期刊论文详细信息
BMC Public Health
Informing the development of an online self-management program for men living with HIV: a needs assessment
Sonya Girdler2  Sally Rowell5  Sean Slavin3  Julian Elliott4  Karalyn McDonald6  Tanya Millard1 
[1] Department of Infectious Diseases, Monash University, Melbourne, Australia;School of Occupational Therapy and Social Work, Centre for Research into Disability and Society, Curtin University, Perth, Australia;Centre for Social Research in Health, University of New South Wales, Sydney, Australia;Burnet Institute, Melbourne, Australia;Hepatitis WA, Perth, Australia;Australian Research Centre in Sex, Health and Society, La Trobe University, Melbourne, Australia
关键词: Positive Outlook;    Needs assessment;    Self-management;    Psychosocial issues;    Quality of life;    Men;    HIV/AIDS;   
Others  :  1122905
DOI  :  10.1186/1471-2458-14-1209
 received in 2014-04-25, accepted in 2014-11-10,  发布年份 2014
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【 摘 要 】

Background

The aim of this mixed methods study was to conduct a multifaceted needs assessment to inform the development of an online self-management program for men living with HIV. The objectives were to describe the health-related quality of life for men living with HIV, the impact of living with HIV, and the perceived problem areas and service and support needs of these men. The needs assessment was conducted in accordance with the PRECEDE model for health promotion program planning.

Methods

A survey assessing the quality of life of men living with HIV (n = 72) was conducted and results were compared to Australian normative data. Focus groups were also undertaken with men living with HIV (n = 11) and a multidisciplinary team of service providers working in the area of HIV (n = 11). Focus groups enabled an in-depth description of the impact of HIV on quality of life and perceived problem areas in daily life.

Results

HIV-positive men experience significantly lower quality of life when compared with Australian normative data, particularly in those domains concerned with social and emotional aspects of quality of life. Qualitative focus groups yielded an overarching theme ‘The psychosocial impact of HIV’ which contained three sub-themes; (1) Life before and after HIV – a changed identity and its repercussions; (2) Resilience and the importance of social support; (3) Negotiating the practicalities – intimate relationships and disclosure.

Conclusions

The findings from this needs assessment highlight the need to target socio-emotional contexts of HIV positive men’s daily lives to improve quality of life and well-being. Intervention priorities for the proposed online self-management program include: (1) managing the emotional impact of HIV; (2) disclosing HIV status to family and friends; (3) maintaining social connectedness; (4) managing HIV within intimate relationships; and (5) disclosure of HIV status to intimate partners.

