期刊论文详细信息
Health and Quality of Life Outcomes
Measuring health-related quality of life in patients with chronic obstructive pulmonary disease in a routine hospital setting: Feasibility and perceived value
Margareta Kristenson1  Ann Sofie Sommer2  Matti Leijon1  Preben Bendtsen1 
[1] Department of Health and Society, Linköping University, Sweden;Department of Pulmonary Medicine, University Hospital, Linköping, Sweden
关键词: and physicians' perceived value;    routine care;    Health-related quality of life;   
Others  :  1217164
DOI  :  10.1186/1477-7525-1-5
 received in 2003-03-10, accepted in 2003-04-11,  发布年份 2003
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【 摘 要 】

Background

Assessment of health-related quality of life is so far mainly used in specific research settings and not widely accepted in the routine care of patients. Lack of trust in accuracy and reliability and lack of knowledge concerning the questionnaires used, methods, terminology, are just some of the perceived barriers for a more widespread dissemination of these instruments into routine health care. The present study was undertaken in order to test the feasibility of a computerised system for collecting and analysing health-related quality of life in a routine clinical setting and to examine the thoughts and attitudes among physicians concerning the value of these measurements.

Methods

Seventy-four patients with chronic pulmonary lung disease were asked to assess their health-related quality of life with a computerised version of the SF-36 questionnaire before a regular the visit to a physician. The results were immediately available for the physician during the consultation for comparison of information given by the patients and the physician's evaluation of the patients overall health status. A focus group interview with the physicians was performed before and after the implementation of routine measurements of health-related quality of life.

Results

The systematic assessment concept worked satisfactorily. All patients approached agreed to participate and completed the assessment on the touch screen computer. A weak correlation was found between patients' self-rated health and pulmonary function and between physicians' evaluation and pulmonary function. The physicians appreciated the SF-36 assessments and the value of the patients' perspective although only a few could pinpoint new clinical decisions based upon this new information.

Conclusion

Physicians' clinical evaluation and patients' self-rating of health status offer unique and important information that are complementary.

【 授权许可】

   
2003 Bendtsen et al; licensee BioMed Central Ltd. This is an Open Access article: verbatim copying and redistribution of this article are permitted in all media for any purpose, provided this notice is preserved along with the article's original URL.

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【 参考文献 】
  • [1]Socialstyrelsen: Sjukvården i Sverige 1998. In Book Sjukvården i Sverige. City: Socialstyrelsen; 1998.
  • [2]Tsukino M, Nishimura K, Ikeda A, Koyama H, Mishima M, Izumi T: Physiologic factors that determine the health-related quality of life in patients with COPD. Chest 1996, 110:896-903.
  • [3]Cullen DL: Measures of functional status and quality of life in chronic obstructive pulmonary disease. Monaldi Archives of Chest Diseases 1999, 54:183-5.
  • [4]Selim AJ, Ren XS, Fincke G, Rogers W, Lee A, Kazis L: A symptom-based measure of the severity of chronic lung disease. Chest 1997, 111:1607-14.
  • [5]Guyati GH, Townsend M, Berman LB, Pugsley SO: Quality of life in patients with chronic airflow limitations. British Journal of Diseases of the Chest 1987, 81:45-54.
  • [6]Curtis JR, Deyo A, Hudson LD: Health-related quality of life among patients with chronic obstructive pulmonary disease. Thorax 1994, 49:162-70.
  • [7]Herbert R, Gregor F: Quality of life and coping strategies of clients with COPD. Rehabilitation Nursing 1997, 22:182-7.
  • [8]Hajiro T, Nishimura K, Jones PW, Tsukino M, Ikeda A, Kpyama H, Izumi T: A novel, short, and simple Questionaire to measure health-related quality of life in patients with chronic obstructive pulmonary disease. American Journal of Respiratory Critical Care Med 1999, 159:1874-78.
  • [9]WHO: Health 21 – health for all in the 21 st century. Copenhagen: World Health Organisation 1999.
  • [10]Hyland ME, Crocker GR: Validation of an asthma quality of life diary in a clinical trial. Thorax 1995, 50:724-30.
  • [11]Mahajan P, Okamoto LJ, Schaberg A, Kellerman D, Schoenwetter WF: Impact of fluticasone propionate powder on health-related quality of life in patients with stable asthma. Journal of Asthma 1997, 34:227-34.
  • [12]Mahler DA, Faryniarz K, Tomlison D, Cilice G, Robins AG, Olmstead E, O'Connor GT: Impact of dyspnoea and physiologic functions on general health status in patients with chronic pulmonary disease. Chest 1992, 102:395-401.
  • [13]MaFadden ER, Casale TB, Kemp JP, Metzger WJ, Nelson HS: Administration of bedesonide once daily by means of turbuhaler to subjects with stable asthma. Journal of Allergy and Clinical Immunology 1999, 104:46-52.
  • [14]Noonan M, Chervinsky P, Busse WW, Weisberg SC, Pinnas J, de Boisblanc BP: Flutiacasone prioprionate reduces oral prednisone use while it improves asthma control and quality of life. American Journal of Respiratory Critical Care Medicine 1995, 152:1467-73.
  • [15]Ware JE, Kemp JP, Buchner DA, Singer AE, Nolop KB, Goss TF: The responsiveness of disease-specific and generic health measures to change in the severity of asthma among adults. Quality of Life Research 1998, 7:235-44.
  • [16]Deyo RA, Patrick DL: Barriers to the use of health status measures in clinical investigations, patient care and policy research. Medical Care 1989, 27:254-68.
  • [17]Russo J, Roy-Byrne P, Jaffe C, Ries R, Dagakadis C, Dwyer-O'Connor E, Reeder D: The relationship between patient-administered outcome assessments to quality of life and physician ratings: Validity of the BASIS-32. The Journal of Mental Health Administration 1997, 24:200-14.
  • [18]McCarthy DM: Quality of Life: A critical assessment. Scandinavian Journal of Gastroenterology 1995, 30:141-6.
  • [19]Vang J: Health outcomes and evaluations: context, concepts and successful applications. Leeds: European Clearing Houses on Health Outcomes 1997.
  • [20]Ruta D, Coutts A, Abdalla M, Masson J, Russell E, brunt P, McKinlay A, Mowat A, Sinclair T: Feasibility of monitoring patient based health outcomes in a routine hospital setting. Quality in Health Care 1995, 4:161-5.
  • [21]Bendtsen P, Timpka T: Acceptability of computerized self-report of alcohol habits: a patient perspective. Alcohol Alcohol 1999, 34:575-80.
  • [22]Buxton J, White M, Osoba D: Patients' experiences using a computerized program with a touch-sensitive video monitor for the assessment of health-related quality of life. Quality of Life Research 1998, 7:513-9.
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