Family organization for the care of children with chronic conditions, discharged from the neonatal intensive care unit

Texto & Contexto - Enfermagem

Corina Lemos Jamal Nishimoto¹  Elysângela Dittz Duarte¹ 

关键词: Chronic disease;    Family;    Infant;    newborn;    Intensive care units;    Neonatal;    Enfermedad crónica;    Familia;    Recién nacido;    Unidades de Cuidado Intensiva Neonatal;    Doença crônica;    Família;    Recém-nascido;    Unidades de Terapia Intensiva Neonatal;   

DOI  :  10.1590/0104-07072014001330013

来源: SciELO

【 摘 要 】

A qualitative study that aimed to examine family organization for the care of children with chronic conditions, discharged from the Neonatal Intensive Care Unit (NICU). The subjects were 12 relatives of children with chronic health conditions. Data were collected through genograms, ecomaps and semi-structured interviews, developed based on the Family Management Style Framework theoretical model and analyzed using thematic content analysis. The organization of families is related to the ongoing care requirements of the children, considering the routines of care established in the period immediately after discharge from the hospital and continuing up to the present. It was established that families access their social networks to handle the required care.

【 授权许可】

CC BY   
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