From the dream to reality: experience of mothers of children with disabilities

Texto & Contexto - Enfermagem

Camilla De Sena Guerra¹  Maria Djair Dias¹  Maria De Oliveira Ferreira Filha¹  Fábia Barbosa De Andrade¹  Altamira Pereira Da Silva Reichert¹  Verbena Santos Araújo¹ 

关键词: Mother-child relationships;    Psychological resilience;    Nursing;    Relaciones madre-hijo;    Resiliencia psicológica;    Enfermería;    Relações mãe-filho;    Resiliência psicológica;    Enfermagem;   

DOI  :  10.1590/0104-07072015000992014

来源: SciELO

【 摘 要 】

This study aims to show signs of emotional distress experienced by mothers of children with disabilities. Comprehensive and interpretative study, conducted in the city of Timbaúba/Pernambuco/Brazil, with six mothers of children with disabilities. The empirical material was produced by interviews, following the premises of the Oral History proposed by Bom Meihy and then interpreted in the light of the thematic analysis technique. The mothers' narratives are marked by feelings of ambiguity, neglect, sadness, denial, guilt, self-pity, self-contempt and frustrations. The stories revealed that mothers have the power to overcome and are able to adapt themselves to the experience of taking care of a disabled child. The narratives provided reflections on the complexity of being a mother, in particular, the issue of disability, suggesting the need for multidisciplinary actions aimed at personal empowerment and autonomy in caring for a child, with a view to the child's rehabilitation and inclusion in society.

【 授权许可】

CC BY   
 All the contents of this journal, except where otherwise noted, is licensed under a Creative Commons Attribution License