Health and Quality of Life Outcomes | |
In spite of good intentions: patients' perspectives on problematic social support interactions | |
Carla Boutin-Foster1  | |
[1] Division of General Internal Medicine, Weill Medical College of Cornell University, 525 E. 68 th Street, Box 46- Baker Tower 14, New York, New York 10021, USA | |
关键词: Coronary artery disease; Social networks; Social support; Qualitative study; | |
Others : 1219281 DOI : 10.1186/1477-7525-3-52 |
|
received in 2005-04-12, accepted in 2005-09-05, 发布年份 2005 | |
【 摘 要 】
Background
In the setting of an acute coronary syndrome, the natural inclination of friends and family members is to provide social support. However, their efforts may be perceived as being problematic or unhelpful. The objective of this study was to identify the characteristics of problematic social support interactions from the perspectives of patients.
Methods
This was a qualitative study among a purposive sample of 59 patients who had been hospitalized for an acute coronary syndrome. Patients were asked: "Can you describe the types of things that your family members, close friends, and health care providers did during this period to try to be helpful or supportive but you felt was unhelpful or felt that it caused you more stress." Responses were analyzed using qualitative techniques and reviewed by two independent corroborators.
Results
The types of behaviors performed by social network members that were perceived as being unhelpful were grouped under 5 themes: (1) excessive telephone contact, (2) high expression of emotions, (3) unsolicited advice, (4) information without means for implementation, and (5) taking over.
Conclusion
Patients in this study described actions of their social network members that were intended to be supportive but instead were perceived as problematic because they were in excess of what was needed, they were incongruous with what was desired, or they contributed to negative feelings. Helping social networks to understand the potential problematic aspects of social support can aid in tailoring effective social support interventions.
【 授权许可】
2005 Boutin-Foster; licensee BioMed Central Ltd.
【 预 览 】
Files | Size | Format | View |
---|---|---|---|
20150715165756300.pdf | 251KB | download |
【 参考文献 】
- [1]National Center for Health Statistics. Detailed Diagnosis and Procedures: National Hospital Discharge Survey 1996 Hyattsville, MD, ; 1996.
- [2]Mukherjee D, Eagle KA: Revised guidelines for the management of non-ST-segment elevation acute coronary syndromes. Curr Cardiol Rep 2003, 5:289-295.
- [3]Mayou RA, Gill D, Thompson DR, Day A, Hicks N, Volmink J, Neil A: Depression and anxiety as predictors of outcome after myocardial infarction. Psychosom Med 2000, 62:212-219.
- [4]Mittag O, Kolenda KD, Nordman KJ, Bernien J, Maurischat C: Return to work after myocardial infarction/coronary artery bypass grafting: patients' and physicians' initial viewpoints and outcome 12 months later. Soc Sci Med 2001, 52:1441-1450.
- [5]Papadopoulos C, Larrimore P, Cardin S, Shelley SI: Sexual concerns and needs of the postcoronary patient's wife. Arch Intern Med 1980, 140:38-41.
- [6]O'Reilly P, Thomas HE: Role of support networks in maintenance of improved cardiovascular health status. Soc Sci Med 1989, 28:249-260.
- [7]Cohen SSSL: Measures and concepts of social support. In Social Support and Health. New York, Academic Press; 1985.
- [8]Revenson TA, Schiaffino KM, Majerovitz SD, Gibofsky A: Social support as a double-edged sword: the relation of positive and problematic support to depression among rheumatoid arthritis patients. Soc Sci Med 1991, 33:807-813.
- [9]Riemsma RP, Rasker JJ, Taal E, Griep EN, Wouters JM, Wiegman O: Fatigue in rheumatoid arthritis: the role of self-efficacy and problematic social support. Br J Rheumatol 1998, 37:1042-1046.
- [10]Ingram KM, Jones DA, Fass RJ, Neidig JL, Song YS: Social support and unsupportive social interactions: their association with depression among people living with HIV. AIDS Care 1999, 11:313-329.
