Health and Quality of Life Outcomes | |
Validity of the Aboriginal Children’s Health and Well-being Measure: Aaniish Naa Gegii? | |
Rita G. Corbiere1  Tricia A. Burke2  Diane Jacko3  Mélanie Trottier2  Brenda Pangowish4  Koyo Usuba2  Mary Jo Wabano4  Nancy L. Young2  | |
[1] Elder, Wikwemikong Unceded Indian Reserve, ON, Canada;Laurentian University, Sudbury, ON, Canada;Nadmadwin Mental Health Clinic, Wikwemikong Unceded Indian Reserve, ON, Canada;Nahndahweh Tchigehgamig Wikwemikong Health Centre, Wikwemikong Unceded Indian Reserve, ON, Canada | |
关键词: Questionnaire; Interviews; Well-being; Children; Aboriginal; | |
Others : 1225319 DOI : 10.1186/s12955-015-0351-0 |
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received in 2015-03-11, accepted in 2015-09-14, 发布年份 2015 | |
【 摘 要 】
Background
Aboriginal children experience challenges to their health and well-being, yet also have unique strengths. It has been difficult to accurately assess their health outcomes due to the lack of culturally relevant measures. The Aboriginal Children’s Health and Well-Being Measure (ACHWM) was developed to address this gap. This paper describes the validity of the new measure.
Methods
We recruited First Nations children from one First Nation reserve in Canada. Participants were asked to complete the ACHWM independently using a computer tablet. Participants also completed the PedsQL. The ACHWM total score and 4 Quadrant scores were expected to have a moderate correlation of between 0.4 and 0.6 with the parallel PedsQL total score, domains (scale scores), and summary scores.
Results
Paired ACHWM and PedsQL scores were available for 48 participants. They had a mean age of 14.6 (range of 7 to 19) years and 60.4 % were girls. The Pearson’s correlation between the total ACHWM score and a total PedsQL aggregate score was 0.52 (p = 0.0001). The correlations with the Physical Health Summary Scores and the Psychosocial Health Summary Scores were slightly lower range (r = 0.35 p = 0.016; and r = 0.51 p = 0.0002 respectively) and approached the expected range. The ACHWM Quadrant scores were moderately correlated with the parallel PedsQL domains ranging from r = 0.45 to r = 0.64 (p ≤ 0.001). The Spiritual Quadrant of the ACHWM did not have a parallel domain in the PedsQL.
Conclusions
These results establish the validity of the ACHWM. The children gave this measure an Ojibway name, Aaniish Naa Gegii, meaning “how are you?”. This measure is now ready for implementation, and will contribute to a better understanding of the health of Aboriginal children.
【 授权许可】
2015 Young et al.
【 预 览 】
Files | Size | Format | View |
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20150919091331723.pdf | 510KB | download | |
Fig. 1. | 15KB | Image | download |
【 图 表 】
Fig. 1.
【 参考文献 】
- [1]State of knowledge of Aboriginal health: a review of Aboriginal public health in Canada. National Collaborating Centre for Aboriginal Health, Prince George, British Columbia; 2012.
- [2]First Nations Regional Longitudinal Health Survey (RHS) (2002/03) results for adults, youth and children living in First Nations Communities. Ottawa. 2005.
- [3]Statistics Canada. Aboriginal Children’s Survey 2006 (Children–aged 0 to 5). Ottawa: Statistics Canada; 2006.
- [4]Canadian Community Health Survey (CCHS). Ottawa. 2011.
- [5]Canadian supplement to the state of the world’s children. Aboriginal children’s health: leaving no child behind. http://www.nccah.ca/docs/child%20and%20youth/Report%20Summary%20Leaving%20no%20child%20behind.pdf. Accessed May 12, 2010.
- [6]Smylie J, Adomako P. Indigenous children’s health report: health assessment in action. St. Michael’s Hopsital, Keenan Research Institute, Toronto, Ontario; 2009.
