A Lifesaving View of Vascularized Composite Allotransplantation: Patient Experience of Social Death Before and After Face, Hand, and Larynx Transplant

Journal of Patient Experience

Katrina ABramstedt¹ 

关键词: vascularized composite allotransplantation;    ethics consultation;    quality of life;    social isolation;    narrative;    social death;   

DOI  :  10.1177/2374373517730556

学科分类：医学（综合）

来源: Sage Journals

【 摘 要 】

Introduction:Most solid organ transplantation is viewed as lifesaving, whereas vascularized composite allotransplantation (VCA) has been viewed as life enhancing. This article challenges the latter and argues that “social death” evident in severe face, hand, and larynx disfigurement can be potentially treated via VCA. Social death (from a social science perspective) consists of a combination of 7 components: social isolation, loneliness, ostracism, loss of personhood, change of role and identity, harm, and disfigurement.Methods:In February 2016, PubMed and Google were searched for case reports of human face, hand, and larynx transplantation. Patient and team narratives were then coded for components of social death using social science and medical model criteria.Results:Eleven narratives were identified among 9 articles. The social science model (but not the medical model) described pretransplant social death and the resolution of social death by receiving VCA. Notably, the medical model of social death w...

【 授权许可】

CC BY