Converging approaches to understanding early onset familial Alzheimer disease: A First Nation study:

SAGE Open Medicine

Laura YCabrera¹ 

关键词: Early onset familial Alzheimer disease;    First Nation;    geneticization;    medicalization;    crosscultural neuroethics;    two-eyed seeing;   

DOI  :  10.1177/2050312115621766

学科分类：医学（综合）

来源: Sage Journals

【 摘 要 】

Objectives:In 2007, a novel pathogenic genetic mutation associated with early onset familial Alzheimer disease was identified in a large First Nation family living in communities across British Columbia, Canada. Building on a community-based participatory study with members of the Nation, we sought to explore the impact and interplay of medicalization with the Nation’s knowledge and approaches to wellness in relation to early onset familial Alzheimer disease.Methods:We performed a secondary content analysis of focus group discussions and interviews with 48 members of the Nation between 2012 and 2013. The analysis focused specifically on geneticization, medicalization, and traditional knowledge of early onset familial Alzheimer disease, as these themes were prominent in the primary analysis.Results:We found that while biomedical explanations of disease permeate the knowledge and understanding of early onset familial Alzheimer disease, traditional concepts about wellness are upheld simultaneously.Conclusion...

【 授权许可】

CC BY