Parent–child agreement on health-related quality of life (HRQOL): a longitudinal study

Health and Quality of Life Outcomes

Jordi Alonso¹  Sílvia López-Aguilಠ Amanda Rodríguez López³  Luis Rajmil¹ 

[1] CIBER en Epidemiología y Salud Pública, CIBERESP, Barcelona, Spain;Agència d'informació, Avaluació i Qualitat en Salut (Agència de Qualitat i Avaluació Sanitàries de Catalunya), Barcelona, Spain;IMIM, Institut Hospital del Mar d’Investigacions Mèdiques, Barcelona, Spain

关键词: Proxy;    Parent–child agreement;    Longitudinal studies;    Health-related quality of life;    Adolescents;   

Others  :  823543
DOI  :  10.1186/1477-7525-11-101

 received in 2013-02-06, accepted in 2013-06-17,  发布年份 2013

【 摘 要 】

Background

Few studies have evaluated changes on parent–child agreement in HRQOL over time. The objectives of the study were to assess parent–child agreement on child’s HRQOL in a 3-year longitudinal study, and to identify factors associated with possible disagreement.

Methods

A sample of Spanish children/adolescents aged 8–18 years and their parents both completed the KIDSCREEN-27 questionnaire. Data on age, gender, family socioeconomic status (SES), and mental health (Strengths and Difficulties Questionnaire, SDQ) was also collected at baseline (2003), and again after 3 years (2006). Changes in family composition were collected at follow-up. Agreement was assessed through intraclass correlation coefficient (ICC), and Bland and Altman plots. Generalizing Estimating Equation (GEE) models were built to analyze factors associated with parent–child disagreement.

Results

A total of 418 parent–child pairs were analyzed. At baseline the level of agreement on HRQOL was low to moderate and it was related to the level of HRQOL reported. Physical well-being at baseline showed the highest level of parent–child agreement (ICC=0.59; 0.53-0.65) while less “observable” dimensions presented lower levels of agreement, (i.e. Psychological well-being: ICC= 0.46; 0.38-0.53). Agreement parent–child was lower at follow-up. Some interactions were found between rater and child’s age; with increasing age, child scored lower than parents on Parents relationships and Autonomy (Beta [B] -0.47; -0.71 / -0.23) and the KIDSCREEN-10 (−0.49; -0.73 /-0.25).

Conclusions

Parent–child agreement on child’s HRQOL is moderate to low and tends to diminish with children age. Measuring HRQOL of children/adolescents mainly in healthy population samples might require direct self-assessments.

【 授权许可】

   
2013 Rajmil et al.; licensee BioMed Central Ltd.

【 图 表 】

Figure 1.

Figure 2.

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