期刊论文详细信息
Reproductive Health
Beyond repair - family and community reintegration after obstetric fistula surgery: study protocol
Suellen Miller3  Sharon Knight3  Hadija Nalubwama2  Abner Korn3  Elizabeth Butrick3  Felicia Lester3  Justus Barageine1  Othman Kakaire2  Haruna Mwanje1  Susan Obore1  Alison El Ayadi3  Josaphat Byamugisha1 
[1] Mulago National Referral and Teaching Hospital, Kampala, Uganda;Department of Obstetrics and Gynecology, Makerere University College of Health Sciences, Kampala, Uganda;Department of Obstetrics, Gynecology and Reproductive Sciences, Bixby Center for Global Reproductive Health, University of California San Francisco, California, USA
关键词: Uganda;    Measurement tool;    Obstructed labor;    Maternal morbidity;    Beyond repair;    Social reintegration;    Obstetric fistula;   
Others  :  1235661
DOI  :  10.1186/s12978-015-0100-1
 received in 2015-09-22, accepted in 2015-11-16,  发布年份 2015
PDF
【 摘 要 】

Background

Obstetric fistula is a debilitating birth injury that affects an estimated 2–3 million women globally, most in sub-Saharan Africa and Asia. The urinary and/or fecal incontinence associated with fistula affects women physically, psychologically and socioeconomically. Surgical management of fistula is available with clinical success rates ranging from 65–95 %. Previous research on fistula repair outcomes has focused primarily on clinical outcomes without considering the broader goal of successful reintegration into family and community.

The objectives for this study are to understand the process of family and community reintegration post fistula surgery and develop a measurement tool to assess long-term success of post-surgical family and community reintegration.

Methods

This study is an exploratory sequential mixed-methods design including a preliminary qualitative component comprising in-depth interviews and focus group discussions to explore reintegration to family and community after fistula surgery. These results will be used to develop a reintegration tool, and the tool will be validated within a small longitudinal cohort (n = 60) that will follow women for 12 months after obstetric fistula surgery. Medical record abstraction will be conducted for patients managed within the fistula unit. Ethical approval for the study has been granted.

Discussion

This study will provide information regarding the success of family and community reintegration among women returning home after obstetric fistula surgery. The clinical and research community can utilize the standardized measurement tool in future studies of this patient population.

