Clinical biobanks in Italy and Liguria: Ethical and social issues, initiatives at the national, regional and local level:

Research Ethics

BarbaraParodi¹ 

关键词: biological resource centres;    clinical biobanks;    informed consent;    trust;   

DOI  :  10.1177/1747016112454641

学科分类：医学（综合）

来源: Sage Journals

【 摘 要 】

This article aims to revise the ethical and social implications for clinical biobanks and their application in Italy, in the Liguria Region and in a comprehensive cancer centre in Genoa. The policies already in place in the regional network and in the IST National Institute for Cancer Research in terms of involvement of the community of patients and citizens are described, as well as the future development of initiatives aimed at improving the active participation of the community. The author is a biobank manager and not a professional bioethicist. The world of biobanks in Italy includes large numbers of small initiatives, and ‘biobankers’ are aware that public engagement is essential to ensure public trust and to give legitimacy to the research. The governance of these research infrastructures requires new tools in order to improve involvement of participants. The October 2011 Conference, ‘New Patient-Centric Perspectives in Medical Research: Ethical and Governance Challenges’ has been an important occas...

【 授权许可】

CC BY