Predictors of receiving therapy among very low birth weight 2-year olds eligible for Part C early intervention in Wisconsin

BMC Pediatrics

Mari Palta³  Mona Sadek-Badawi³  Aggie Albanese³  Stephanie Robert¹  Beth Marie McManus² 

[1] Department of Social Work, University of Wisconsin-Madison, Madison, WI, USA;Department of Health Systems, Management & Policy, Colorado School of Public Health, 13001 E. 17th Place, MS B117, Aurora, CO 80045, USA;Department of Population Health Sciences, University of Wisconsin-Madison, Madison, WI, USA

关键词: Neighborhood disadvantage;    Physical therapy;    Early intervention;    Very low birth weight;   

Others  :  1144693
DOI  :  10.1186/1471-2431-13-106

 received in 2012-08-14, accepted in 2013-07-02,  发布年份 2013

【 摘 要 】

Background

The Individuals with Disabilities Education Act (Part C) authorizes states to establish systems to provide early intervention services (e.g., therapy) for children at risk, with the incentive of federal financial support. This study examines family and neighborhood characteristics associated with currently utilizing physical, occupational, or speech therapy among very low birthweight (VLBW) 2-year-old children who meet Wisconsin eligibility requirements for early intervention services (EI) due to developmental delay.

Methods

This cross-sectional analysis used data from the Newborn Lung Project, a regional cohort study of VLBW infants hospitalized in Wisconsin’s newborn intensive care units during 2003–2004. We included the 176 children who were age two at follow-up, and met Wisconsin state eligibility requirements for EI based on developmental delay. Exact logistic regression was used to describe child and neighborhood socio-demographic correlates of parent-reported receipt of therapy.

Results

Among VLBW children with developmental delay, currently utilizing therapy was higher among children with Medicaid (aOR = 5.3, 95% CI: 1.3, 28.3) and concomitant developmental disability (aOR = 5.2, 95% CI: 2.1, 13.3) and lower for those living in a socially more disadvantaged neighborhood (aOR=0.48, 95% CI: 0.21, 0.98, per tertile).

Conclusions

Among a sample of VLBW 2-year olds with developmental delays who are EI-eligible in WI, 4 out of 5 were currently receiving therapy, per parent report. Participation in Medicaid positively influences therapy utilization. Children with developmental difficulties who live in socially disadvantaged neighborhoods are at highest risk for not receiving therapy.

【 授权许可】

   
2013 McManus et al.; licensee BioMed Central Ltd.

【 图 表 】

Figure 1.

