期刊论文详细信息
BMC Public Health
Is educational attainment related to end-of-life decision-making? A large post-mortem survey in Belgium
Luc Deliens1  H Roeline W Pasman1  Reginald Deschepper2  Koen Pardon2  Joachim Cohen2  Judith AC Rietjens2  Kenneth Chambaere2 
[1]Department of Public and Occupational Health, EMGO Institute for Health and Care Research, VU University Medical Centre, Amsterdam, The Netherlands
[2]End-of-life Care Research Group, Vrije Universiteit Brussel & Ghent University, Laarbeeklaan 103, Brussel 1090, Belgium
关键词: Euthanasia;    End-of-life decisions;    End-of-life care;    Cultural capital;    Socio-economic inequalities;    Educational attainment;   
Others  :  1161572
DOI  :  10.1186/1471-2458-13-1055
 received in 2013-03-12, accepted in 2013-11-05,  发布年份 2013
PDF
【 摘 要 】

Background

Educational attainment has been shown to influence access to and quality of health care. However, the influence of educational attainment on decision-making at the end of life with possible or certain life-shortening effect (ELDs ie intensified pain and symptom alleviation, non-treatment decisions, euthanasia/physician-assisted suicide, and life-ending acts without explicit request) is scarcely studied. This paper examines differences between educational groups pertaining to prevalence of ELDs, the decision-making process and end-of-life treatment characteristics.

Method

We performed a retrospective survey among physicians certifying a large representative sample of Belgian deaths in 2007. Differences between educational groups were adjusted for relevant confounders (age, sex, cause of death and marital status).

Results

Intensified pain and symptom alleviation and non-treatment decisions are more likely to occur in higher educated than in lower educated patients. These decisions were less likely to be discussed with either patient or family, or with colleague physicians, in lower educated patients. A positive association between education and prevalence of euthanasia/assisted suicide (acts as well as requests) disappeared when adjusting for cause of death. No differences between educational groups were found in the treatment goal in the last week, but higher educated patients were more likely to receive opioids in the last day of life.

Conclusion

There are some important differences and possible inequities between educational groups in end-of-life decision-making in Belgium. Future research should investigate whether the found differences reflect differences in knowledge of and adherence to patient preferences, and indicate a discrepancy in quality of the end of life.

【 授权许可】

   
2013 Chambaere et al.; licensee BioMed Central Ltd.

【 预 览 】
附件列表
Files Size Format View
20150413032848289.pdf 241KB PDF download
Figure 1. 28KB Image download
【 图 表 】

Figure 1.

