期刊论文详细信息
BMC Nursing
Work-aged stroke survivors’ psychosocial challenges narrated during and after participating in a dialogue-based psychosocial intervention: a feasibility study
Kari Kvigne2  Berit Arnesveen Bronken2  Marit Kirkevold1  Randi Martinsen2 
[1] Faculty of Medicine, Institute of Health and Society, Department of Nursing Science, University of Oslo, Oslo, Norway;Faculty of Public Health, Department of Nursing and Mental Health, Hedmark University College, Elverum, Norway
关键词: Rehabilitation;    Hermeneutic-phenomenological;    Qualitative method;    Complex intervention;    Feasibility study;    Marginalisation;    Work-aged stroke survivors;    Stroke;   
Others  :  1091614
DOI  :  10.1186/1472-6955-12-22
 received in 2013-02-23, accepted in 2013-09-24,  发布年份 2013
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【 摘 要 】

Background

Studies point to the lack of psychosocial support and rehabilitation services that are adjusted to the work-aged stroke survivors’ specific needs in order to promote psychosocial well-being. The aim of the study was to illuminate the psychosocial challenges work-aged participants (i.e. aged 18–67 years) thematised during and after participating a dialogue-based psychosocial intervention during the first year following a stroke.

Methods

The study was a feasibility study guided by the UK Medical Research Council Framework for developing and evaluating complex interventions. Qualitative data from in-depth interviews with fourteen stroke-survivors aged 33–66 years, researcher field notes and log notes written during the intervention were analysed applying a hermeneutic-phenomenological approach.

Results

The stroke and its consequences had a substantial impact on family and work life. Their experiences were summarised in the two themes The threat of becoming marginalised in family life and The threat of becoming marginalised in work life.

Conclusion

Life as a work-aged stroke survivor was experienced as challenging and created a threat of becoming marginalised in family and work life. The study highlights the need to understand the specific psychosocial challenges and needs facing work-aged stroke survivors’ in order to promote their psychosocial well-being. More research is needed concerning specific life-span challenges amongst work-aged stroke survivors in order to further develop appropriate interventions that helps address this issue.

