Cross-sector collaborations in Aboriginal and Torres Strait Islander childhood disability: a systematic integrative review and theory-based synthesis

International Journal for Equity in Health

Patricia Delaney²  Joanne Delaney²  Patricia Mary Davidson¹  Penelope Abbott³  Tim Luckett⁴  Michelle DiGiacomo⁴  Anna Green⁴ 

[1] School of Nursing, Johns Hopkins University, 525 N. Wolfe Street, Baltimore 21205, MD, USA;Aboriginal Medical Service Western Sydney, Mt Druitt 2770, NSW, Australia;University of Western Sydney, Locked Bag 1797, Penrith 1797, NSW, Australia;Center for Cardiovascular and Chronic Care, Faculty of Health, University of Technology, Sydney, Broadway 2007, NSW, Australia

关键词: Intra-sector;    Inter-sector;    Collaboration;    Disability;    Childhood;    Aboriginal and Torres Strait Islander;   

Others  :  1139411
DOI  :  10.1186/s12939-014-0126-y

 received in 2014-09-22, accepted in 2014-12-09,  发布年份 2014

【 摘 要 】

Introduction

Aboriginal and Torres Strait Islander children in Australia experience a higher prevalence of disability and socio-economic disadvantage than other Australian children. Early intervention is vital for improved health outcomes, but complex and fragmented service provision impedes access. There have been international and national policy shifts towards inter-sector collaborative responses to disability, but more needs to be known about how collaboration works in practice.

Methods

A systematic integrative literature review using a narrative synthesis of peer-reviewed and grey literature was undertaken to describe components of inter- and intra-sector collaborations among services to Aboriginal and Torres Strait Islander children with a disability and their families. The findings were synthesized using the conceptual model of the ecological framework.

Results

Thirteen articles published in a peer-reviewed journal and 18 articles from the grey literature met inclusion criteria. Important factors in inter- and intra-sector collaborations identified included: structure of government departments and agencies, and policies at the macro- (government) system level; communication, financial and human resources, and service delivery setting at the exo- (organizational) system level; and relationships and inter- and intra-professional learning at the meso- (provider) system level.

Conclusions

The policy shift towards inter-sector collaborative approaches represents an opportunity for the health, education and social service sectors and their providers to work collaboratively in innovative ways to improve service access for Aboriginal and Torres Strait Islander children with a disability and their families. The findings of this review depict a national snapshot of collaboration, but as each community is unique, further research into collaboration within local contexts is required to ensure collaborative solutions to improve service access are responsive to local needs and sustainable.

【 授权许可】

   
2014 Green et al.; licensee BioMed Central.

【 图 表 】

Figure 1.

Figure 2.

Figure 3.