- [7]Ball J. Promoting equity and dignity for Aboriginal children in Canada. IRPP Choices. 2008; 14:1-32.
- [8]Fremantle E, Zurynski YA, Mahajan D, D’Antoine H, Elliott EJ. Indigenous child health: urgent need for improved data to underpin better health outcomes. Med J Aust. 2008; 188:588-91.
- [9]Jacklin K, Warry W. The Indian health transfer policy: toward cost containment or self-determination? In: Unhealthy health policy: a critical anthropological examination. Singer M, Castro A, editors. Altamira Press, Walnut Creek, CA; 2005: p.215-34.
- [10]Jacklin K, Warry W. Chapter 20: Decolonizing First Nations health. In: Kulig JC, Williams A, editors. Rural health: a Canadian perspective. Vancouver, BC: University of British Columbia Press; 2011. p. 215–34.
- [11]Smylie J, Anderson I, Ratima M, Crengle S, Anderson M. Indigenous health performance measurement systems in Canada, Australia, and New Zealand. Lancet. 2006; 367:2029-31.
- [12]Anderson M, Smylie J, Anderson I, Sinclair R, Crengle S. First Nations, Métis, and Inuit health indicators in Canada–Canadian background paper. In: A background paper for the project “Action Oriented Indicators of Health and Health Systems Development for Indigenous Peoples in Australia, Canada, and New Zealand”. Indigenous Peoples’ Health Research Centre (IPHRC), Regina, Saskatchewan; 2006: p.38.
- [13]A citizen’s guide to health indicators. Health Council of Canada, Ottawa; 2011.
- [14]Young NL, Yoshida KK, Williams JI, Bombardier C, Wright JG. The role of children in reporting their physical-disability. Arch Phys Med Rehabil. 1995; 76:913-8.
- [15]Young NL, Varni JW, Snider L, McCormick A, Sawatzky B, Scott M et al.. The Internet is valid and reliable for child-report: an example using the Activities Scale for Kids (ASK) and the Pediatric Quality of Life Inventory (PedsQL). J Clin Epidemiol. 2009; 62:314-20.
- [16]Ritchie SD, Wabano MJ, Russell K, Enosse L, Young NL. Promoting resilience and wellbeing through an outdoor intervention designed for Aboriginal adolescents. Rural Remote Health. 2014; 14:2523.
- [17]Ritchie SD, Wabano MJ, Beardy J, Curran J, Orking A, VanderBurgh D et al.. Community-based participatory research with indigenous communities: the proximity paradox. Health Place. 2013; 24:183-9.
- [18]Young NL, Wabano MJ, Burke TA, Ritchie SD, Mishibinijma D, Corbiere RG. A Process for Creating the Aboriginal Children’s Health and Well-Being Measure (ACHWM). Rev Canad Sante Publique. 2013; 104:e136-41.
- [19]Fryback DG. Measuring health-related quality of life. In: Workshop on advancing social science theory: the importance of common metrics The National Academies, Division of Behavioral and Social Sciences and Education Washington, DC. 2010.
- [20]Waldram JB, Herring DA, Young TK. Aboriginal health in Canada. Historical, cultural and epidemiological perspectives. 2nd ed. University of Toronto Press, Toronto, ON; 2006.
- [21]Isaak CA, Marchessault G. Meaning of health: the perspectives of Aboriginal adults and youth in a northern Manitoba First Nations community. Can J Diabetes. 2008; 32:114-22.
- [22]Dumont J. First Nations Regional Longitudinal Health Survey (RHS) cultural framework. 2005.
- [23]Mundel E, Chapman GE. A decolonizing approach to health promotion in Canada: the case of the urban Aboriginal community kitchen garden project. Health Promot Int. 2010; 25:166-73.
- [24]Marsden DM. Indigenous wholistic theory for health: enhancing traditional-based Indigenous health services in Vancouver. PhD thesis. University of British Columbia, Educational Studies. 2005.