【 授权许可】

   
2013 Martinsen et al.; licensee BioMed Central Ltd.

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【 参考文献 】
  • [1]Ellekjær H, Holmen J, Indredavik B, Terent A: Epidemiology of Stroke in Innherred, Norway, 1994 to 1996. Stroke 1997, 28:2180-2184. http://www.ncbi.nlm.nih.gov/pubmed/9368561 webcite
  • [2]Feigin VL, Lawes CMM, Bennett DA, Anderson CS: Stroke epidemiology: a review of population-based studies of incidence, prevalence, and case-fatality in the late 20th century. Lancet Neurol 2003, 2(1):43-53. http://www.sciencedirect.com/science/article/pii/S1474442203002667 webcite
  • [3]Teasell RW, McRae M, Finestone HM: Social issues in the rehabilitation of younger stroke patients. Arch Phys Med Rehab 2000, 81(2):205-209. http://www.sciencedirect.com/science/article/pii/S0003999300901424 webcite
  • [4]Johansen HL, Wielgosz AT, Nguyen K, Fry RN: Incidence, comorbidity, case fatality and readmission of hospitalized stroke patients in Canada. Can J Cardiol 2006, 22(1):65-71. http://www.ncbi.nlm.nih.gov/pubmed/16450021 webcite
  • [5]Vanhook P: The domains of stroke recovery: a synopsis of the literature. J Neurosci Nurs 2009, 41(1):6-17. http://search.proquest.com/docview/219190309/140D388E248A12B97A/2?accountid=42560 webcite
  • [6]Kouwenhoven SE, Kirkevold M, Engedal K, Biong S, Kim HS: The lived experience of stroke survivors with early depressive symptoms: a longitudinal perspective. Int J Qual Stud Health Well-being 2011., 6(4) http://www.ijqhw.net/index.php/qhw/article/view/8491 webcite
  • [7]Gurr B, Muelenz C: A follow-up study of psychological problems after stroke. Top Stroke Rehabil 2011, 18(5):461-469. http://thomasland.metapress.com/content/97271616164r7205/?genre?=?article&id?=?doi%3a10.1310%2ftsr1805-461 webcite
  • [8]Kouwenhoven SE, Kirkevold M, Engedal K, Kim HS: ‘Living a life in shades of grey’: experiencing depressive symptoms in the acute phase after stroke. J Adv Nurs 2011, 1726-1737. http://web.ebscohost.com/ehost/detail?vid?=?4&sid?=?e910db3c-5bef-4d80-af3f-6a755211c8dd%40sessionmgr115&hid?=?113&bdata?=?JnNpdGU9ZWhvc3QtbGl2ZQ%3d%3d#db?=?c8h&AN?=?2011606249 webcite
  • [9]Salter K, Hellings C, Foley N, Teasell R: The experience of living with stroke: a qualitative meta-synthesis. J Rehab Med 2008, 40(8):595-602. http://dx.doi.org/10.2340/16501977-0238 webcite
  • [10]Lerdal A, Bakken LN, Kouwenhoven SE, Pedersen G, Kirkevold M, Finset A, Kim HS: Poststroke fatigue - a review. J Pain Symptom Manag 2009, 38(6):928-949. http://www.sciencedirect.com/science/article/pii/S0885392409007325 webcite
  • [11]Mukherjee D, Levin R, Heller W: The cognitive, emotional, and social sequelae of stroke: psychological and ethical concerns in post-stroke adaptation. Top Stroke Rehabil 2006, 13(4):26-35. http://dx.doi.org/10.1310/tsr1304-26 webcite
  • [12]Banks P, Pearson C: Parallel lives: younger stroke survivors and their partners coping with crisis. Sex Relation Ther 2004, 19(4):413-429. http://scholar.google.no/scholar?hl?=?no&q?=?10.1080%2F14681990412331298009&btnG= webcite
  • [13]Röding J, Lindström B, Malm J, Ohman A: Frustrated and invisible - younger stroke patients' experiences of the rehabilitation process. Disabil Rehabil 2003, 25(15):867-874. http://informahealthcare.com/doi/pdf/10.1080/0963828031000122276 webcite
  • [14]Thompson HS, Ryan A: The impact of stroke consequences on spousal relationships from the perspective of the person with stroke. J Clin Nurs 2009, 18(12):1803-1811. http://search.ebscohost.com/login.aspx?direct?=?true&db?=?aph&AN?=?39362201&site?=?ehost-live webcite
  • [15]Kitzmüller G, Asplund K, Häggström T: The long-term experience of family life after stroke. J Neurosci Nurs 2012, 44(1):E1-E13. http://www.ncbi.nlm.nih.gov/pubmed/22210306 webcite
  • [16]Green TL, King KM: Functional and psychosocial outcomes 1 year after mild stroke. Stroke Cerebrovasc 2010, 19(1):10-16. http://www.sciencedirect.com/science/article/pii/S1052305709000366 webcite
  • [17]Koch L, Egbert N, Coeling H, Ayers D: Returning to work after the onset of illness. Rehabil Couns Bull 2005, 48(4):209-218. http://rcb.sagepub.com/content/48/4/209.abstract webcite
  • [18]Alasewski A, Alasewski H, Potter J, Penhale B: Working after stroke: Survivors' experiences and perceptions of barriers to and facilitators of the return to paid employment. Disabil Rehabil 2007, 29(24):1858-1869. http://europepmc.org/abstract/MED/17852252 webcite
  • [19]Medin J, Barajas J, Ekberg K: Stroke patients' experiences of return to work. Disabil Rehabil 2006, 28(17):1051-1060. http://europepmc.org/abstract/MED/16950735 webcite
  • [20]Hofgren C, Esbjornsson E, Sunnerhagen KS: Return to work after acquired brain injury: facilitators and hindrances observed in a sub-acute rehabilitation setting. Work 2010, 36(4):431-439. http://www.ncbi.nlm.nih.gov/pubmed/20714099 webcite
  • [21]O'Brien AN, Wolf TJ: Determining work outcomes in mild to moderate stroke survivors. Work 2010, 36:441-447. http://www.ncbi.nlm.nih.gov/pubmed/20714100 webcite
  • [22]Vestling M, Tufvesson B, Iwarsson S: Indicators for return to work after stroke and the importance of work for subjective well-being and life satisfaction. J Rehab Med 2003, 35:127-131. http://scholar.google.no/scholar?hl?=?no&q?=?10.1080%2F16501970310010475&btnG= webcite