【 参考文献 】

• [1]Taylor HG, Minich NM, Klein N, Hack M: Longitudinal outcomes of very low birthweight: Neuropsychological findings. J Int Neuropsychol Soc 2004, 10:149-163.
• [2]Butler AS, Board on Health Sciences Policy: Neurodevelopmental, health, and family outcomes for infants born preterm. In Preterm Birth: Causes, Consequences, and Prevention. Edited by Behrman RE. Washington, DC: The National Academies Press; 2006:346-397.
• [3]Howson CP, Merialdi M, Lawn JE, Requejo JH, Say L: March of Dimes White Paper on Preterm Birth The Global and Regional Toll. White Plains, NY: March of Dimes Foundation; 2009.
• [4]PL 108–446. Individuals with Disabilities Education Act, Reauthorization 2004. Available from: http://www.copyright.gov/legislation/pl108-446.pdf webcite
• [5]Spiker D, Hebbeler K, Wagner M, Cameto R, McKenna P: A framework for describing variation in state early intervention systems. Top Early Child Spec Educ 2000, 20:195-207.
• [6]Bailey DB, Hebbeler K, Scarborough A, Spiker D, Mallik S: First experiences with early intervention: A national perspective. Pediatrics 2004, 113:887-896.
• [7]Blauw-Hospers C, Hadders-Algra M: A systematic review of the effects of early intervention on motor development. Dev Med Child Neurol 2005, 47:421-432.
• [8]Spittle A, Orton J, Doyle LW, Boyd R: Early developmental intervention programs post hospital discharge to prevent motor and cognitive impairments in preterm infants. Cochrane Database Syst Rev 2007., 2007
• [9]Feinberg E, Silverstein M, Donahue S: The impact of race on participation in Part C early intervention services. J Dev Behav Pediatr 2011, 32(4):284-291.
• [10]Rosenberg SA, Zhang D, Robinson CC: Prevalence of Developmental Delays and Participation in Early Intervention Services for Young Children. Pediatrics 2008, 121(6):1503-1509.
• [11]Medicaid and CHIP Program InformationRetrived from: http://www.medicaid.gov/Medicaid-CHIP-Program-Information/By-Population/Children/Children.html webcite
• [12]The Commonwealth Fund: EPSDT: An Overview. 2005. Retrieved from: http://www.commonwealthfund.org/Content/Publications/Data-Briefs/2005/Sep/EPSDT--An-Overview.aspx webcite
• [13]Hill KS, Freeman LC, Yucel RM: Unmet need among children with special health care needs in Massachusetts. Matern Child Health J 2008, 12:650-661.
• [14]Warfield ME, Gulley S: Unmet Need and Problems Accessing Specialty Medical and Related Services Among Children with Special Health Care Needs. Matern Child Health J 2006, 10(2):201-216.
• [15]Barfield WD, Clements KM, Lee KG, Kotelchuck M, Wilbur N, Wise PH: Using linked data to assess patterns of early intervention (EI) referral among very low birth weight infants. Matern Child Health J 2008, 12(1):24-33.
• [16]Greer M, Taylor A, Mackey Andrews SD: A Framework for Developing and Sustaining a Part C Finance System (NECTAC Notes No.23). Chapel Hill: The University of North Carolina, FPG Child Development Institute, National Early Childhood Technical Assistance Center; 2007.
• [17]Infant and Toddlers Association: Part C Implementation: State Challenges and Responses. IDEA Infant and Toddler Coordinators Association. 2009. Retrieved from: http://www.ideainfanttoddler.org/pdf/2011_State_Challenges.pdf webcite
• [18]Hebbeler K, Spiker D, Mallik S, Scarborough A, Simeonsson R: National Early Intervention Longitudinal Study Demographic Characteristics of Children and Families Entering Early Intervention. Menlo Park, CA: SRI International; 2003.
• [19]McManus BM, McCormick MC, Acevedo-Garcia D, Ganz M, Hauser-Cram P: The Effect of State Early Intervention (EI) Eligibility on EI Participation Among Children with Special Health Care Needs. Pediatrics 2009, 124:S368-S374.
• [20]Wang CJ, Elliott MN, Rogowski J, Lim N, Schuster M: Factors influencing the enrollment of eligible extremely-low-birth-weight children in the Part C early intervention program. Acad Pediatr 2009, 9(4):283-287.
• [21]Dietz RD: The estimation of neighborhood effects in the social sciences: An interdisciplinary approach. Soc Sci Res 2002, 31:539-575.
• [22]Kim C, Disara K, Pfeiffer M, Kerker B, McVeigh KH: Effects of individual and neighborhood characteristics on the timeliness of provider designation for Early Intervention Services in New York City. J Dev Beh Ped 2009, 30:38-49.
• [23]Shakelford J: State and Jurisdictional Eligibility Definitions for Infants and Toddlers with Disabilities Under IDEA. NECTAS Notes 2006, 21:43-47. Retrieved from: http://ectacenter.org/~pdfs/pubs/nnotes21.pdf webcite
• [24]Haley SM, Coster WJ, Ludlow LH, Haltiwanger JT, Andrellos PJ: PEDI Manual: Pediatric Evaluation of Disability Inventory (PEDI), version 1, development, standardization and administration manual. Boston, MA: New England Medical Center-PEDI Research Group; 1992.
• [25]Guidelines for Best Practices in Determining Eligibility Based on Children’s Physical Development. Retrieved from: http://www.waisman.wisc.edu/birthto3/Txt/finemotor.html webcite
• [26]Richardson DK, Corcoran JD, Escobar GJ, Lee SK: SANP-II and SNAPPE-II: simplified newborn illness severity and mortality risk scores. J Pediatr 2001, 138:92-100.
• [27]Tabachnick BG, Fidell LS: Principal components and factor analysis, using multivariate statistics. Northridge, CA: California State University, Harper Collins College Publishers; 1996:635-708.
• [28]Buka SL, Brennan RT, Rich-Edwards JW, Raudenbush SW, Earls F: Neighborhood support and the birth weight of urban infants. AJE 2003, 157(1):1-8.
• [29]McManus BM, Robert SA, Albanese A, Sadek-Bawadi M, Palta M: The relationship between neighborhood disadvantage and social function in Wisconsin 2- and 3- year olds born with very low birth weight. Arch Pediatr Adolesc Med 2010, 185:e1-e7.
• [30]SAS v9.2. Cary, NC, USA: SAS Institute Inc; 2002–2003.
• [31]Ngui EM, Flores G: Satisfaction With Care and Ease of Using Health Care Services Among Parents of Children With Special Health Care Needs: The Roles of Race/Ethnicity, Insurance, Language, and Adequacy of Family-Centered Care. Pediatrics 2005, 117:1184-1996.
• [32]Bussing R, Leon CE, Mason DM, Sinha K: Agreement between CASA parent reports and provider records of children’s ADHD services. J Behav Health Serv Res 2003, 30(4):462-469.
• [33]D’Souza-Vazirani D, Minkovitz CS, Strobino DM: Validity of maternal report of acute health care use for children younger than 3 years. Arch Pediatr Adolesc Med 2005, 159:167-172.
• [34]Forrest CB, Riley AW, Vivier PM, Gordon NP, Starfield B: Predictors of children’s healthcare use: The value of child versus parental perspectives on healthcare needs. Medical Care 2004, 42(3):232-238.
• [35]Hoagwood K, Horwitz S, Stiffman A, et al.: Concordance between parent reports of children’s mental health services and service records: The services assessment for children and adolescents (SACA). J Child Fam Stud 2000, 9(3):315-331.
• [36]Wilson-Costello D, Friedman H, Minich N, Fanaroff A, Hack M: Improved survival rates with increased neurodevelopmental disability for extremely low birth weight infants in the 1990’s. Pediatrics 2005, 115:997-1003.