【 授权许可】

   
2015 Byamugisha et al.

【 预 览 】
附件列表
Files Size Format View
20160124083318193.pdf 440KB PDF download
【 参考文献 】
  • [1]Wall LL. Obstetric vesicovaginal fistula as an international public-health problem. Lancet. 2006; 368(9542):1201-9.
  • [2]Maheu-Giroux M, Filippi V, Samadoulougou S, Castro MC, Maulet N, Meda N et al.. Prevalence of symptoms of vaginal fistula in 19 sub-Saharan Africa countries: a meta-analysis of national household survey data. Lancet Glob Health. 2015; 3(5):e271-8.
  • [3]Adler AJ, Ronsmans C, Calvert C, Filippi V. Estimating the prevalence of obstetric fistula: a systematic review and meta-analysis. BMC Pregnancy Childbirth. 2013; 13:246. BioMed Central Full Text
  • [4]Stanton C, Holtz SA, Ahmed S. Challenges in measuring obstetric fistula. Int J Gynaecol Obstet. 2007; 99 Suppl 1:S4-9.
  • [5]Tuncalp O, Tripathi V, Landry E, Stanton CK, Ahmed S. Measuring the incidence and prevalence of obstetric fistula: approaches, needs and recommendations. Bull World Health Organ. 2015; 93(1):60-2.
  • [6]Ahmed S, Holtz SA. Social and economic consequences of obstetric fistula: life changed forever? Int J Gynaecol Obstet. 2007; 99 Suppl 1:S10-5.
  • [7]Browning A, Menber B. Women with obstetric fistula in Ethiopia: a 6-month follow-up after surgical treatment. BJOG. 2008; 115:1564-9.
  • [8]Arrowsmith S, Hamlin EC, Wall LL. Obstructed labor injury complex: obstetric fistula formation and the multifaceted morbidity of maternal birth trauma in the developing world. Obstet Gynecol Surv. 1996; 51(9):568-74.
  • [9]Roush KM. Social implications of obstetric fistula: an integrative review. J Midwifery Womens Health. 2009; 54(2):e21-33.
  • [10]Turan JM, Johnson K, Polan ML. Experiences of women seeking medical care for obstetric fistula in Eritrea: implications for prevention, treatment, and social reintegration. Glob Public Health. 2007; 2(1):64-77.
  • [11]Siddle K, Mwambingu S, Malinga T, Fiander A. Psychosocial impact of obstetric fistula in women presenting for surgical care in Tanzania. Int Urogynecol J. 2013; 24(7):1215-20.
  • [12]Ashford, L. Obstetric fistula: cause of stigma and disability in less developed countries. Washington, D.C.: Population Reference Bureau; 2002.
  • [13]Bangser M. Obstetric fistula and stigma. Lancet. 2006; 367(9509):535-6.
  • [14]Arrowsmith, S.D., M.A. Barone, and J. Ruminjo, Outcomes in obstetric fistula care: a literature review. Curr Opin Obstet Gynecol, 2013;25(5):399-403. doi:10.1097/GCO.0b013e3283648d60.
  • [15]Tayler-Smith K, Zachariah R, Manzi M, van den Boogaard W, Vandeborne A, Bishinga A et al.. Obstetric Fistula in Burundi: a comprehensive approach to managing women with this neglected disease -- R1. BMC Pregnancy Childbirth. 2013; 13(1):164. BioMed Central Full Text
  • [16]Arrowsmith, S.D., Ruminjo, J, Landry, E.G.. Current practices in treatment of female genital fistula: a cross sectional study. BMC Pregnancy Childbirth, 2010;10:73. doi:10.1186/1471-2393-10-73.
  • [17]Browning A. Risk factors for developing residual urinary incontinence after obstetric fistula repair. Br J Obstet Gynaecol. 2006; 113:482-5.
  • [18]Wall, L.L., S.D. Arrowsmith, N.D. Briggs, and A. Lassey. Urinary incontinence in the developing world: The Obstetric Fistula, in Incontinence, P. Abrams, et al., Editors. 2002, Health Publication Ltd: Plymouth, U.K.
  • [19]Wall LL. Dead mothers and injured wives: the social context of maternal morbidity and mortality among the Hausa of northern Nigeria. Stud Fam Plann. 1998; 29(4):341-59.
  • [20]Pope R, Bangser M, Requejo JH. Restoring dignity: Social reintegration after obstetric fistula repair in Ukerewe, Tanzania. Glob Public Health. 2011; 6(8):859-73.
  • [21]Landry E, Frajzyngier V, Ruminjo J, Asiimwe F, Barry TH, Bello A et al.. Profiles and experiences of women undergoing genital fistula repair: Findings from five countries. Glob Public Health. 2013; 8(8):926-42.
  • [22]Nielsen HS, Lindberg L, Nygaard U, Aytenfisu H, Johnston OL, Sorensen B et al.. A community-based long-term follow up of women undergoing obstetric fistula repair in rural Ethiopia. BJOG. 2009; 116(9):1258-64.
  • [23]Maulet N, Keita M, Macq J. Medico-social pathways of obstetric fistula patients in Mali and Niger: an 18-month cohort follow-up. Trop Med Int Health. 2013; 18(5):524-33.
  • [24]Mselle LT, Moland KM, Evjen-Olsen B, Mvungi A, Kohi TW. “I am nothing”: experiences of loss among women suffering from severe birth injuries in Tanzania. BMC Womens Health. 2011; 11:49. BioMed Central Full Text
  • [25]Creswell JW, Clark VLP. Designing and conducting mixed methods research. SAGE Publications, Inc., Thousand Oaks; 2011.
  • [26]Klovning A, Avery K, Sandvik H, Hunskaar S. Comparison of two questionnaires for assessing the severity of urinary incontinence: The ICIQ-UI SF versus the incontinence severity index. Neurourol Urodyn. 2009; 28(5):411-5.
  • [27]Lorig K, Steward A, Ritter P, Gonzalez V, Laurent D, Lynch J et al.. Outcome measures for health education and other health care interventions. Sage Publications, Thousand Oaks; 1996.
  • [28]Bolton P, Wilk CM, Ndogoni L. Assessment of depression prevalence in rural Uganda using symptom and function criteria. Soc Psychiatry Psychiatr Epidemiol. 2004; 39(6):442-7.
  • [29]Derogatis LR, Lipman RS, Rickels K, Uhlenhuth EH, Covi L. The Hopkins Symptom Checklist (HSCL): a self-report symptom inventory. Behav Sci. 1974; 19(1):1-15.
  • [30]Martin F, Russell S, Seeley J. The WHOQOL BREF questionnaire in Luganda: Validation with a sample including people living with HIV in Uganda. Working Paper 46. School of International Development, University of East Anglia, Norwich; 2013.
  • [31]Webster J, Nicholas C, Velacott C, Cridland N, Fawcett L. Validation of the WHOQOL-BREF among women following childbirth. Aust N Z J Obstet Gynaecol. 2010; 50(2):132-7.
  • [32]Rosenberg M. Society and the adolescent self-image. Princeton University Press, Princeton; 1965.
  • [33]Holzemer WL, Uys LR, Chirwa ML, Greeff M, Makoae LN, Kohi TW et al.. Validation of the HIV/AIDS Stigma Instrument - PLWA (HASI-P). AIDS Care. 2007; 19(8):1002-12.
  • [34]Schnurr PP, Friedman MJ, Bernardy NC. Research on posttraumatic stress disorder: epidemiology, pathophysiology, and assessment. J Clin Psychol. 2002; 58(8):877-89.
  • [35]Prins A, Ouimette P, Kimerling R, Cameron RP, Hugelshofer DS, Shwaw-Hegwer J et al.. The primary care PTSD screen (PC_PTSD): development and operating characteristics. Primary Care Psychiatry. 2003; 9:9-14.
  • [36]Zimet GD, Powell SS, Farley GK, Werkman S, Berkoff KA. Psychometric characteristics of the Multidimensional Scale of Perceived Social Support. J Pers Assess. 1990; 55(3–4):610-7.
  • [37]Nakigudde J, Musisi S, Ehnvall A, Airaksinen E, Agren H. Adaptation of the multidimensional scale of perceived social support in a Ugandan setting. Afr Health Sci. 2009; 9 Suppl 1:S35-41.
  • [38]Wood-Dauphinee S, Williams JI. Reintegration to Normal Living as a proxy to quality of life. J Chronic Dis. 1987; 40(6):491-502.
  • [39]World Health Organization. Process of translation and adaptation of instruments. n.d.; Available from:. http://www. who.int/substance_abuse/research_tools/translation/en/ webcite
  文献评价指标  
  下载次数:4次 浏览次数:14次