From smartphone to EHR: a case report on integrating patient-generated health data

npj Digital Medicine

Yu-Feng Yvonne Chan¹  Samantha Violante²  Nicholas Genes³  Linda Rogers⁴  Eric E. Schadt⁵  Christine Cetrangol⁶ 

[1]National Jewish Health Respiratory Institute, New York, USA

[2]Department of Emergency Medicine, Icahn School of Medicine at Mount Sinai, New York, USA

[3]Department of Genetics and Genomic Sciences,Icahn School of Medicine at Mount Sinai , New York, USA

[4]Epic Applications, Information Technology Department, Mount Sinai Health System, New York, USA

[5]Mount Sinai –

[6]Sema4, a Mount Sinai Venture, Stamford, USA

DOI  :  10.1038/s41746-018-0030-8

学科分类：医学（综合）

来源: Nature Publishing Group

【 摘 要 】

Patient-generated health data (PGHD), collected from mobile apps and devices, represents an opportunity for remote patient monitoring and timely interventions to prevent acute exacerbations of chronic illness—if data are seen and shared by care teams. This case report describes the technical aspects of integrating data from a popular smartphone platform to a commonly used EHR vendor and explores the challenges and potential of this approach for disease management. Consented subjects using the Asthma Health app (built on Apple’s ResearchKit platform) were able to share data on inhaler usage and peak expiratory flow rate (PEFR) with a local pulmonologist who ordered this data on Epic’s EHR. For users who had installed and activated Epic’s patient portal (MyChart) on their iPhone and enabled sharing of health data between apps via HealthKit, the pulmonologist could review PGHD and, if necessary, make recommendations. Four patients agreed to share data with their pulmonologist, though only two patients submitted more than one data point across the 4.5-month trial period. One of these patients submitted 101 PEFR readings across 65 days; another submitted 24 PEFR and inhaler usage readings across 66 days. PEFR for both patients fell within predefined physiologic parameters, except once where a low threshold notification was sent to the pulmonologist, who responded with a telephone discussion and new e-prescription to address symptoms. This research describes the technical considerations and implementation challenges of using commonly available frameworks for sharing PGHD, for the purpose of remote monitoring to support timely care interventions.

【 授权许可】

CC BY