【 参考文献 】

• [1]Australian Health Ministers’ Advisory Council: Cultural Respect Framework for Aboriginal and Torres Strait Islander Health, 2004–2009. Department of Health South Australia, South Australia; 2004.
• [2]Australian Institute of Health and Welfare: The health and welfare of Australia’s Aboriginal and Torres Strait Islander people: an overview. Australian Institute of Health and Welfare, Canberra; 2011.
• [3]Commonwealth of Australia: 2010–2020 National Disability Strategy: An initiative of the Council of Australian Governments. Commonwealth of Australia, Canberra; 2011.
• [4]Biddle N, Yap M, Gray M: CAEPR Indigenous Population Project 2011 Census Papers. Paper 6 Disability. Australian National University, Canberra; 2013.
• [5]Emerson E, Madden R, Graham H, Llewellyn G, Hatton C, Robertson J: The health of disabled people and the social determinants of health. Public Health 2011, 125:145-147.
• [6]Grant J, Parry Y, Guerin P: An investigation of culturally competent terminology in healthcare policy finds ambiguity and lack of definition. Aust N Z J Public Health 2013, 37(3):250-256.
• [7]Commission AHR: Inquiry into hearing health in Australia: Australian Human Rights Commission submission to the Senate Community Affairs Committee. Sydney, Australian Human Rights Commission; 2009.
• [8]World Health Organization and World Bank: World Report On Disability. World Health Organization, Geneva; 2011.
• [9]Ball J: Supporting young indigenous children's language development in Canada: A review of research on needs and promising practices. Can Modern Language Rev 2009, 66(1):19-47.
• [10]Banks S, Miller D: Empowering indigenous families who have children with disabilities: An innovative outreach model.Disabi Stud Q 2005, 25(2).
• [11]Cappiello M, Gahagan S: Early child development and developmental delay in indigenous communities. Pediatr Clin N Am 2009, 56(6):1501-1517.
• [12]Castleden H: The Silent North: A case study on deafness in a Dene community. Can J Nativ Educ 2002, 26(2):152-168.
• [13]Sherwood J: The management of children with otitis media. Aboriginal Islander Health Wor J 1993, 17(4):15-17.
• [14]Thorne J: Middle ear problems in Aboriginal school children cause developmental and educational concerns. Contemp Nurse 2003, 16(1–2):145-150.
• [15]Australian Bureau of Statistics: National Aboriginal and Torres Strait Islander Health Survey 2004–05. Australian Bureau of Statistics, Canberra; 2006.
• [16]World Health Organization: Chronic Suppurative Otitis Media: Burden Of Illness And Management Options. World Health Organization, Geneva; 2004.
• [17]Morris P, Leach A, Silberberg P, Mellon G, Wilson C, Hamilton E, Beissbarth J: Otitis media in young Aboriginal children from remote communities in northern and central Australia: A cross-sectional survey.BMC Pediatrics 2005, 5(27).
• [18]Williams C, Jacobs A: The impact of otitis media on cognitive and educational outcomes. Med J Aust 2009, 191(9):S69-S72.
• [19]Robinson P, Hoskins G, Page S, Peckham C: A national program of Aboriginal and Torres Strait Islander Health Workers to reduce the incidence of otitis media and hearing loss in children. Aboriginal Isl Health WorkJ 1997, 21(5):27-29.
• [20]Aldred R, Forsingdal S, Baker R: Working together to improve the health status and health outcomes for Indigenous children and their families living in urban settings: the speech pathologist's role. ACQuiring Knowl Speech Lang Hear 2002, 4(3):166-169.
• [21]Pink B, Allbon P: The Health And Welfare Of Australia's Aboriginal And Torres Strait Islander Peoples 2008. Australian Bureau of Statistics and the Australian Institute of Health and Welfare, Canberra; 2008.
• [22]McDonald J, Comino E, Knight J, Webster V: Developmental progress in urban Aboriginal infants: a cohort study. J Paediatr Child Health 2012, 48(2):114-121.
• [23]McDonald J, Webster V, Knight J, Comino E: The Gudaga Study: development in 3-year-old urban Aboriginal children. J Paediatr Child Health 2014, 50(2):100-106.
• [24]Australian Institute of Health and Welfare: Stronger Futures in the Northern Territory: Hearing Health Services 2012–2013. Australian Institute of Health and Welfare, Canberra; 2014.
• [25]Senate Community Affairs References Committee: Hear Us: Inquiry Into Hearing Health In Australia. Parliament of Australia Senate, Canberra; 2010.
• [26]Otitis media: helping to close the gap in Indigenous Australia.Medicus (Nedlands, WA) 2013, 53(2):46–47.
• [27]Bowes J, Grace R: Review Of Early Childhood Parenting, Education And Health Intervention Programs For Indigenous Children And Families In Australia. Issues Paper No. 8 Produced For The Closing The Gap Clearinghouse. Australian Institute of Health and Welfare, Canberra; 2014.
• [28]Novello A, Degraw C, Kleinman D: Healthy children ready to learn: an essential collaboration between health and education. Public Health Rep 1992, 107(1):3-15.
• [29]Baum F: Cracking the nut of health equity: top down and bottom up pressure for action on the social determinants of health. Promot Educ 2007, 14(2):90-95.
