Living With Multiple Myeloma: A Focus Group Study of Unmet Needs and Preferences for Survivorship Care

Journal of Patient Experience

LeanneMonterosso¹ 

关键词: multiple myeloma;    survivorship;    focus groups;    unmet needs;    support;   

DOI  :  10.1177/2374373517715011

学科分类：医学（综合）

来源: Sage Journals

【 摘 要 】

Purpose:To describe the unmet informational, psychological, emotional, social, practical, and physical needs and preferences for posttreatment survivorship care of individuals living with multiple myeloma to inform the development of relevant, person-centered, survivorship services.Methods:An exploratory, descriptive study using 2 focus groups with 14 participants, 6 to 49 months postdiagnosis.Results:Thematic analysis revealed 7 key themes: information needs, experience with health-care professionals, coping with side effects, communicating with family and friends, dealing with emotions, support needs, and living with the chronicity of myeloma. Participants described key characteristics of survivorship care relevant to their needs and indicated they would like a more whole of person approach to follow-up when the main treatment phases had completed.Conclusion:Participants in this study described unmet needs across a breadth of domains that varied over time. The development of flexible, person-centered ap...

【 授权许可】

CC BY