期刊论文详细信息
Chinese Medicine
Research with adolescents who engage in non-suicidal self-injury: ethical considerations and challenges
Heather T Schatten1  Karen Rodham3  Janis L Whitlock4  Stephen P Lewis2  Elizabeth E Lloyd-Richardson5 
[1] Butler Hospital, Alpert Medical School, Brown University, Providence, RI, USA;University of Guelph, Guelph, Canada;Staffordshire University, Stoke-on-Trent, UK;Bronfenbrenner Center for Translational Research, Cornell University, Ithaca, NY, USA;Department of Psychiatry and Human Behavior, Alpert Medical School, Brown University, Providence, RI, USA
关键词: Research;    Risk assessment;    Imminent risk;    Adolescence;    Self-harm;    Non-suicidal self-injury;    Ethics;   
Others  :  1231853
DOI  :  10.1186/s13034-015-0071-6
 received in 2015-04-11, accepted in 2015-07-14,  发布年份 2015
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【 摘 要 】

Non-suicidal self-injury (NSSI) has emerged as a significant psychiatric issue among youth. In addition to its high prevalence rates, NSSI is associated with a number of psychiatric issues and confers risk for varying degrees of physical injury. It is also a risk factor for attempted suicide. Thus, youth who engage in NSSI represent a vulnerable and high-risk population and researchers are likely to encounter a variety of ethical challenges when conducting NSSI research. Accordingly, it is critical that researchers be familiar with the major ethical issues involved in NSSI research and how to effectively account for and address them. This is important both prior to obtaining clearance from their Institutional Review Boards and when carrying out their research. To date, there is no consolidated resource to delineate the ethical challenges inherent to NSSI research and how these can be effectively navigated throughout the research process. The goals of this paper are to review international best practices in NSSI research across the various contexts within which it is studied, to offer guidelines for managing these issues, to identify areas in which variation in approaches prohibits decisive recommendations, and to generate questions in need of further consideration among scholars in this field.

【 授权许可】

   
2015 Lloyd-Richardson et al.

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【 参考文献 】
  • [1]Diagnostic and statistical manual of mental disorders. 5th ed. Author, Washington DC; 2013.
  • [2]Schatten HT, Morris BW, Wren AL, Andover MS. Psychiatric disorders and non-suicidal self-injury among youth: implications for mental health professionals in the school system. Sch Psychol Forum. 2013; 7:136-147.
  • [3]Lewis SP, Heath NL. Nonsuicidal Self-injury among youth. J Pediatr. 2015; 166(3):526-530.
  • [4]Sales BD, Folkman S. Ethics in research with human participants. APA, Washington, DC; 2000.
  • [5]Shamoo AE, Irving DN. Accountability in research using persons with mental illness. Account Res. 1993; 3(1):1-17.
  • [6]Levine RJ. Ethics and regulations of clinical research. Yale University Press, New Haven; 1988.
  • [7]Tigges BB. Parental consent and adolescent risk behavior research. J Nurs Scholarsh. 2003; 35(3):283-289.
  • [8]Jonsen AR. Do no harm. Ann Intern Med. 1978; 88(6):827.
  • [9]Santelli JS, Smith Rogers A, Rosenfeld WD, DuRant RH, Dubler N, Morreale M et al.. Guidelines for adolescent health research: a position paper for the Society for Adolescent Medicine. J Adolesc Health. 2003; 33(5):396-409.
  • [10]Prinstein MJ, Helms SW (2013) Ethical challenges (and evidence-based solutions) when youth report self-injurious and health risk behavior in research studies. Half-day workshop presented at the National Conference in Pediatric Psychology, New Orleans, New Orleans
  • [11]Miller AL, Rathus JH, Linehan M (2007) Dialectical behavior therapy for suicidal adolescents. Guilford Press, New York
  • [12]Simon TR, Swann AC, Powell KE, Potter LB, Kresnow M, O’Carroll PW. Characteristics of impulsive suicide attempts and attempters. Suicide Life Threat Behav. 2002; 32:49-59.
  • [13]Brausch AM, Gutierrez PM. Differences in non-suicidal self-injury and suicide attempts in adolescents. J Youth Adolesc. 2010; 39(3):233-242.
  • [14]Muehlenkamp JJ, Gutierrez PM. Risk for suicide attempts among adolescents who engage in non-suicidal self-injury. Arch Suicide Res. 2007; 11(1):69-82.
  • [15]Plener PL, Libal G, Keller F, Fegert JM, Muehlenkamp JJ. An international comparison of adolescent non-suicidal self-injury (NSSI) and suicide attempts: Germany and the USA. Psychol Med. 2009; 39(9):1549-1558.
  • [16]Whitlock J, Muehlenkamp J, Eckenrode J, Purington A, Abrams GB, Barreira P et al.. Nonsuicidal self-injury as a gateway to suicide in young adults. J Adolesc Health. 2012; 52(4):486-492.
