Reliability and validity of the revised impact on family scale (RIOFS) in the hospital context

Journal of Patient-Reported Outcomes

Alejandra A. Silva¹  Cristina F. Canales¹  Lilian S. Briceño¹  Nicolas S. Ibáñez¹  Paulina A. Méndez¹  Vanessa Perez Ormeño¹  Yorschua F. Jalil²  Mireya A. Méndez³  Gregory S. Villarroel⁴ 

[1] Department of Kinesiology and Respiratory Rehabilitation, Hospital Josefina Martínez, Avenida Camilo Henríquez 3691, Puente Alto, Santiago, Chile;Department of Kinesiology and Respiratory Rehabilitation, Hospital Josefina Martínez, Avenida Camilo Henríquez 3691, Puente Alto, Santiago, Chile;0000 0001 2156 804X, grid.412848.3, Escuela de Kinesiología, Facultad de Ciencias de la Rehabilitación, Universidad Andrés Bello, Santiago, Chile;0000 0001 2287 9552, grid.412163.3, Master of Science, Clinic Epidemiology, Universidad de la Frontera, Temuco, Chile;Department of Kinesiology and Respiratory Rehabilitation, Hospital Josefina Martínez, Avenida Camilo Henríquez 3691, Puente Alto, Santiago, Chile;0000 0001 2157 0406, grid.7870.8, School of Medicine, Pontificia Universidad Católica de Chile, Santiago, Chile;Department of Kinesiology and Respiratory Rehabilitation, Hospital Josefina Martínez, Avenida Camilo Henríquez 3691, Puente Alto, Santiago, Chile;0000 0001 2157 0406, grid.7870.8, School of Medicine, Pontificia Universidad Católica de Chile, Santiago, Chile;0000 0001 2157 0406, grid.7870.8, Adjunct Instructor, Kinesiology Career, Health Sciences Department, Faculty of Medicine, Pontificia Universidad Católica de Chile, Santiago, Chile;

关键词: Chronic illness;    Family burden;    Care givers;    Impact on family scale;    Children;    Reliability;    Validity;   

DOI  :  10.1186/s41687-019-0118-1

来源: publisher

【 摘 要 】

BackgroundThe lack of formal instruments to measure Burden in primary caregivers of Children in a hospital context is limited because mostly of published instruments are related to cancer survivors, ambulatory environment or general context for children with chronic conditions, but none of them adapted property to prolonged hospitalization context. This leaves the rising population of hospitalized chronic children’s caregivers without a proper assessment. The aim of this study was to develop a version of the Revised Impact on Family Scale adapted to primary caregivers of chronic hospitalized children. A cross-sectional study with two main stages was conducted. The first one describes the linguistic and contextual adaptation process of the instrument, and the second refers to the psychometric testing and analysis..ResultsLess than 15% of the participants expressed problems with some adapted items in the scale. Eighty-six caregivers were evaluated at Josefina Martinez Hospital, mostly female (34.2 ± 11.6 years old). Majority of participants were graduated from high school, salaried employee and mothers of the chronic child. The scale exhibits a high level of internal consistency (Cronbach’s alpha 0.73), excellent intra-observer reliability (Intraclass Correlation Coefficient 0.9), acceptable empirical evaluation of content validity and low and negative construct validity (Pearson’s correlation coefficient − 0.23).ConclusionsThis adapted version of the Revised Impact on Family Scale to the hospital context is a reliable, valid, self-administered and simple instrument to implement in order to assess the burden of primary caregivers with chronic hospitalized children.

【 授权许可】

CC BY