【 授权许可】

   
2014 Millard et al.; licensee BioMed Central Ltd.

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【 参考文献 】
  • [1]Jansson J, Wilson DP: Projected demographic profile of people living with HIV in Australia: planning for an older generation. PloS One 2012, 7(8):e38334.
  • [2]Gifford AL, Sengupta S: Self-management health education for chronic HIV infection. AIDS Care 1999, 11(1):115-130.
  • [3]Smith SR, Rublein JC, Marcus C, Brock TP, Chesney MA: A medication self-management program to improve adherence to HIV therapy regimens. Patient Educ Couns 2003, 50:187-199.
  • [4]Millard T, Elliott J, Girdler S: Self management education programs for people living with HIV/AIDS: a systematic review. AIDS Patient Care STDS 2013, 27(2):103-113.
  • [5]Lorig KR, Holman HR: Self-management education: history, definition, outcomes and mechanisms. Ann Behav Med 2003, 26(1):1-7.
  • [6]Shively M, Smith TL, Bormann J, Gifford AL: Evaluating self-efficacy for HIV disease management skills. AIDS Behav 2002, 6(4):371-379.
  • [7]Norris SL, Engelgua MM, Venkat Narayan KM: Effectivness of self-management training in type 2 diabetes. Diabetes Care 2001, 24(3):561-587.
  • [8]Lorig KR, Ritter PL, Laurent DD, Plant K: The internet-based arthritis self-management program: a one-year randomized trial for patients with arthritis or fibromyalgia. Arthritis Care Res 2008, 59(7):1009-1017.
  • [9]Girdler SJ, Boldy DP, Dhaliwal SS, Crowley M, Packer TL: Vision self-management for older adults: a randomised controlled trial. Br J Ophthalmol 2010, 94:223-228.
  • [10]Lorig KR, Ritter P, Stewart AL, Sobel DS, William Brown B, Bandura A, Gonzales VM, Laurent DD, Holman HR: Chronic disease self-management program: 2-year health status and health care utilization outcomes. Med Care 2001, 39(11):1217-1233.
  • [11]Borubeau J, Julien M, Maltais F, Rouleau M, Beaupre A, Begin R, Renzi P, Nault D, Borycki E, Schwartzman K, Singh R, Collet J: Reduction of hospital utilization in patients with chronic obstructive pulmonary disease. Arch Int Med 2003, 163:585-591.
  • [12]Rueda S, Park-Wyllie LY, Bayoumi A, Tynan AM, Antoniou T, Rourke S, Glazier R: Patient support and education for promoting adherence to highly active antiretroviral therapy for HIV/AIDS. Cochrane Database Syst Rev 2006, 3(3):CD001442.
  • [13]O’Brien K, Nixon S, Glazier R, Tynan AM: Progressive resistive exercise interventions for adults living with HIV/AIDS. Cochrane Database Syst Rev 2004, 4(8):CD004248.
  • [14]O’Brien K, Nixon S, Tynan AM, Glazier R: Aerobic exercise interventions for adults living with HIV/AIDS. Cochrane Database Syst Rev 2010, 8(8):CD001796.
  • [15]Swendeman D, Ingram BL, Rotheram-Borus M: Common elements in self-management of HIV and other chronic illnesses: an integrative framework. AIDS Care 2009, 21(10):1321-1334.
  • [16]Jones SC, Donovan RJ: Does theory inform practice in health promotion in Australia? Health Educ Rep 2004, 19(1):1-14.
  • [17]Green L, Kreuter M: The PRECEDE–PROCEED model. In Health Promotion Planning: An Educational Approach. 3rd edition. Mountain View (CA): Mayfield Publishing Company; 1999:32-43.
  • [18]Gilmore GD, Campbell MD: Needs and Capacity Assessment Strategies for Health Education and Health Promotion. 3rd edition. Sudbury, MA: Jones and Bartlett; 2005.
  • [19]Gupta K, Sleezer CM, Russ-Eft DF: A Practical Guide to Needs Assessment. 2nd edition. San Francisco, CA: Pfeiffer; 2007.
  • [20]Bartholomew LK, Parcel GS, Kok G, Gottlieb NH, Fernandez ME: Planning Health Promotion Programs: An Intervention Mapping Approach. San Fracisco, CA: Jossey-Bass; 2011.
  • [21]Gielen AC, McDonald EM, Gary TL, Bone LR: Using the PRECEDE-PROCEED Model to Apply Health Behavior Theories. 2008, 407-433. [Health Behavior and Health Education: Theory, Research, and Practice]
  • [22]Ware JE Jr, Maruish ME: SF-36 Health Survey. In The use of Psychological Testing for Treatment Planning and Outcomes Assessment. 2nd edition. Mahwah, NJ US: Lawrence Erlbaum Associates Publishers; 1999:1227-1246.
  • [23]Delate T, Coons SJ: The discriminative ability of the 12-item short form health survey (SF-12) in a sample of persons infected with HIV. Clin Ther 2000, 22(9):1112-1120.
  • [24]Lincoln YS, Guba EG: Naturalistic Inquiry. 75th edition. Beverly Hills, CA: SAGE Publications, Incorporated; 1985.
  • [25]Statistics ABo: National Health Survey: SF-36 Population Norms Australia (No. 43990.0). Canberra: Australian Capital Territory; 1995.
  • [26]Braun V, Clarke V: Using thematic analysis in psychology. Qual Res Psychol 2006, 3(2):77-101.
  • [27]Emlet CA: A comparison of HIV stigma and disclosure patterns between older and younger adults living with HIV/AIDS. AIDS Patient Care STDS 2006, 20:350-358.
  • [28]Mahajan AP, Sayles JN, Patel VA, Remien RH, Ortiz D, Szekeres G, Coates TJ: Stigma in the HIV/AIDS epidemic: a review of the literature and recommendations for the way forward. AIDS (London, England) 2008, 22(Suppl 2):S67.
  • [29]Webel AR, Longenecker CT, Gripshover B, Hanson JE, Schmotzer BJ, Salata RA: Age, stress, and isolation in older adults living with HIV. AIDS Care 2014, 26(5):523-531.
  • [30]Mayfield-Arnold EM, Rice E, Flannery D, Rotheram-Borus MJ: HIV disclosure among adults living with HIV. AIDS Care 2008, 20:80-92.
  • [31]Smith R, Rosetto K, Peterson BL: A meat-analysis of disclosure of one’s HIV-positive status, stigma and social support. AIDS Care 2008, 20:1266-1275.
  • [32]Kalichman SC, DiMarco M, Austin J, Luke W, DiFonzo K: Stress, social support, and HIV-status disclosure to family and friends among HIV-positive men and women. J Behav Med 2003, 26(4):315-332.
  • [33]Rutledge SE: Single-session motivational enhancement counseling to support change toward reduction of HIV transmission by HIV positive persons. Arch Sex Behav 2007, 36(2):313-319.
  • [34]Grierson J, Power J, Pitts M, Croy S, Clement T, Thorpe R, McDonald K: HIV Futures 6: Making Positive Lives Count. Melbourne, Australia: Latrobe University; 2009.
  • [35]Brashers DE, Neidig JL, Russel JA, Cardillo JA, Haas SM, Dobbs LK, Garland M, McCartney B, Nemeth S: The medical, personal, and social causes of uncertainty in HIV illness. Issues Ment Health Nurs 2003, 24:497-522.
  • [36]Crepaz N, Marks G: Serostatus disclosure, sexual communication and safer sex in HIV-positive men. AIDS Care 2003, 15:379-387.
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