Prevalence of neurological conditions across the continuum of care based on interRAI assessments

BMC Health Services Research

Nathalie Jetté⁵  Tamara Pringsheim²  Scott Patten⁴  Ruth Ann Marrie³  Colleen J Maxwell¹  John P Hirdes⁶  Oana Danila⁶ 

[1] School of Pharmacy, University of Waterloo, Waterloo, Canada;Department of Pediatrics, University of Calgary, Calgary, Canada;Departments of Internal Medicine and Community Health Sciences, University of Manitoba, Winnipeg, Canada;Mathison Centre for Research and Education in Mental Health, University of Calgary, Calgary, Canada;Hotchkiss Brain Institute and Institute for Public Health, University of Calgary, Calgary, Canada;School of Public Health and Health Systems, University of Waterloo, Waterloo, Canada

关键词: interRAI;    Epidemiology;    Psychiatry;    Home care;    Nursing homes;   

Others  :  1134270
DOI  :  10.1186/1472-6963-14-29

 received in 2013-04-29, accepted in 2014-01-15,  发布年份 2014

【 摘 要 】

Background

Although multiple studies have estimated the prevalence of neurological conditions in the general Canadian population, limited research exists regarding the proportion affected with these conditions in non-acute health care settings in Canada. Data from standardized clinical assessments based on the interRAI suite of instruments were used to estimate the prevalence of eight neurological conditions across the continuum of care including Alzheimer’s disease, Parkinson’s disease, epilepsy, traumatic brain injury, multiple sclerosis, cerebral palsy, Huntington’s disease, and amyotrophic lateral sclerosis.

Methods

Cohorts of individuals receiving care in nursing homes (N=103,820), home care (N=91,021), complex continuing care (N=10,581), and psychiatric hospitals (N=23,119) in Canada were drawn based on their most recent interRAI assessment within each sector for a six-month period in 2010. These data were linked to the Discharge Abstract Database and National Ambulatory Care Reporting System data sets to develop five different case definition scenarios for estimating prevalence.

Results

The conditions with the highest estimated prevalences in these care settings in Canada were Alzheimer’s disease and related dementias, Parkinson’s disease, epilepsy, and traumatic brain injury. However, there were notable cross-sector differences in the prevalence of each condition, and regional variations. Prevalence estimates based on acute hospital administrative data alone were substantially lower for all conditions evaluated.

Conclusions

The proportion of persons with neurological conditions in non-acute health care settings in Canada is substantially higher than is generally reported for the general population. It is essential for these care settings to have the expertise and resources to respond effectively to the strengths, preferences, and needs of the growing population of persons with neurological conditions. The use of hospital or emergency department records alone is likely to substantially underestimate the true prevalence of neurological conditions across the continuum of care. However, interRAI assessment records provide a helpful source of information for obtaining these estimates in nursing home, home care, and mental health settings.

【 授权许可】

   
2014 Danila et al.; licensee BioMed Central Ltd.

【 图 表 】

Figure 1.

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