  • [23]Jones F, Mandy A, Partridge C: Reasons for recovery after stroke: a perspective based on personal experience. Disabil Rehabil 2008, 30(7):507-516. http://informahealthcare.com/doi/abs/10.1080/09638280701355561 webcite
  • [24]Murray CD, Harrison B: The meaning and experience of being a stroke survivor: an interpretative phenomenological analysis. Disabil Rehabil 2004, 26(13):808-816. http://informahealthcare.com/doi/abs/10.1080/09638280410001696746 webcite
  • [25]Stone S: Patient concerns posthaemorrhagic stroke: a study of the Internet narratives of patients with ruptured arteriovenous malformation. J Clin Nurs 2007, 16:289-297. http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2702.2005.01490.x/abstract;jsessionid=9E79AFEEDCB5056785B862C59FDCB499.f04t02?deniedAccessCustomisedMessage=&userIsAuthenticated=false webcite
  • [26]Craig P, Dieppe P, Macintyre S, Michie S, Nazareth I, Petticrew M: Developing and evaluating complex interventions: new guidance. 2008., 38http://www.mrc.ac.uk/complexinterventionsguidance webcite
  • [27]Kirkevold M, Bronken BA, Martinsen R, Kvigne K: Promoting psychosocial well-being following a stroke: developing a theoretically and empirically sound complex intervention. Int J Nurs Stud 2012, 49(4):386-397. http://www.ncbi.nlm.nih.gov/pubmed/22051438 webcite
  • [28]Kagan A: Supported conversation for adults with aphasia: methods and resources for training conversation partners. Aphasiology 1998, 12(9):816-830. http://dx.doi.org/10.1080/02687039808249575 webcite
  • [29]Ricœur P: Interpretation theory: discourse and the surplus of meaning. Fort Worth, Tex: Texas Christian University Press; 1976.
  • [30]Lindseth A, Norberg A: A phenomenological hermeneutical method for researching lived experience. Scand J Caring Sci 2004, 18(2):145-153. http://onlinelibrary.wiley.com/doi/10.1111/j.1471-6712.2004.00258.x/pdf webcite
  • [31]Kvale S, Brinkmann S: Interviews: learning the craft of qualitative research interviewing. Los Angeles, Calif: Sage; 2009.
  • [32]Vasas EB: Examining the margins: a concept analysis of marginalization. Adv Nurs Sci 2005, 28(3):194-202. http://journals.lww.com/advancesinnursingscience/Fulltext/2005/07000/Examining_the_Margins__A_Concept_Analysis_of.2.aspx webcite
  • [33]Ecks S, Sax WS: The ills of marginality: new perspectives on health in south asia. Anthropol Med 2005, 12(3):199-210. http://www.ingentaconnect.com/content/routledg/canm/2005/00000012/00000003/art00001 webcite
  • [34]Hall JM: Marginalization revisited: critical, postmodern, and liberation perspectives. Adv Nurs Sci 1999, 22(2):88-102. http://journals.lww.com/advancesinnursingscience/Fulltext/1999/12000/Marginalization_Revisited__Critical webcite,_Postmodern,.9.aspx
  • [35]Usher KJ, Arthur D: Process consent: a model for enhancing informed consent in mental health nursing. J Adv Nurs 1998, 27(4):692-697. http://dx.doi.org/10.1046/j.1365-2648.1998.00589.x webcite
  • [36]World Medical Association: Ethical principles for medical research involving human subjects. Seoul: WMA; 2008. http://www.wma.net/en/30publications/10policies/b3/ webcite
  • [37]Bethune-Davis P, McWilliam CL, Berman H: Living with the health and social inequities of a disability: a critical feminist study. Health Care Women In 2006, 27:204-222. http://www.tandfonline.com/doi/pdf/10.1080/07399330500506485 webcite
  • [38]Ware NC: Toward a model of social course in chronic illness: the example of chronic fatigue syndrome. Cult Med Psychiat 1999, 23:303-331. http://link.springer.com/article/10.1023%2FA%3A1005577823045#page-1 webcite
  • [39]Stone S: Reactions to invisible disability: the experiences of young women survivors of hemorrhagic stroke. Disabil Rehabil 2005, 27(6):293-304. http://informahealthcare.com/doi/abs/10.1080/09638280400008990 webcite
  • [40]Côté D, Coutu M: A critical review of gender issues in understanding prolonged disability related to musculoskeletal pain: how are they relevant to rehabilitation? Disabil Rehabil 2010, 32(2):87-102. http://informahealthcare.com/doi/abs/10.3109/09638280903026572 webcite
  • [41]Ahlgren C, Hammarström A: Back to work? gendered experiences of rehabilitation. Scand J Public Healt 2000, 28(2):88-94. http://www.ncbi.nlm.nih.gov/pubmed/10954134 webcite
  • [42]Kirkevold M: The role of nursing in the rehabilitation of stroke survivors: an extended theoretical account. Adv Nurs Sci 2010, 33(1):E27-E40. http://journals.lww.com/advancesinnursingscience/Fulltext/2010/01000/The_Role_of_Nursing_in_the_Rehabilitation_of.11.aspx webcite
  • [43]Bronken BA, Kirkevold M, Martinsen R, Kvigne K: The aphasic storyteller. Qual Health Res 2012, 22(10):1303-1316. http://qhr.sagepub.com/content/22/10/1303.abstract webcite
  • [44]Bronken BA, Kirkevold M, Martinsen R, Wyller TB, Kvigne K: Psychosocial well-being in persons with aphasia participating in a nursing intervention after stroke. Nursing Res Pract 2012. http://dx.doi.org/10.1155/2012/568242 webcite
  • [45]Martinsen R, Kirkevold M, Sveen U: Younger stroke Survivors' experiences of family life in a long-term perspective: a narrative hermeneutic phenomenological study. Nursing Res Pract 2012. http://www.hindawi.com/journals/nrp/2012/948791/ webcite
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