  • [17]Stanley B, Gameroff MJ, Michalsen V, Mann JJ. Are suicide attempters who self-mutilate a unique population? Am J Psychiatry. 2001; 158(3):427-432.
  • [18]Muehlenkamp JJ. Self-injurious behavior as a separate clinical syndrome. Am J Orthopsychiatr. 2005; 75(2):324-333.
  • [19]Suyemoto KL. The functions of self-mutilation. Clin Psychol Rev. 1998; 18(5):531-554.
  • [20]Walsh BW, Rosen PM. Self-mutilation: theory, research, and treatment. Guilford Press, New York; 1988.
  • [21]Klonsky ED, Lewis SP. Assessment of non-suicidal self-injury. Oxford handbook of suicide and self-injury. Nock MK, editor. Oxford University Press, New York; 2014.
  • [22]Rudd MD, Berman AL, Joiner TE, Nock MK, Silverman MM, Mandrusiak M et al.. Warning signs for suicide: theory, research, and clinical applications. Suicide Life Threat Behav. 2006; 36(3):255-262.
  • [23]Joiner TEJ, Walker RL, Rudd MD, Jobes DA. Scientizing and routinizing the assessment of suicidality in outpatient practice. Prof Psychol Res Prac. 1999; 30(5):447-453.
  • [24]Whitlock J, Muehlenkamp J, Eckenrode J. Variation in nonsuicidal self-injury: identification and features of latent classes in a college population of emerging adults. J Clin Child Adolesc Psychol. 2008; 37(4):725-735.
  • [25]Maris RW, Canetto SS, McIntosh JL, Silverman MM. Review of suicidology, 2000. Guilford Press, New York; 2000.
  • [26]Rudd MD, Joiner TE, Rumzek H. Childhood diagnoses and later risk for multiple suicide attempts. Suicide Life Threat Behav. 2004; 34(2):113-125.
  • [27]Wingate LR, Joiner TEJ, Walker RL, Rudd MD, Jobes DA. Empirically informed approaches to topics in suicide risk assessment. Behav Sci Law. 2004; 22(5):651-665.
  • [28]Reynolds SK, Lindenboim N, Comtois KA, Murray A, Linehan MM. Risky assessments: participant suicidality and distress associated with research assessments in a treatment study of suicidal behavior. Suicide Life Threat Behav. 2006; 36(1):19-34.
  • [29]Line­han MM (2009) University of Washington risk assessment action protocol: UWRAMP, University of WA, Unpublished Work
  • [30]Posner K, Brown GK, Stanley B, Brent DA, Yershova KV, Oquendo MA et al.. The Columbia-Suicide Severity Rating Scale: initial validity and internal consistency findings from three multisite studies with adolescents and adults. Am J Psychiatry. 2011; 168(12):1266-1277.
  • [31]Muehlenkamp JJ, Swenson LP, Batejan KL, Jarvi SM. Emotional and behavioral effects of participating in an online study of nonsuicidal self-injury: an experimental analysis. Clin Psychol Sci. 2015; 3(1):26-37.
  • [32]Gould MS, Marrocco FA, Kleinman M, Thomas JG, Mostkoff K, Cote J et al.. Evaluating iatrogenic risk of youth suicide screening programs: a randomized controlled trial. JAMA. 2005; 293(13):1635-1643.
  • [33]Cukrowicz K, Smith P, Poindexter E. The effect of participating in suicide research: does participating in a research protocol on suicide and psychiatric symptoms increase suicide ideation and attempts? Suicide Life Threat Behav. 2010; 40(6):535-543.
  • [34]Whitlock J, Pietrusza C. Young adult respondent experiences of disclosing self-injury, suicide-related behavior, and psychological distress in a web-based survey. Arch Suicide Res Off J Int Acad Suicide Res. 2013; 17(1):20-32.
  • [35]Franklin JC, Puzia ME, Lee KM, Prinstein MJ. Low implicit and explicit aversion toward self-cutting stimuli longitudinally predict nonsuicidal self-injury. J Abnorm Psychol. 2014; 123(2):463-469.
  • [36]Plener PL, Bubalo N, Fladung AK, Ludolph AG, Lule D. Prone to excitement: adolescent females with non-suicidal self-injury (NSSI) show altered cortical pattern to emotional and NSS-related material. Psychiatry Res. 2012; 203(2–3):146-152.
  • [37]Baker TG, Lewis SP. Responses to online photographs of non-suicidal self-injury: a thematic analysis. Arch Suicide Res. 2013; 17(3):223-235.
  • [38]Lewis SP, Heath NL, Sornberger MJ, Arbuthnott AE. Helpful or harmful? An examination of viewers’ responses to nonsuicidal self-injury videos on YouTube. J Adolesc Health. 2012; 51(4):380-385.
  • [39]Lewis SP, Baker TG. The possible risks of self-injury web sites: a content analysis. Arch Suicide Res. 2011; 15(4):390-396.
