Long term follow-up of health-related quality of life in young adults born very preterm or with a very low birth weight

Health and Quality of Life Outcomes

Pauline Verloove-Vanhorick⁴  Marieke Verheijden⁵  David Feeny⁶  Constance Drossaert²  Erik Taal²  Ton Vogels⁵  Leonoor Brouwer¹  Gijsbert Verrips³ 

[1] Intensive Care Department, Erasmus University Medical Center Rotterdam, Rotterdam, the Netherlands;Institute for Behavioral Research, Faculty of Behavioral Sciences, University of Twente, Enschede, the Netherlands;Academic Centre Dentistry Amsterdam, University of Amsterdam, Amsterdam, the Netherlands;Leiden University Medical Center, Department of Pediatrics, Leiden, the Netherlands;TNO, Leiden, the Netherlands;Health Utilities Incorporated, Dundas, ON, Canada

关键词: Follow up;    Very low birth weight;    Health-related quality of life;   

Others  :  825648
DOI  :  10.1186/1477-7525-10-49

 received in 2011-08-27, accepted in 2012-04-26,  发布年份 2012

【 摘 要 】

Background

The purpose was, first, to evaluate changes in health-related quality of life (HRQL) in a cohort of very low birth weight (VLBW; <1500 g.) or very preterm (< 32 weeks of gestation) children between ages 14 and 19, and second, to identify correlates of HRQL at age 19.

Methods

HRQL was assessed using the Health Utilities Index Mark 3 (HUI3). In order to explore correlates of HRQL, we performed a hierarchical regression analysis.

Results

Surviving VLBW children (n = 959) from a 1983 Dutch nation-wide cohort were eligible; 630 participated both at age 14 and 19; 54 at age 19 only. The mean HRQL score decreased from 0.87 to 0.86. The HRQL of 45% was stable, 25% were better and 30% were worse. A regression model showed internalizing problems were related most strongly to HRQL.

Conclusions

In the transition from adolescence to young adulthood, HRQL in Dutch VLBW children was stable at the group level but varied at the individual level. HRQL was negatively associated with internalizing problems and also with physical handicaps. Long-term follow-up studies on the impact of VLBW on HRQL are all the more called for, given the growing number of vulnerable infants surviving the neonatal period.

【 授权许可】

   
2012 Verrips et al.; licensee BioMed Central Ltd.

【 图 表 】

Figure 1 .

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