Research ethics, informed consent and the disempowerment of First Nation peoples:

Research Ethics

Juan MTauri¹ 

关键词: First Nations;    research ethics boards;    informed consent;    decolonisation;   

DOI  :  10.1177/1747016117739935

学科分类：医学（综合）

来源: Sage Journals

【 摘 要 】

Recently, Indigenous commentators have begun to analyse the way in which institutional Research Ethics Boards (REBs) engage with Indigenous researchers and participants, respond to Indigenous peoples’ concerns with academic research activities, and scrutinise the ethics proposals of Indigenous scholars. Of particular concern for Indigenous commentators is that the work of REBs often results in the marginalisation of Indigenous approaches to knowledge construction and dissemination, especially in relation to the vexed issue of informed consent. Based on analysis of the results of research with Indigenous researchers and research participants, this paper argues that institutionalised REBs’ preference for ‘universal’ and ‘individualised’ approaches for determining ethical research conduct marginalises Indigenous approaches to ethical research conduct. The paper concludes by calling for a decolonisation of REB processes through recognition of the validity of communal processes for attaining the informed conse...

【 授权许可】

CC BY