Public deliberation to develop ethical norms and inform policy for biobanks: Lessons learnt and challenges remaining:

Research Ethics

Kieran CO’Doherty¹ 

关键词: biobanks;    biomedical research;    ELSI;    minipublic;    public deliberation;   

DOI  :  10.1177/1747016113488858

学科分类：医学（综合）

来源: Sage Journals

【 摘 要 】

Public participation is increasingly an aspect of policy development in many areas, and the governance of biomedical research is no exception. There are good reasons for this: biomedical research relies on public funding; it relies on biological samples and information from large numbers of patients and healthy individuals; and the outcomes of biomedical research are dramatically and irrevocably changing our society. There is thus arguably a democratic imperative for including public values in strategic decisions about the governance of biomedical research. However, it is not immediately clear how this might best be achieved. While different approaches have been proposed and trialled, we focus here on the use of public deliberation as a mechanism to develop input for policy on biomedical research. We begin by explaining the rationale for conducting public deliberation in biomedical research. We focus, in particular, on the ELS (ethical, legal, social) aspects of human tissue biobanking. The last few years...

【 授权许可】

CC BY