Perspectives of carers on medication management in dementia: lessons from collaboratively developing a research proposal

BMC Research Notes

Ian D Maidment³  Chris Fox¹  Susanne Sorensen⁵  Cornelius Katona⁴  Hilary Pinnock⁶  Sarah Mapes²  Fiona Poland⁷ 

[1] Psychiatry, Medical School, University of East Anglia, Norwich Research Park, NR4 7TJ Norwich, UK;NHS Anglia CSU (Commissioning Support Unit), Lakeside 400, Old Chapel Way, Broadland Business Park, NR7 0WG Norwich, UK;Pharmacy, Medicines and Devices in Ageing Cluster Lead, Aston Research Centre for Healthy Ageing (ARCHA), School of Life and Health Sciences, Aston University, B4 7ET Aston Triangle, UK;Division of Psychiatry, University College London, Gower Street, WC1E 6BT London, UK;Alzheimer's Society, Devon House, 58 St Katharine’s Way, E1W 1LB London, UK;Allergy and Respiratory Research Group, Centre for Population Health Sciences, University of Edinburgh. Doorway 3, Medical School, Teviot Place, EH8 9AG Edinburgh, UK;Social Research Methodology, School of Rehabilitation Services, University of East Anglia, Norwich Research Park, NR4 7TJ Norwich, UK

关键词: Family carers;    Medicines management;    Service user engagement;    Dementia;   

Others  :  1131861
DOI  :  10.1186/1756-0500-7-463

 received in 2014-06-06, accepted in 2014-07-08,  发布年份 2014

【 摘 要 】

Background

The need for carers to manage medication-related problems for people with dementia living in the community raises dilemmas, which can be identified by carers and people with dementia as key issues for developing carer-relevant research projects.

A research planning Public Patient Involvement (PPI) workshop using adapted focus group methodology was held at the Alzheimer’s Society’s national office, involving carers of people with dementia who were current members of the Alzheimer’s Society Research Network (ASRN) in dialogue with health professionals aimed to identify key issues in relation to medication management in dementia from the carer viewpoint. The group was facilitated by a specialist mental health pharmacist, using a topic guide developed systematically with carers, health professionals and researchers. Audio-recordings and field notes were made at the time and were transcribed and analysed thematically. The participants included nine carers in addition to academics, clinicians, and staff from DeNDRoN (Dementias and Neurodegenerative Diseases Research Network) and the Alzheimer’s Society.

Findings

Significant themes, for carers, which emerged from the workshop were related to: (1) medication usage and administration practicalities, (2) communication barriers and facilitators, (3) bearing and sharing responsibility and (4) weighing up medication risks and benefits. These can form the basis for more in-depth qualitative research involving a broader, more diverse sample.

Discussion

The supported discussion enabled carer voices and perspectives to be expressed and to be linked to the process of identifying problems in medications management as directly experienced by carers. This was used to inform an agenda for research proposals which would be meaningful for carers and people with dementia.

【 授权许可】

   
2014 Poland et al.; licensee BioMed Central Ltd.

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