Policy Making in Newborn Screening Needs a Structured and Transparent Approach

Frontiers in Public Health

Marleen E. Jansen¹ 

关键词: decision making;    newborn screening;    public health policy;    genomic screening;    genetic testing;   

DOI  :  10.3389/fpubh.2017.00053

学科分类：卫生学

来源: Frontiers

【 摘 要 】

PurposeNewborn bloodspot screening (NBS) programs have expanded significantly in the past years and are expected to expand further with the emergence of genetic technologies. Historically, NBS expansion has often occurred following ad hoc consideration of conditions, instead of a structured and transparent approach. In this review, we explore issues pertinent to NBS policy making, through the lens of the policy cycle: (a) agenda setting, (b) policy advice, (c) policy decision, (d) implementation, and (e) evaluation.

【 授权许可】

CC BY