pregnancy and the possible inheritance of the disease by their children. Moreover, the sexual life of the patients was impaired due to pain as well as discrimination and negative feelings experienced in close relationships. CONCLUSION: The health care of sickle cell anemia patients should take into account not only the clinical aspects of the disease, but also psychosocial aspects by providing counseling on sexuality, reproduction and genetics, in order to give this population the possibility of a better quality of life.

【 授权许可】

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