International Journal of Environmental Research and Public Health | |
Funding Decisions for Newborn Screening: A Comparative Review of 22 Decision Processes in Europe | |
Katharina Elisabeth Fischer1  | |
[1]Hamburg Center for Health Economics, Universität Hamburg, Esplanade 36, 20354 Hamburg, Germany | |
关键词: coverage; reimbursement; decision-making; internet survey; European Union; tandem mass spectronomy; | |
DOI : 10.3390/ijerph110505403 | |
来源: mdpi | |
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【 摘 要 】
Decision-makers need to make choices to improve public health. Population-based newborn screening (NBS) is considered as one strategy to prevent adverse health outcomes and address rare disease patients’ needs. The aim of this study was to describe key characteristics of decisions for funding new NBS programmes in Europe. We analysed past decisions using a conceptual framework. It incorporates indicators that capture the steps of decision processes by health care payers. Based on an internet survey, we compared 22 decisions for which answers among two respondents were validated for each observation. The frequencies of indicators were calculated to elicit key characteristics. All decisions resulted in positive, mostly unrestricted funding. Stakeholder participation was diverse focusing on information provision or voting. Often, decisions were not fully transparent. Assessment of NBS technologies concentrated on expert opinion, literature review and rough cost estimates. Most important appraisal criteria were effectiveness (
【 授权许可】
CC BY
© 2014 by the authors; licensee MDPI, Basel, Switzerland.
【 预 览 】
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RO202003190025867ZK.pdf | 255KB | ![]() |