  • [40]Rodham K, Gavin J, Lewis SP, St Dennis JM, Bandalli P. An investigation of the motivations driving the online representation of self-injury: a thematic analysis. Arch Suicide Res. 2013; 17(2):173-183.
  • [41]Arbuthnott AE, Lewis SP, Bailey HN. Rumination and emotions in nonsuicidal self-injury and eating disorder behaviors: a preliminary test of the emotional cascade model. J Clin Psychol. 2015; 71(1):62-71.
  • [42]Nock MK, Mendes WB. Physiological arousal, distress tolerance, and social problem-solving deficits among adolescent self-injurers. J Consult Clin Psychol. 2008; 76(1):28-38.
  • [43]Lewis SP, Mahdy JC, Michal NJ, Arbuthnott AE. Googling Self-injury: the state of health information obtained through online searches for self-injury. JAMA Pediatr. 2014; 168(5):443-449.
  • [44]Roe J, Aspinall P. The restorative benefits of walking in urban and rural settings in adults with good and poor mental health. Health Place. 2011; 17(1):103-113.
  • [45]Epstein RM, Hundert EM. Defining and assessing professional competence. JAMA. 2002; 287(2):226-235.
  • [46]Epstein RM, Dannefer EF, Nofziger AC, Hansen JT, Schultz SH, Jospe N et al.. Comprehensive assessment of professional competence: the Rochester experiment. Teach Learn Med. 2004; 16(2):186-196.
  • [47]Bloor M, Fincham B, Sampson H. Qualti (NCRM) commissioned inquiry into the risk to well-being of researchers in qualitative research. Cardiff ESRC National Centre for Research Methods. Cardiff University, Cardiff, Wales, UK; 2007.
  • [48]Moncur W (2013) The emotional well-being of researchers: considerations for practice. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems 2013. http://dl. acm.org.libproxy.umassd.edu/citation.cfm?id=2466248 webcite
  • [49]Dickson-Swift V, James EL, Kippen S, Liamputtong P. Risk to researchers in qualitative research on sensitive topics: issues and strategies. Qual Health Res. 2008; 18(1):133-144.
  • [50]Elmir R, Schmied V, Jackson D, Wilkes L. Interviewing people about potentially sensitive topics. Nurse Res. 2011; 19(1):12-16.
  • [51]Etherington K. Working with traumatic stories: from transcriber to witness. Int J Soc Res Methodol Theory Prac. 2007; 10(2):85-97.
  • [52]Bahn S, Weatherill P. Qualitative social research: a risky business when it comes to collecting ‘sensitive’ data. Qual Res. 2013; 13(1):19-35.
  • [53]British Psychological Society (2009) Code of ethics and conduct: guidance published by the Ethics Committee of the British Psychological Society. Leicester, England (self)
  • [54]Walsh B. Clinical assessment of self-injury: a practical guide. J Clin Psychol. 2007; 63(11):1057-1068.
  • [55]Kettlewell C. Skin game: a memoir. St. Martin’s Press, New York; 1999.
  • [56]Wilkinson P, Kelvin R, Roberts C, Dubicka B, Goodyer I. Clinical and psychosocial predictors of suicide attempts and nonsuicidal self-injury in the Adolescent Depression Antidepressants and Psychotherapy Trial (ADAPT). Am J Psychiatry. 2011; 168(5):495-501.
  • [57]Reitz S, Kluetsch R, Niedtfeld I, Knorz T, Lis S, Paret C et al (2015) Incision and stress regulation in borderline personality disorder: neurobiological mechanisms of self-injurious behaviour. Br J Psychiatry. doi:10.1192/bjp.bp.114.153379
  • [58]Lloyd-Richardson EE, Perrine N, Dierker L, Kelley ML. Characteristics and functions of non-suicidal self-injury in a community sample of adolescents. Psychol Med. 2007; 37(8):1183-1192.
  • [59]Klonsky ED, Glenn CR. Assessing the functions of non-suicidal self-injury: psychometric properties of the Inventory of Statements About Self-injury (ISAS). J Psychopathol Behav Assess. 2009; 31:215-219.
  • [60]Whitlock J, Exner-Cortens D, Purington A. Assessment of nonsuicidal self-injury: development and initial validation of the Non-Suicidal Self-Injury-Assessment Tool (NSSI-AT). Psychol Assess. 2014; 26(3):935-946.
  • [61]Nock MK, Holmberg EB, Photos VI, Michel BD. Self-injurious thoughts and behaviors interview: development, reliability, and validity in an adolescent sample. Psychol Assess. 2007; 19(3):309-317.
  • [62]Linehan MM, Comtois KA, Brown MZ, Heard HL, Wagner A. Suicide attempt self-injury interview (SASII): development, reliability, and validity of a scale to assess suicide attempts and intentional self-injury. Psychol Assess. 2006; 18(3):303-312.
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