• [30]Hunt J: Engaging with Indigenous Australia—Exploring The Conditions For Effective Relationships With Aboriginal And Torres Strait Islander Communities. Issues paper no. 5. Australian Institute of Health and Welfare and Australian Institute of Family Studies, Canberra and Melbourne; 2013.
• [31]O'Neill M, Kirov E, Thomson N: A review of the literature on disability services for Aboriginal and Torres Strait Islander peoples. Austr Indigenous HealthBull 2004, 4(4):1-26.
• [32]Council of Australian Governments: National Indigenous Reform Agreement (Closing the Gap). Commonwealth of Australia, Canberra; 2008.
• [33]Commonwealth of Australia: National Strategic Framework for Aboriginal and Torres Strait Islander Health 2003–2013, Australian Government Implementation Plan 2007–2013. Commonwealth of Australia, Canberra; 2007.
• [34]Council of Australian Governments: Investing in the early years-a National Early Childhood Development Strategy. Council of Australian Governments, Canberra; 2009.
• [35]Australian Institute of Health and Welfare: Disability Support Services 2009–10: Report On Services Provided Under The National Disability Agreement. In Disability series. Australian Institute of Health and Welfare, Canberra; 2011.
• [36]Scholes J: Deadly Ears Speech Pathology: Working through partnerships to limit the impact of otitis media on the communication development of Aboriginal and Torres Strait Islander children. Talkabout 2010, 23(2):20-21.
• [37]Nations U: The United Nations and Disabled Persons-The First Fifty Years. United Nations, New York; 2006.
• [38]Kitto S, Chesters J, Grbich C: Quality in qualitative research: criteria for authors and assessors in the submission and assessment of qualitative research articles for the Medical Journal of Australia. Med J Aust 2008, 188:243-246.
• [39]von Elm E, Altman D, Egger M, Pocock S, Gøtzsche P, Vandenbroucke J: STROBE Initiative: The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) Statement: guidelines for reporting observational studies. Bull World Health Organ 2007, 85(11):867-872.
• [40]Des Jarlais D, Lyles C, Crepaz N: TREND Group: Improving the reporting quality of nonrandomized evaluations of behavioral and public health interventions: the TREND statement. Am J Public Health 2004, 94(3):361-366.
• [41][http://mixedmethodsappraisaltoolpublic.pbworks.com] webcite Pluye P, Robert E, Cargo M, Bartlett G, O’Cathain A, Griffiths F, Boardman F, Gagnon MP, Rousseau MC: Proposal: A mixed methods appraisal tool for systematic mixed studies reviews [. Archived by WebCite® at http://www.webcitation.org/5tTRTc9yJ webcite]
• [42]Shea B, Grimshaw J, Wells G, Boers M, Andersson N, Hamel C, Porter AC, Tugwell P, Moher D,Bouter LM: Development of AMSTAR: a measurement tool to assess the methodological quality of systematic reviews.BMC Med Res Method 2007, 7(10).
• [43]Melnyck B, Fineout-Overholt E: Evidence-Based Practice In Healthcare. Lippincott, Philadelphia; 2005.
• [44]Popay J, Roberts H, Sowden A, Petticrew M, Arai L, Rodgers M, Britten N, Roen K, Duffy S: Guidance on The Conduct Of Narrative Synthesis In Systematic Reviews. A Product from the ESRC Methods Programme. Version 1. 2006.
• [45]Australian Institute of Health and Welfare: Social and emotional wellbeing: development of a Children’s Headline Indicator. Cat. no. PHE 158. Canberra: Australian Institute of Health and Welfare; 2012.
• [46]Bronfenbrenner U: The ecology of human development: experiments by nature and design. Cambridge, Mass.: Harvard University Press; 1979.
• [47]Westby C: Implementing recommendations of the World Report on Disability for indigenous populations. Int J Speech Language Pathol 2013, 15(1):96-100.
• [48]Clarke K, Denton M: Red Dirt Thinking on child wellbeing in Indigenous, rural and remote Australian communities: The SpICE Model "I just don't want my kid to struggle like I did at school". Austr J Indigenous Educ 2013, 42(2):136-144.
• [49]Burns J, Thomson N: Review Of Ear Health And Hearing Among Indigenous Australians. Australian Indigenous HealthInfoNet, Western Australia; 2013.
• [50]McSwan D, Ruddell D, Searston I: Report: A Whole Community Approach to Otitis Media-reducing its incidence and effects. Rural Education, Research and Development Centre, James Cook University, Townsville; 2001.
• [51]DiGiacomo M, Davidson PM, Abbott P, Delaney P, Dharmendra T, McGrath SJ, Delaney J, Vincent F: Childhood disability in Aboriginal and Torres Strait Islander peoples: A literature review.Int J Equity Health 2013, 12(7).
• [52]Ministerial Advisory Committee: Students with Disabilities: Aboriginal Students with Disabilities. Government of South Australia, South Australia; 2003.
• [53]DiGiacomo M, Delaney P, Abbott P, Davidson PM, Delaney J, Vincent F: 'Doing the hard yards': carer and provider focus group perspectives of accessing Aboriginal childhood disability services.BMC Health Serv Res 2013, 13(326).
• [54]Western Australian Education and Health Standing Committee: Report on Key Learnings from the Committee Research Trip 11–17 March 2012. Parliament of Western Australia, Perth; 2012.
• [55]Consultants ARTD: Evaluation of the Aboriginal Otitis Media Screening Program: Final Report. New South Wales Health, Sydney; 2008.
• [56]Ministerial Advisory Committee: Students with Disabilities: Aboriginal Students with Disabilities: Otitis Media and Conductive Hearing Loss. South Australia: Government of South Australia; 2007.
