Quality of life and burden in carers for persons with Chronic Obstructive Pulmonary Disease receiving oxygen therapy

Revista Latino-Americana de Enfermagem

Simone Cedano¹  Ana Rita De Cássia Bettencourt¹  Fabiana Traldi¹  Maria Christina Lombardi Oliveira Machado¹  Angélica Gonçalves Silva Belasco¹ 

关键词: Quality of Life;    Pulmonary Disease;    Chronic Obstructive;    Caregivers;    Oxygen Inhalation Therapy;    Qualidade de Vida;    Doença Pulmonar Obstrutiva Crônica;    Cuidadores;    Oxigenoterapia;    Calidad de Vida;    Enfermedad Pulmonar Obstructiva Crónica;    Cuidadores;    Terapia por Inhalación de Oxígeno;   

DOI  :  10.1590/S0104-11692013000400005

来源: SciELO

【 摘 要 】

OBJECTIVE:to assess the quality of life and burden of caregivers to Chronic Obstructive Pulmonary Disease patients on Long-Term Oxygen Therapy and to investigate the factors influencing this burden.METHOD:this is an analytical, cross-sectional study of 80 persons with Chronic Obstructive Pulmonary Disease on Long-Term Oxygen Therapy who used the specialized outpatient center of the Federal University of São Paulo, and their carers. The following instruments were used: Medical Outcomes Studies 36 (SF-36), Caregiver Burden Scale (CBS) and the Katz Index, along with socio-demographic and clinical variables.RESULTS:the most compromised scores on the carers' quality of life questionnaire were for Vitality and Mental Health. On the Caregiver Burden Scale, the domain which created the greatest burden for carers was the Environment. With the exception of Emotional Involvement, all the domains of quality of life were affected negatively by the domains of caregiver burden.CONCLUSION:it was shown that carers' quality of life was compromised and that they were overburdened with care tasks, confirming that assisting persons with Chronic Obstructive Pulmonary Disease is an important element in carers' quality of life.

【 授权许可】

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