Burden of care and its impact on health-related quality of life of caregivers of individuals with spinal cord injury

Revista Latino-Americana de Enfermagem

Paula Cristina Nogueira¹  Soraia Assad Nasbine Rabeh²  Maria Helena Larcher Caliri²  Rosana Aparecida Spadoti Dantas²  Vanderlei José Haas¹ 

[1] ,Universidade de São Paulo Escola de Enfermagem de Ribeirão Preto ,Brazil

关键词: Quality of Life;    Caregivers;    Spinal Cord Injuries;    Activities of Daily Living;    Qualidade de Vida;    Cuidadores;    Traumatismos da Medula Espinhal;    Atividades Cotidianas;    Calidad de Vida;    Cuidadores;    Traumatismos de la Médula Espinal;    Actividades cotidianas;   

DOI  :  10.1590/S0104-11692012000600006

来源: SciELO

【 摘 要 】

OBJECTIVE: to analyze the impact and burden of care on the Health-Related Quality of Life (HRQOL) of caregivers of individuals with a spinal cord injury (SCI). METHOD: cross-sectional observational study carried out by reviewing medical records and applying questionnaires. The scale Short Form 36 (SF-36) was used to assess HRQOL and the Caregiver Burden Scale (CBScale) for care burden. Results were analyzed quantitatively. Most patients with SCIs were male, aged 35.4 years old on average, with a predominance of thoracic injuries followed by cervical injuries. Most caregivers were female aged 44.8 years old on average. RESULTS: tetraplegia and secondary complications stand out among the clinical characteristics that contributed to greater care burden and worse HRQOL. Association between care burden with HRQOL revealed that the greater the burden the worse the HRQOL. CONCLUSION: Preventing care burden through strategies that prepare patients for hospital discharge, integrating the support network, and enabling access to health care services are interventions that could minimize the effects arising from care burden and contribute to improving HRQOL.

【 授权许可】

CC BY   
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