The effects of cultural background on patient-perceived impact of psoriatic arthritis - a qualitative study conducted in Brazil and France

Advances in Rheumatology

Charles Lubianca Kohem¹  sar Luis Hinckel²  Ricardo Machado Xavier³  Maarten de Wit⁵  Willemina Campbell⁷  Sarah Kreis⁹  Pené^1,10  Ana Laura Didonet Moro^1,11  Niti Goel^1,12  a da Silva Chakr^1,13  Laure Gossec^1,14  lope Esther Palominos^1,15  Rafael Mendonç^1,16  Cé^1,18 

[1] Publique. Pitiéã-SalpetrièDepartment of Medical Humanities, Patient Research Partner, VU University Medical Centre, Amsterdam, Netherlands;EpidéFaculdade de Medicina, Departamento de Medicina Interna, Universidade Federal do Rio Grande do Sul (UFRGS), Porto Alegre, Brazil;Institut Pierre Louis d’Patient Research Partner, Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA), University Health Network, Toronto Western Hospital, Bathurst, Canada;Programa de PóServiçdicas, Universidade Federal do Rio Grande do Sul (UFRGS), Porto Alegre, Brazil;miologie et de Santéncias Ménicas de Porto Alegre, Porto Alegre, Brazil;o de Reumatologia, Hospital de Clío em Ciêre Hospital, AP-HP, Rheumatology Department, Sorbonne Universités Graduaçs, UPMC Univ Paris 6, Paris, France

关键词: Psoriatic arthritis;    Quality of life;    Qualitative research;    Disease burden;   

DOI  :  10.1186/s42358-018-0036-6

学科分类：过敏症与临床免疫学

来源: Springer

【 摘 要 】

In psoriatic arthritis (PsA) almost all qualitative studies have been performed in European populations. This work aimed to evaluate the impact of PsA in Brazilian and French subjects, as well as to explore cultural differences in the experience of disease and to recognize domains important for patients living with PsA outside Europe. A qualitative study was conducted in two university hospitals in Brazil and France; outpatients fulfilling Classification Criteria for PsA participated in individual interviews regarding the impact of PsA; interviews were conducted in the local language. The sample size was defined by saturation; interviews were recorded and transcribed and content analysis was performed. Fifteen patients were interviewed in Brazil and 13 in France. Mean disease duration was 16.5 ± 12.5 years (range: 8 months to 47 years) and 14.4 ± 8.4 years (range 12 months to 29 years) for Brazilian and French subjects, respectively. A broad impact was perceived: 67 codes emerged from the interviews and were grouped in 41 categories. Although 2/3 of categories were common to both nationalities, some important health domains from the perspective of PsA patients from a non-European background were brought to light including sexual dysfunction, emotional impact of psoriasis and impact of prejudice on social and professional life. This study highlights the importance of assessing the impact of PsA on a national level, emphasizing the common cross-cultural aspects but also revealing domains of interest for patients with PsA living outside Europe which merit further study.

【 授权许可】

CC BY