- [25]Mawhiney AM, Nabigon H. A Cree medicine wheel guide for healing First Nations. In: Turner FJ, editor. Social work treatment: a Canadian perspective. New York: New York Free Press; 2011. p. 15–29.
- [26]Young NL, Williams JI, Yoshida KK, Wright JG. Measurement properties of the Activities Scale for Kids. J Clin Epidemiol. 2000;53:125–37.
- [27]Riley AW. Evidence that school-age children can self-report on their health. Ambul Pediatr. 2004; 4:371-6.
- [28]Juniper EF, Guyatt GH, Feeny DH, Griffith LE, Ferrie PJ. Minimum skills required by children to complete health-related quality of life instruments for asthma: comparison of measurement properties. Eur Respir J. 1997; 10:2285-94.
- [29]Wabano MJ, Young NL, Burke T, Ritchie SD, Mishinibinijma D, Corbiere R. Aboriginal children’s perspectives on their health and well-being: a pilot study. Anishinabek Advisory Council on Health. London, Ontario. 2012.
- [30]Wabano MJ, Young NL, Burke T, Ritchie SD, Mishinibinijma D, Corbiere R. Aboriginal children’s perspectives on their health and well-being: a pilot study. Rural and remote health research: creative approaches; Canadian society for rural health research. Levis, Quebec. 2012.
- [31]Young NL, Wabano MJ, Ritchie SD, Burke TA, Pangowish B, Corbiere RG. Assessing children’s interpretations of the Aboriginal Children’s Health and Well-being Measure (ACHWM). Health Qual Life Outcomes. 2015; 13(1):105. BioMed Central Full Text
- [32]Varni JW, Seid M, Rode CA. The PedsQL: measurement model for the Pediatric Quality of Life Inventory. Med Care. 1999;37:126–39.
- [33]Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity of the pediatric quality of life inventory version 4.0 generic core scales in healthy and patient populations. Med Care. 2001; 39:800-12.
- [34]Ravens-Sieberer U, Auquier P, Erhart M, Gosch A, Rajmil L, Bruil J et al.. The KidScreen-27 quality of life measure for children and adolescents: psychometric results from a cross-cultural survey in 13 European countries. Qual Life Res. 2007; 16:1347-56.
- [35]Idler EL, Kasl S. Health perceptions and survival: do global evaluations of health status really predict mortality? J Gerontol. 1991; 46:S55-65.
- [36]Varni JW, Seid M, Knight TS, Uzark K, Szer IS. The PedsQL 4.0 generic core scales: sensitivity, responsiveness, and impact on clinical decision-making. J Behav Med. 2002; 25:175-93.
- [37]Varni JW, Burwinkle TM, Seid M. The PedsQL 4.0 as a school population health measure: feasibility, reliability, and validity. Qual Life Res. 2006; 15:203-15.
- [38]Limbers CA, Newman DA, Varni JW. Factorial invariance of child self-report across race/ethnicity groups: a multigroup confirmatory factor analysis approach utilizing the PedsQL 4.0 generic core scales. Ann Epidemiol. 2009; 19:575-81.
- [39]Aboriginal population profile. Wikwemikong Reserve 26. 2006.
- [40]Jacklin K. Diversity within: Deconstructing Aboriginal community health in Wikwemikong Unceded Indian Reserve. Soc Sci Med. 2009;68:980–9.
- [41]Varni JW, Limbers CA. The Pediatric Quality of Life Inventory: measuring pediatric health-related quality of life from the perspective of children and their parents. Pediatr Clin N Am. 2009;56:843–63.
- [42]Cohen J. Statistical power analysis for the behavioral sciences. Academic press. 2013.
- [43]General Health Ratings from the 2008/2010 First Nations Regional Health Survey (RHS). http://data.fnigc.ca/online. Accessed December 12, 2014.
- [44]Upton P, Lawford J, Eiser C. Parent–child agreement across child health-related quality of life instruments: a review of the literature. Qual Life Res. 2008; 17:895-913.