• [57]Health Q: Deadly Ears, Deadly Kids, Deadly Communities: 2009–2013. Queensland Government, Queensland; 2009.
• [58]Burrow S, Galloway A, Weissofner N: Review Of Educational And Other Approaches To Hearing Loss Among Indigenous People. Australian Indigenous HealthInfoNet, Western Australia; 2009.
• [59]Kirkham L, Wiertsema S, Smith-Vaughan H, Thornton R, Marsh R, Lehmann D, Leach A, Morris P, Richmond P: Are you listening? The inaugural Australian Otitis Media (OMOZ) workshop - towards a better understanding of otitis media. Med J Aust 2010, 193(10):569-571.
• [60]Gilroy J: The participation of Aboriginal people with a disability in disability services in New South Wales, Australia.PhD thesis. University of Sydney; 2012.
• [61]Australian Indigenous EarInfoNet and InfoNetwork.Aboriginal and Islander Health Worker Journal 2006, 30(3):20-21.
• [62]Purcal C, Newton BJ, Fisher KR, Eastman C, Mears T: School readiness Program For Aboriginal Children With Additional Needs: Working With Children, Families, Communities And Service Providers. Interim Evaluation Report. Social Policy Research Centre, University of New South Wales, Sydney; 2013.
• [63]Raman S, Reynolds S, Khan R: Addressing the well-being of Aboriginal children in out-of-home care: Are we there yet? J Paediatr Child Health 2011, 47:806-811.
• [64]Burton J: Opening Doors Through Partnerships: Practical Approaches To Developing Genuine Partnerships That Address Aboriginal and Torres Strait Islander Community Needs April 2012. Secretariat of National Aboriginal and Islander Child Care, Victoria; 2012.
• [65]Adams K, Dixon T, Guthrie J: Evaluation of the Gippsland Regional Indigenous Hearing Health Program - January to October 2002. Health Promot J Austr 2004, 15(3):205-210.
• [66]Nelson A, Allison H: A visiting occupational therapy service to Indigenous children in school: Results of a pilot project. Austr J Indigenous Educ 2004, 33:55-60.
• [67]Nelson A, Allison H: Relationships: the key to effective occupational therapy practice with urban Australian Indigenous children. Occup Ther Int 2007, 14(1):57-70.
• [68]McSwan D, Clinch E, Store R: Otitis media, learning and community. Educ Rural Aust 2001, 11(2):27-32.
• [69]Simmons K, Rotumah V, Cookson M, Grigg D: Child Hearing Health Coordinators tackle ear and hearing health in the NT. Chronicle 2012, 23(1):22-23.
• [70]Elliott G, Smith AC, Bensink ME, Brown C, Stewart C, Perry C, Scuffham P: The feasibility of a Community-Based Mobile Telehealth Screening Service for Aboriginal and Torres Strait Islander Children in Australia. Telemed e-Health 2010, 16(9):950-956.
• [71]Higgins J, Beecher S: The Secretariat of National Aboriginal and Islander Child Care (SNAICC) Early Days Project on Autism Spectrum Disorders August 2010. Secretariat of National Aboriginal and Islander Child Care, Victoria; 2010.
• [72]Davidson B, Hill AE, Nelson A: Responding to the World Report on Disability in Australia: Lessons from collaboration in an urban Aboriginal and Torres Strait Islander school. Int J Speech Lang Pathol 2013, 15(1):69-74.
• [73]New South Wales Ombudsman: Improving Service Delivery To Aboriginal People With A Disability: A Review Of The Implementation of ADHC's Aboriginal Policy Framework and Aboriginal Consultation Strategy. New South Wales Ombudsman, Sydney; 2010.
• [74]Smith A, Armfield N, Wu W, Brown C, Perry C: A mobile telemedicine-enabled ear screening service for Indigenous children in Queensland: activity and outcomes in the first three years. J Telemed Telecare 2012, 18:485-489.
• [75]Llewellyn G, Thompson K, Fante M: Inclusion in early childhood services: Ongoing challenges. Austr J Early Child 2002, 27(3):18-23.
• [76]Huxham C, Vangen S: Managing To Collaborate: The Theory And Practice Of Collaborative Advantage. Routledge, United States; 2005.
• [77]National Aboriginal Community Controlled Health Organisation (NACCHO): Creating the NACCHO Cultural Safety Training Standards and Assessment Process: A background paper. NACCHO, Canberra; 2011.
• [78]Betancourt J, Green A, Carrillo J, Ananeh-Firempong O 2nd: Defining cultural competence: a practical framework for addressing racial/ethnic disparities in health and health care. Public Health Rep 2003, 118(4):293-302.
• [79]Australian Institute of Health and Welfare: Aboriginal and Torres Strait Islander people with disability: Wellbeing, participation and support. Australian Institute of Health and Welfare, Canberra; 2011.
• [80]Burton J: Coming Together: The Journey Towards Effective Integrated Services for Aboriginal and Torres Strait Islander Children And Families. Secretariat of National Aboriginal and Islander Child Care, Victoria; 2012.
• [81]Allen M, Allen J, Hogarth S, Marmot M: Working For Health Equity: The Role Of Health Professionals. UCL Institute of Health Equity, London; 2013.
• [82]Hunter D, Perkins N, Bambra C, Marks L, Hopkins T, Blackman T: Partnership Working And The Implications For Governance: Issues Affecting Public Health Partnerships. National Institute for Health Research Service Delivery and Organisation programme, United Kingdom; 2010.