期刊论文详细信息
BMC Medical Ethics
Opinions about euthanasia and advanced dementia: a qualitative study among Dutch physicians and members of the general public
Ghislaine JMW van Thiel1  Agnes van der Heide3  Heleen AM Weyers5  Nienke de Graeff1  Suzanne van de Vathorst4  Donald G van Tol2  Judith AC Rietjens3  Johannes JM van Delden1  Natasja JH Raijmakers3  Pauline SC Kouwenhoven1 
[1]Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Room number STR.5.133, P.O. Box 85500, 3508 GA, Internal post number STR.6.131 Utrecht, The Netherlands
[2]Department of General Practice, University Medical Center Groningen, Groningen, The Netherlands
[3]Department of Public Health, Erasmus Medical Center Rotterdam, Rotterdam, The Netherlands
[4]Department of Ethics and Philosophy of Medicine, Erasmus Medical Center Rotterdam, Rotterdam, The Netherlands
[5]Department of Legal Theory, University of Groningen, Groningen, The Netherlands
关键词: Law;    Ethics;    Public opinion;    End-of-life decisions;    Dementia;    Euthanasia;   
Others  :  1122037
DOI  :  10.1186/1472-6939-16-7
 received in 2014-03-22, accepted in 2015-01-02,  发布年份 2015
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【 摘 要 】

Background

The Dutch law states that a physician may perform euthanasia according to a written advance euthanasia directive (AED) when a patient is incompetent as long as all legal criteria of due care are met. This may also hold for patients with advanced dementia. We investigated the differing opinions of physicians and members of the general public on the acceptability of euthanasia in patients with advanced dementia.

Methods

In this qualitative study, 16 medical specialists, 19 general practitioners, 16 elderly physicians and 16 members of the general public were interviewed and asked for their opinions about a vignette on euthanasia based on an AED in a patient with advanced dementia.

Results

Members of the general public perceived advanced dementia as a debilitating and degrading disease. Physicians emphasized the need for direct communication with the patient when making decisions about euthanasia. Respondent from both groups acknowledged difficulties in the assessment of patients’ autonomous wishes and the unbearableness of their suffering.

Conclusion

Legally, an AED may replace direct communication with patients about their request for euthanasia. In practice, physicians are reluctant to forego adequate verbal communication with the patient because they wish to verify the voluntariness of patients’ request and the unbearableness of suffering. For this reason, the applicability of AEDs in advanced dementia seems limited.

【 授权许可】

   
2015 Kouwenhoven et al.; licensee BioMed Central.

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【 参考文献 】
  • [1]KNMG: Richtlijn euthanasie bij een verlaagd bewustzijn. 2010. [14-05-2013]; Available from: http://knmg.artsennet.nl/Publicaties/KNMGpublicatie/Richtlijn-euthanasie-bij-een-verlaagd-bewustzijn.htm webcite
  • [2]KNMG: Tijdig spreken over het levenseinde. 2012. [14-05-2013]; Available from: http://knmg.artsennet.nl/Publicaties/KNMGpublicatie/Handreiking-Tijdig-spreken-over-het-levenseinde-2012.htm webcite
  • [3]de Boer ME, Hertogh CM, Droes RM, Jonker C, Eefsting JA: Advance directives in dementia: issues of validity and effectiveness. Int Psychogeriatr 2010, 22(2):201-208.
  • [4]Kouwenhoven PS, Raijmakers NJ, Delden JJ, Rietjens J, Schermer MH, van Thiel GJ, et al.: Opinions of health care professionals and the public after eight years of euthanasia legislation in the Netherlands: A mixed method approach. Palliat Med 2013, 27(3):273-805.
  • [5]Strauss AL, Corbin J: Basics of qualitative research: techniques and procedures for developing grounded theory. Thousand Oaks: Sage; 1998.
  • [6]Tomlinson E, Stott J: Assisted dying in dementia: a systematic review of the international literature on the attitudes of health professionals, patients, carers and the public, and the factors associated with these. Int J Geriatr Psychiatry 2015, 30(1):10-20.
  • [7]Rietjens JA, van der Heide A, Onwuteaka-Philipsen BD, van der Maas PJ, van der Wal G: A comparison of attitudes towards end-of-life decisions: survey among the Dutch general public and physicians. Soc Sci Med 2005, 61(8):1723-1732.
  • [8]Vayda E, Mindell WR, Mueller CB, Yaffe B: Measuring surgical decision-making with hypothetical cases. Can Med Assoc J 1982, 127(4):287-290.
  • [9]de Boer ME, Droes RM, Jonker C, Eefsting JA, Hertogh CM: Advance directives for euthanasia in dementia: do law-based opportunities lead to more euthanasia? Health Policy 2010, 98(2–3):256-262.
  • [10]de Boer ME, Droes RM, Jonker C, Eefsting JA, Hertogh CM: Advance directives for euthanasia in dementia: how do they affect resident care in Dutch nursing homes? Experiences of physicians and relatives. J Am Geriatr Soc 2011, 59(6):989-996.
  • [11]Rurup ML, Pasman HR, Onwuteaka-Philipsen BD: Advance euthanasia directives in dementia rarely carried out. Qualitative study in physicians and patients. Ned Tijdschr Geneeskd 2010, 154:A1273.
  • [12]Livingston G, Cooper C, Woods J, Milne A, Katona C: Successful ageing in adversity: the LASER-AD longitudinal study. J Neurol Neurosurg Psychiatry 2008, 79(6):641-645.
  • [13]van Marwijk H, Haverkate I, van Royen P, The AM: Impact of euthanasia on primary care physicians in the Netherlands. Palliat Med 2007, 21(7):609-614.
  • [14]Rietjens AC, van Tol DG, Schermer M, van der Heide A: Judgement of suffering in the case of a euthanasia request in The Netherlands. J Med Ethics 2009, 35:502-507.
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