Editorial: The European Patients Academy on Therapeutic Innovation (EUPATI) Guidelines on Patient Involvement in Research and Development

Frontiers in Medicine

Per Spindler¹ 

关键词: EUPATI;    european patients academy on therapeutic innovation;    patient involvement;    patient advocacy;    innovative medicines;   

DOI  :  10.3389/fmed.2018.00310

学科分类：医学（综合）

来源: Frontiers

【 摘 要 】

Our colleagues and we are working toward improving health by speeding up the development of and patient access to innovative medicines, particularly in areas where there is an unmet medical or social need. It appears pivotal that key players of health care research collaborate on involving patients in research, which may hugely benefit the medicines development process: by bringing their priorities, perspectives, and knowledge about their own diseases to the table, patients can contribute to developing better treatments. Thus, there is a call for action to trigger a major rethink of the way patients and the public understand the medicines development process and their own involvement. There is an additional need to shape and facilitate the ways patients and patient organizations can be involved to handle the many complex ethical, legal and other issues intrinsic to the development process.

【 授权许可】

CC BY