期刊论文详细信息
BMC Medical Ethics
Engaging with Community Advisory Boards (CABs) in Lusaka Zambia: perspectives from the research team and CAB members
Keymanthri Moodley1  Alwyn Mwinga1 
[1] Centre for Medical Ethics and Law, Stellenbosch University, Stellenbosch, South Africa
关键词: research team;    Community based participatory research;    Community advisory board;    Community engagement;   
Others  :  1212273
DOI  :  10.1186/s12910-015-0031-y
 received in 2014-10-20, accepted in 2015-05-20,  发布年份 2015
PDF
【 摘 要 】

Background

The use of a Community Advisory Board (CAB) is one method of ensuring community engagement in community based research. To identify the process used to constitute CABs in Zambia, this paper draws on the perspectives of both research team members and CAB members from research groups who used CABs in Lusaka. Enabling and restricting factors impacting on the functioning of the CAB were identified.

Methods

All studies approved by the University of Zambia Bioethics Research Committee (UBNZABREC) from 2008 – 2012 were reviewed to identify those studies that were likely to include a CAB. Eight teams with studies that included a CAB were identified. For each of these studies, consent was obtained to conduct an informal interview with a research team member and to obtain contact details for one CAB member. In total 14 interviews were conducted with 8 research team members and 6 CAB members from 12–30 August 2013.

Results

Identification of potential CAB members from the community and their participation in developing the terms of reference for CABs was perceived to have contributed to the success of the CAB. Due to the trust that the community had in members of their community the CABs were then in a stronger position to influence community participation in the research. Training of CAB members was identified as a factor that enhanced the functioning of a CAB. Lack of commitment and low literacy levels of CAB members posed a threat to the role of the CAB. Although compensation in the form of a stipend was not provided, CAB members were provided with transport reimbursements for attending meetings.

Conclusions

Selection of CAB members from within the community contributed to community confidence in the CAB, enhancing its ability to act as an effective link between study team and community. This contributed positively to the conduct of the study and enhanced community awareness and acceptance of the research. However, establishment of study specific CABs has the potential to compromise CAB independence due to support provided by the research team in the form of transport reimbursements and other forms of support. Consideration should be given to establishing community wide Community Advisory Boards that could function across a range of studies to increase independent objective decision-making.

【 授权许可】

   
2015 Mwinga and Moodley; licensee BioMed Central.

【 预 览 】
附件列表
Files Size Format View
20150614022320578.pdf 400KB PDF download
【 参考文献 】
  • [1]Israel BA, Schultz AJ, Parker EA, Becker AB. Review of Community-Based Research: Assessing Partnership Approaches to Improving Public Health. Annu Rev Public Health. 1998; 19:173-202.
  • [2]Crawford E. The Role of Community Advisory Boards in Project Eban. J Acquir Immune Defic Syndr. 2008; 49 Suppl 1:S68-74.
  • [3]Spiers H.R Community Consultation and AIDS Clinical Trials part 1 IRB: Ethics and Human Research 1991;13(3):7–10. Accessed on http://www.jstor.org/stable/3564280.
  • [4]Strauss RP, Sengupta S, Quinn SC, Goeppinger J, Spaulding C, Kegeles SM, Millett G. The Role of Community Advisory Boards: Involving Communities in the Informed Consent Process. Am J Public Health. 2001; 91(12):1938-1943.
  • [5]Reddy P, Buchanan D, Sifunda S, James S, Naidoo N. The role of community advisory boards in health research: Divergent views in the South African experience. Journal of Social Aspects of HIV/AIDS. 2010; 7(3):2-8.
  • [6]Morin S.F, Morfit S, Majorana A, Aramrattana A, Goicochea P, Mutsambi J.M, Robbions J.L, Richards T.A. Building Community Partnerships: case studies of Community Advisory Boards at research sites in Peru, Zimbabwe and Thailand. Clin Trials 2008;5:147–156 Accessed at http://ctj.sagepub.com/content/5/2/147.
  • [7]Shubis K, Juna O, Sharifu R, Burgess B, Abdulla S. Challenges of establishing a Community Advisory Board (CAB) in a low-income, low-resource setting: experiences from Bagamoyo, Tanzania. Health Research Policy and Systems 2009;7 (16) doi:10.1186/1478-4505-7-16. Accessed at http://www.health-policy-systems.com/content/7/1/16.
  • [8]Newman S.D, Andrews J.O, Magwood G.S, Jenkins C, Cox M.J, Williamson D.C Community Advisory Boards in Community-based Participatory Research: a synthesis of Best processes. Public Health Research, Practice and Policy 2011;8(3):1–12. Accessed at http://www.cdc.gov/pcd/issues/2011/may/10_0045.HTM.
  • [9]Lo B, Bayer R Establishing Ethical Trials for Treatment and Prevention of AIDS in Developing countries. British Medical Journal 2003; 327 (7410): 337 – 339. Accessed at http://www.jstor.org/stable/25455224.
  • [10]Kamuya DM, Marsh V, Kombe FK, Geissler W, Molyneux SC. Engaging Communities to Strengthen Research Ethics in Low-income Settings: Selection and Perceptions of Members of A Network of Representatives in Coastal Kenya. Dev World Bioeth. 2013; 13(1):10-20.
  • [11]Morin SF, Maiorana A, Koester KA, Sheon NM, Richards T. A Community Consultation in HIV Prevention Research: a Study of Community Advisory Boards at 6 Research Sites. JAIDS. 2003; 33(5):513-20.
  • [12]Ntshanga SP, Ngcobo PS, Mabaso MLH. Establishment of a Community Advisory Board (CAB) for Tuberculosis control and Research in the Inanda, Ntuzuma and KwaMashu (INK) area of KwaZulu-Natal. South Africa Health Policy. 2010; 95:211-5.
  • [13]Pratt B, Lwin KM, Zion D, Nosten F, Loff B, Cheah PY. Exploitation and community Engagement: Can community Advisory Boards Successfully assume a role minimising Exploitation in International Research. Dev World Bioeth. 2013; 2013:1471-8847.
  • [14]Lwin KM, Cheah PY, Cheah PK, White NJ, Day NPJ, Nosten F, Parker M Motivations and perceptions of community advisory boards in the ethics of medical research: the case of the Thai-Myanmar boarder. BMC Medical ethics 2014;15:12 accessed at http://www.biomedcentral.com/1472-6939/15/12.
  • [15]Manda-Taylor L. Establishing community advisory boards for clinical trial research in Malawi: engendering ethical conduct in research. Malawi Med J. 2013; 25(4):96-100.
  • [16]Quinn SQ. Protecting Human subjects: the role of community Advisory Boards. Am J Public Health. 2004; 94(6):918-22.
  • [17]Marsh V, Kamuya D, Rowa Y, Gikonyo C, Molyneux S. Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, Kenya. Soc Sci Med. 2008; 67:721-33.
  文献评价指标  
  下载次数:4次 浏览次数:14次