Care delivery for the child to grow up despite the pain: the family's experience

Revista Latino-Americana de Enfermagem

Lisabelle Mariano Rossato²  Margareth Angelo²  Clovis Artur Almeida Silva¹ 

[1] ,University of São Paulo School of Nursing ,Brazil

关键词: family;    child;    arthritis;    juvenile rheumatoid;    pain;    familia;    niño;    artritis reumatoide juvenil;    dolor;    família;    criança;    artrite reumatóide juvenil;    dor;   

DOI  :  10.1590/S0104-11692007000400006

来源: SciELO

【 摘 要 】

This study aimed to understand the meaning of the experience of families having a child experiencing pain due to Juvenile Rheumatoid Arthritis and to construct a theoretical model representing this experience. Grounded Theory and Symbolic Interactionism were used as methodological framework and theoretical framework, respectively. Data were collected by semistructured interviews with 12 families. Data analysis allowed for the construction of the theoretical model Caring for the child to grow despite the pain, which describes an experience based on motivational elements: wanting to see the child without pain and wanting to see the child live a normal life, reviewing how the family lives the transition in its development cycles, retaking and integrating them in the family dynamic with the appearance of the disease and pain in the child. This theoretical model provides a framework for teaching, research and care, permitting advances in terms of theoretical nursing knowledge.

【 授权许可】

CC BY   
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