Health related quality of life of Iranian children with type 1 diabetes: reliability and validity of the Persian version of the PedsQL™ Generic Core Scales and Diabetes Module

Health and Quality of Life Outcomes

Keivan Shalileh³  Zohreh Karamizadeh¹  Zahra Bagheri²  Elham Forouzandeh²  Peyman Jafari² 

[1] Department of Pediatrics, Shiraz University of Medical Sciences, Shiraz, Iran;Department of Biostatistics, Shiraz University of Medical Sciences, Shiraz, Iran;Medical School, Tehran University of Medical Sciences, Tehran, Iran

关键词: Iran;    validation studies;    diabetes;    quality of life;   

Others  :  826241
DOI  :  10.1186/1477-7525-9-104

 received in 2011-05-06, accepted in 2011-11-23,  发布年份 2011

【 摘 要 】

Background

The aim of this study was to measure health related quality of life (HRQOL) in Iranian children with type 1 diabetes and to test the psychometric properties of the Persian version of the PedsQL™ 4.0 Generic Core Scales and the PedsQL™ 3.0 Diabetes Module.

Methods

Participants were 94 children and adolescents diagnosed with type 1 diabetes for at least 3 months in Shiraz, southern Iran. Convergent, discriminant, and construct validity of the PedsQL™ 4.0 Generic Core Scales and the PedsQL™ 3.0 Diabetes Module were assessed. Moreover, internal consistency was checked by Cronbach's alpha coefficient.

Results

Cronbach's α for the PedsQL™ 4.0 Generic Core Scales and the PedsQL™ 3.0 Diabetes Module was greater than 0.80 both in the child self-report and parent proxy-report. Both generic and disease-specific versions of the PedsQL showed excellent convergent and acceptable discriminant validity except for 'diabetes symptoms' subscale in the child self-report of the disease-specific module. Moreover, Iranian children with diabetes, as compared with other countries, had lower HRQOL scores.

Conclusions

While this study showed that the Persian version of the PedsQL™ 4.0 Generic Core Scales has good psychometric properties in children with type 1 diabetes, the PedsQL™ 3.0 Diabetes Module needs some modifications to be used as a disease-specific quality of life (QOL) measure. Also, more support should be provided for the care of Iranian children with diabetes.

【 授权许可】

   
2011 Jafari et al; licensee BioMed Central Ltd.

【 参考文献 】

• [1]Kalyva E, Malakonaki E, Eiser C, Mamoulakis D: Health-related quality of life (HRQoL) of children with type 1 diabetes mellitus (T1DM): self and parental perceptions. Pediatr Diabetes 2011, 12(1):34-40.
• [2]Pishdad GR: Low incidence of type 1 diabetes in Iran. Diabetes Care 2005, 28(4):927-928.
• [3]Stevanović D, Lakić A, Damnjanović M: Some psychometric properties of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales (PedsQL(TM)) in the general Serbian population. Qual Life Res 2011, 20(20):945-949.
• [4]Hao Y, Tian Q, Lu Y, Chai Y, Rao S: Psychometric properties of the Chinese version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales. Qual Life Res 2010, 19(8):1229-1233.
• [5]Chen YM, He LP, Mai JC, Hao YT, Xiong LH, Chen WQ, Wu JN: Validity and reliability of Pediatric Quality of Life Inventory Version 4.0 Generic Core Scales in Chinese children and adolescents. Zhonghua Liu Xing Bing Xue Za Zhi 2008, 29(6):560-563.
• [6]Kobayashi K, Kamibeppu K: Measuring quality of life in Japanese children: development of the Japanese version of PedsQL. Pediatr Int 2010, 52(1):80-89.
• [7]Petersen S, Hägglöf B, Stenlund H, Bergström E: Psychometric properties of the Swedish PedsQL, Pediatric Quality of Life Inventory 4.0 Generic Core Scales. Acta Paediatr 2009, 98(9):1504-1512.
• [8]Kook SH, Varni JW: Validation of the Korean version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) Generic Core Scales in school children and adolescents using the rasch model. Health Qual Life Outcomes 2008, 6:41. BioMed Central Full Text
• [9]Gkoltsiou K, Dimitrakaki C, Tzavara C, Papaevangelou V, Varni JW, Tountas Y: Measuring health-related quality of life in Greek children: psychometric properties of the Greek version of the Pediatric Quality of Life Inventory(TM) 4.0 Generic Core Scales. Qual Life Res 2008, 17(2):299-305.
• [10]Emmanouilidou E, Galli-Tsinopoulou A, Karavatos A, Nousia-Arvanitakis S: Quality of life of children and adolescents with diabetes of Northern Greek origin. Hippokratia 2008, 12(3):168-175.
• [11]Varni JW, Burwinkle TM, Jacobs JR, Gottschalk M, Kaufman F, Jones KL: The PedsQL in type 1 and type 2 diabetes: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and Type 1 Diabetes Module. Diabetes care 2003, 26(3):631-637.
• [12]Varni JW, Limbers CA, Burwinkle TM, Bryant WP, Wilson DP: The ePedsQL in type 1 and type 2 diabetes: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Internet administration. Diabetes Care 2008, 31(4):672-677.
• [13]Buresova G, Veleminsky MJ, Veleminsky MS: Health related quality of life of children and adolescents with type 1 diabetes. Neuro Endocrinol Lett 2008, 29(6):1045-1053.
• [14]Nuboer R, Borsboom GJ, Zoethout JA, Koot HM, Bruining J: Effects of insulin pump vs. injection treatment on quality of life and impact of disease in children with type 1 diabetes mellitus in a randomized, prospective comparison. Pediatr Diabetes 2008, 28:291-296.
• [15]Amiri P, M Ardekani E, Jalali-Farahani S, Hosseinpanah F, Varni JW, Ghofranipour F, Montazeri A, Azizi F: Reliability and validity of the Iranian version of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales in adolescents. Qual Life Res 2010, 19(10):1501-1508.
• [16]Jafari P, Ghanizadeh A, Akhondzadeh S, Mohammadi MR: Health-related quality of life of Iranian children with attention deficit/hyperactivity disorder. Qual Life Res 2011, 20(1):31-36.
• [17]Fayers PM, Machin D: Quality of life: The assessment, analysis and interpretation of patient-reported outcomes. 2nd edition. Chichester: John Wiley; 2007.