Health and Quality of Life Outcomes | |
Psychometric evaluation of a Swedish version of Minneapolis-Manchester quality of life-youth form and adolescent form | |
Petra Svedberg1  Jens M Nygren1  David Brunt2  Ibadete Kadrija1  Eva-Lena Einberg1  | |
[1] School of Social and Health Sciences, Halmstad University, Halmstad SE - 301 18, Sweden;School of Health and Caring Sciences, Linnaeus University, Växjö, Sweden | |
关键词: Validity; Reliability; Questionnaire; Cancer; Children; | |
Others : 823697 DOI : 10.1186/1477-7525-11-79 |
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received in 2012-12-27, accepted in 2013-04-30, 发布年份 2013 | |
【 摘 要 】
Background
It has become important to measure long-term effects and quality of life in survivors of childhood cancer. The Minneapolis- Manchester Quality of Life (MMQL) instrument has been proven to better capture the quality of life (QoL) perspective of health than other instruments. The instrument has age appropriate versions and is therefore favourable for longitudinal studies of QoL of children surviving from cancer. The aim of this study was to evaluate the psychometric properties of the Swedish version of MMQL-Youth Form and the Adolescent Form focusing on: 1) face and content validity 2) the internal consistency and 3) the test-retest reliability.
Methods
The sample consisted of 950 pupils (11–16 years old) from 7 schools in the western Sweden who completed the questionnaire. For the test-retest evaluation 230 respondents completed the questionnaire two weeks later.
Results
Face and content validity was supported and internal consistency was found to be acceptable for the total scale for both the MMQL-Youth Form (8–12 years of age) and the Adolescent Form (13–20 years of age). Test-retest reliability for the MMQL-Youth Form was moderate for 50% of the items and good for the remaining. For the MMQL-Adolescent Form the test-retest showed moderate or good agreement for 80% of the items and fair for 20%.
Conclusions
The result indicated that the Swedish version of the MMQLYouth Form and Adolescent Form was valid and reliable in a sample of healthy children in a Swedish context. It is recommended to test the instrument among diverse samples of children such as survivors of childhood cancer in order to validate its usefulness in research and clinical settings.
【 授权许可】
2013 Einberg et al.; licensee BioMed Central Ltd.
【 预 览 】
Files | Size | Format | View |
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20140713012728401.pdf | 193KB | download |
【 参考文献 】
- [1]Gustavsson G, Heyman M, Vernby Å: Childhood Cancer Incidence and Survival in Sweden 1984–2005. Report 2007 From the Swedish Childhood Cancer Registry. Stockholm: Karolinska Institutet; 2007:2007.
- [2]Eiser C: Beyond survival: quality of life and follow-up after childhood cancer. J Pediatr Psychol 2007, 32:1140-1150.
- [3]Taylor RM, Gibson F, Franck LS: A concept analysis of health-related quality of life in young people with chronic illness. J Clin Nurs 2008, 17:1823-1833.
- [4]Health promotion glossary WHO/HPR/HEP/98.1. http://www.who.int/healthpromotion/about/HPR%20Glossary%201998.pdf webcite
- [5]Farquhar M: Definitions of quality of life: a taxonomy. J Adv Nurs 1995, 22:502-508.
- [6]Savage E, Riordan A, Hughes M: Quality of life in children with acute lymphoblastic leukaemia: a systematic review. Eur J Oncol Nurs 2009, 13:36-48.
- [7]Eiser C, Jenney M: Measuring quality of life. Arch Dis Child 2007, 92:348-350.
- [8]Speyer E, Herbinet A, Vuillemin A, Chastagner P, Briancon S: Agreement between children with cancer and their parents in reporting the child’s health-related quality of life during a stay at the hospital and at home. Child Care Health Dev 2009, 35:489-495.
- [9]Fayed N, Schiariti V, Bostan C, Cieza A, Klassen A: Health status and QOL instruments used in childhood cancer research: deciphering conceptual content using world health organization definitions. Quality of Life Research: an international journal of quality of life aspects of treatment, care and rehabilitation 2011, 20:1247-1258.
- [10]Solans M, Pane S, Estrada MD, Serra-Sutton V, Berra S, Herdman M, Alonso J, Rajmil L: Health-related quality of life measurement in children and adolescents: a systematic review of generic and disease-specific instruments. Value in Health: the journal of the International Society for Pharmacoeconomics and Outcomes Research 2008, 11:742-764.