- [11]Figueiredo MI, Fries E, Ingram KM: The role of disclosure patterns and unsupportive social interactions in the well-being of breast cancer patients. Psychooncology 2004, 13:96-105.
- [12]O'Brien K, Wortman CB, Kessler RC, Joseph JG: Social relationships of men at risk for AIDS. Soc Sci Med 1993, 36:1161-1167.
- [13]Pagel MD, Erdly WW, Becker J: Social networks: we get by with (and in spite of) a little help from our friends. J Pers Soc Psychol 1987, 53:793-804.
- [14]Coyne IT: Sampling in qualitative research. Purposeful and theoretical sampling; merging or clear boundaries? J Adv Nurs 1997, 26:623-630.
- [15]Dakof GA, Taylor SE: Victims' perceptions of social support: what is helpful from whom? J Pers Soc Psychol 1990, 58:80-89.
- [16]Strauss A CJ: Basics of Qualtitative Research: Techiques and Procedures for Developing Grounded Theory. second edition. Thousand Oaks, California, Sage Publishers; 1998:55-217.
- [17]Mavundla TR: Professional nurses' perception of nursing mentally ill people in a general hospital setting. J Adv Nurs 2000, 32:1569-1578.
- [18]Fleury J: An exploration of the role of social networks in cardiovascular risk reduction. Heart Lung 1993, 22:134-144.
- [19]Hoepfl MC: Choosing Qualitative Research: A Primer for Technology Education Researchers. Journal of Technology Education 1997., 9
- [20]Cutcliffe JR, McKenna HP: Establishing the credibility of qualitative research findings: the plot thickens. J Adv Nurs 1999, 30:374-380.
- [21]Boutin-Foster C: Getting to the heart of social support: a qualitative analysis of the types of instrumental support that are most helpful in motivating cardiac risk factor modification. Heart Lung 2005, 34:22-29.
- [22]Bloor CM: Depression: a symptom of coronary artery disease or a pathogenetic factor? Psychosom Med 2000, 62:606-607.
- [23]Froelicher ES, Kee LL, Newton KM, Lindskog B, Livingston M: Return to work, sexual activity, and other activities after acute myocardial infarction. Heart Lung 1994, 23:423-435.
- [24]Garcia L, Valdes M, Jodar I, Riesco N, de Flores T: Psychological factors and vulnerability to psychiatric morbidity after myocardial infarction. Psychother Psychosom 1994, 61:187-194.
- [25]Cohen S: Social relationships and health. Am Psychol 2004, 59:676-684.
- [26]Cohen S, Wills TA: Stress, social support, and the buffering hypothesis. Psychol Bull 1985, 98:310-357.
- [27]Kelgeson V, Novak SA, Lepore SJ, Eton DT, Wright B, Plohman J, Fisher ES: Spouse socialcontrol efforts: Relations to health behavior and well-being among men with prostate cancer. Journal of social and Personal Relationships 2004, 21:53-68.
- [28]Woloshin S, Schwartz LM, Tosteson AN, Chang CH, Wright B, Plohman J, Fisher ES: Perceived adequacy of tangible social support and health outcomes in patients with coronary artery disease. J Gen Intern Med 1997, 12:613-618.
- [29]Williams B: Checklists for improving rigour in qualitative research. Including personal reflections might help. Bmj 2001, 323:515.
- [30]Bisconti TL, Bergeman CS: Perceived social control as a mediator of the relationships among social support, psychological well-being, and perceived health. Gerontologist 1999, 39:94-103.
- [31]Folkman S, Lazarus RS: An analysis of coping in a middle-aged community sample. J Health Soc Behav 1980, 21:219-239.
- [32]Folkman S: Personal control and stress and coping processes: a theoretical analysis. J Pers Soc Psychol 1984, 46:839-852.