- [11]Ravens-Sieberer U, Gosch A, Rajmil L, Erhart M, Bruil J, Power M, Duer W, Auquier P, Cloetta B, Czemy L: The KIDSCREEN-52 quality of life measure for children and adolescents: psychometric results from a cross-cultural survey in 13 European countries. Value in Health: the journal of the International Society for Pharmacoeconomics and Outcomes Research 2008, 11:645-658.
- [12]Bhatia S, Jenney MEM, Bogue MK, Rockwood TH, Feusner JH, Friedman DL, Robison LL, Kane RL: The Minneapolis-Manchester quality of life instrument: reliability and validity of the adolescent form. J Clin Oncol 2002, 20:4692-4698.
- [13]Bhatia S, Jenney MEM, Wu E, Bogue BMK, Rockwood TH, Feusner JH, Friedman DL, Robison LL, Kane RL: The Minneapolis-Manchester quality of life instrument: reliability and validity of the youth form. J Pediatr 2004, 145:39-46.
- [14]Shankar S, Robison L, Jenney MEM, Rockwood TH, Wu E, Feusner J, Friedman D, Kane RL, Bhatia S: Health-related quality of life in young survivors of childhood cancer using the minneapolis-manchester quality of life-youth form. Pediatrics 2005, 115:435-442.
- [15]Wu E, Robison LL, Jenney ME, Rockwood TH, Feusner J, Friedman D, Kane RL, Bhatia S: Assessment of health-related quality of life of adolescent cancer patients using the minneapolis-manchester quality of life adolescent questionnaire. Pediatr Blood Cancer 2007, 48:678-686.
- [16]Hutchings HA, Upton P, Cheung WY, Maddocks A, Eiser C, Williams JG, Russell IT, Jackson S, Jenney ME: Adaptation of the Manchester-Minneapolis quality of life instrument for use in the UK population. Arch Dis Child 2007, 92:855-860.
- [17]Reimers TS, Mortensen EL, Nysom K, Schmiegelow K: Health-related quality of life in long-term survivors of childhood brain tumors. Pediatr Blood Cancer 2009, 53:1086-1091.
- [18]Streiner DL, Norman GR: Health measurement scales: a practical guide to their development and use. 4th edition. Oxford: Oxford University Press; 2008.
- [19]Cha ES, Kim KH, Erlen JA: Translation of scales in cross-cultural research: issues and techniques. J Adv Nurs 2007, 58:386-395.
- [20]Brislin RW: Back-translation for cross-cultural research. J Cross-Cultural Psychology 1970, 1:185-216.
- [21]Polit DF, Beck CT: Essentials of nursing research: appraising evidence for nursing practice. 7, [updated] edn. Philadelphia PA: Wolters Kluwer Health/Lippincott Williams & Wilkins; 2010.
- [22]Burns N, Grove SK: The practice of nursing research: conduct, critique & utilization. 4th edition. Philadelphia: Saunders; 2001.
- [23]Raat H, Landgraf JM, Bonsel GJ, Gemke RJ, Essink-Bot ML: Reliability and validity of the child health questionnaire-child form (CHQ-CF87) in a Dutch adolescent population. Quality of Life Research: an international journal of quality of life aspects of treatment, care and rehabilitation 2002, 11:575-581.
- [24]Varni JW, Burwinkle TM, Seid M: The PedsQL 4.0 as a school population health measure: feasibility, reliability, and validity. Quality of Life Research: an international journal of quality of life aspects of treatment, care and rehabilitation 2006, 15:203-215.
- [25]Riley AW: Evidence that school-age children can self-report on their health. Ambul Pediatr 2004, 4:371-376.
- [26]Raat H, Mangunkusumo RT, Landgraf JM, Kloek G, Brug J: Feasibility, reliability, and validity of adolescent health status measurement by the Child Health Questionnaire Child Form (CHQ-CF): internet administration compared with the standard paper version. Quality of Life Research: an international journal of quality of life aspects of treatment, care and rehabilitation 2007, 16:675-685.
- [27]Wrangsjö B, Winberg Salomonsson M: Tonårstid: utveckling, problem och psykoterapeutisk behandling. 1. utg. edn. Stockholm: Natur och Kultur; 2006.