【 参考文献 】
  • [1]WHO: Commission on the Social Determinants of Health. Geneva: World Health Organisation; 2008:247. [Closing the gap in a generation: health equity through action on the social determinants of health]
  • [2]Nathanson CA: Who owns health inequalities? Lancet 2010, 375:274-275.
  • [3]Kawachi I, Subramanian SV, Almeida-Filho N: A glossary for health inequalities. J Epidemiol Community Health 2002, 56:647-52.
  • [4]Volandes AE, Paasche-Orlow MK: Health literacy, health inequality and a just healthcare system. Am J Bioeth 2007, 7:5-10.
  • [5]Smith P: Measuring Up: Improving Health System Performance in OECD Countries. Paris: OECD; 2002:380.
  • [6]Belgian Official Collection of the Laws: Law Concerning Euthanasia. 2002. [Dutch]
  • [7]George RJD, Finlay IG, Jeffrey D: Legalised euthanasia will violate the rights of vulnerable patients. BMJ 2005, 331:684-685.
  • [8]Materstvedt LJ, Clark D, Ellershaw J, Forde R, Gravgaard AMB, Muller Busch HC, Portai Sales J, Rapin CH: Euthanasia and physician-assisted suicide: a view from an EAPC Ethics Task Force. Palliat Med 2003, 17:97-101. discussion 102–79
  • [9]Materstvedt LJ: Euthanasia: on slippery slopes and vulnerable patients. Palliat Med 2003, 17:650-1.
  • [10]Belgian Official Collection of the Laws: Law Concerning Patient Rights. 2002. [Dutch]
  • [11]Belgian Official Collection of the Laws: Law Concerning Palliative Care. 2002.
  • [12]Kawachi I, Kennedy BP, Lochner K, Prothrow-Stith D: Social capital, income inequality, and mortality. Am J Public Health 1997, 87:1491-8.
  • [13]Mackenbach JP: Health Inequalities: Europe in Profile. Rotterdam: Erasmus MC; 2005:52.
  • [14]Shim JK: Cultural health capital: a theoretical approach to understanding health care interactions and the dynamics of unequal treatment. J Health Soc Behav 2010, 51:1-15.
  • [15]Abel T: Cultural capital and social inequality in health. J Epidemiol Community Health 2008, 62:e13.
  • [16]Swartz D: Culture and Power: The Sociology of Pierre Bourdieu. Chicago: Chicago University Press; 1997:342.
  • [17]Wineberg H, Werth JL: Physician-assisted suicide in Oregon: what are the key factors? Death Stud 2003, 27:501-18.
  • [18]Meier DE, Emmons CA, Wallenstein S, Quill T, Morrison RS, Cassel CK: A national survey of physician-assisted suicide and euthanasia in the United States. N Engl J Med 1998, 338:1193-201.
  • [19]Deliens L, Mortier F, Bilsen J, Cosyns M, Vander Stichele R, Vanoverloop J, Ingels K: End-of-life decisions in medical practice in Flanders, Belgium: a nationwide survey. Lancet 2000, 356:1806-11.
  • [20]Cohen J, Marcoux I, Bilsen J, Deboosere P, Van Der Wal G, Deliens L: European public acceptance of euthanasia: socio-demographic and cultural factors associated with the acceptance of euthanasia in 33 European countries. Soc Sci Med 2006, 63(1982):743-756.
  • [21]Decker IM, Reed PG: Developmental and contextual correlates of elders’ anticipated end-of-life treatment decisions. Death Stud 2005, 29:827-46.
  • [22]Volandes AE, Paasche-Orlow M, Gillick MR, Cook EF, Shaykevich S, Abbo ED, Lehmann L: Health literacy not race predicts end-of-life care preferences. J Palliat Med 2008, 11:754-62.
  • [23]Yun YH, Lee MK, Chang YJ, You CH, Kim S, Choi JS, Lim H-Y, Lee CG, Choi YS, Hong YS, Kim S-Y, Heo DS, Jeong HS: The life-sustaining treatments among cancer patients at end of life and the caregiver’s experience and perspectives. Support Care Cancer 2010, 18:189-96.
  • [24]Carr D, Khodyakov D: End-of-life health care planning among young-old adults: an assessment of psychosocial influences. Gerontol B Psychol Sci Soc Sci 2007, 62:S135-141.
  • [25]Van Wijmen MPS, Rurup ML, Pasman HRW, Kaspers PJ, Onwuteaka-Philipsen BD: Advance directives in the Netherlands: an empirical contribution to the exploration of a cross-cultural perspective on advance directives. Bioethics 2010, 24:118-26.
  • [26]White DB, Braddock CH, Bereknyei S, Curtis JR: Toward shared decision making at the end of life in intensive care units: opportunities for improvement. Arch Intern Med 2007, 167:461-7.
  • [27]Winzelberg GS, Hanson LC, Tulsky JA: Beyond autonomy: diversifying end-of-life decision-making approaches to serve patients and families. J Am Geriatr Soc 2005, 53:1046-50.
  • [28]Bossuyt N, Van den Block L, Cohen J, Meeussen K, Bilsen J, Echteld M, Deliens L, Van Casteren V: Is individual educational level related to end-of-Life care use? Results from a nationwide retrospective Cohort study in Belgium. J Palliat Med 2011, 14:1135-41.
  • [29]Carlson MDA, Bradley EH, Du Q, Morrison RS: Geographic access to hospice in the United States. J Palliat Med 2010, 13:1331-8.
  • [30]Chambaere K, Bilsen J, Cohen J, Pousset G, Onwuteaka-Philipsen B, Mortier F, Deliens L: A post-mortem survey on end-of-life decisions using a representative sample of death certificates in Flanders. Belgium: research protocol. BMC Public Health 2008, 8:299. BioMed Central Full Text
  • [31]Lunney JR, Lynn J, Foley DJ, Lipson S, Guralnik JM: Patterns of functional decline at the end of life. JAMA 2003, 289:2387-92.
  • [32]Veldink JH, Wokke JHJ, VanDer Wal G, Vianney De Jong JMB, VanDen Berg LH: Euthanasia and physician-assisted suicide among patients with amyotrophic lateral sclerosis in the Netherlands. N Engl J Med 2002, 346:1638-1644.
  • [33]Battin MP, Van der Heide A, Ganzini L, Van der Wal G, Onwuteaka-Philipsen BD: Legal physician-assisted dying in Oregon and the Netherlands: evidence concerning the impact on patients in “vulnerable” groups. J med ethics 2007, 33:591-7.
  • [34]Chambaere K, Bilsen J, Cohen J, Onwuteaka Philipsen BD, Mortier F, Deliens L: Trends in medical end-of-life decision making in Flanders, Belgium 1998-2001-2007. Med Decis Making 2011, 31:500-510.
  • [35]Rietjens JAC, VanDer Maas PJ, Onwuteaka Philipsen BD, Van Delden JJM, VanDer Heide A: Two decades of research on Euthanasia from the Netherlands. What have we learnt and what questions remain? J Bioethical Inq 2009, 6:271-283.
  • [36]Rietjens JAC, Deschepper R, Pasman R, Deliens L: Social science & medicine (1982). Soc Sci Med 2012, 74:1282-1287.
  • [37]Meeussen K, Van den Block L, Echteld M, Bossuyt N, Bilsen J, Van Casteren V, Abarshi E, Donker G, Onwuteaka-Philipsen B, Deliens L: Advance care planning in belgium and the Netherlands: a nationwide retrospective study via sentinel networks of general practitioners. J Pain Symptom Manage 2011, 42:565-77.
  • [38]Alano GJ, Pekmezaris R, Tai JY, Hussain MJ, Jeune J, Louis B, El-Kass G, Ashraf MS, Reddy R, Lesser M, Wolf-Klein GP: Factors influencing older adults to complete advance directives. Palliat Support Care 2010, 8:267-75.
  • [39]Vanderleyden L, Callens M, Noppe J: The Social State of Flanders 2009 [Dutch]. Brussels: Flemish Government; 2009:466.
  • [40]Willems S, De Maesschalck S, Deveugele M, Derese A, De Maeseneer J: Socio-economic status of the patient and doctor-patient communication: does it make a difference? Patient Educ Counsel 2005, 56:139-46.
  文献评价指标  
  下载次数:20次 浏览次数:11次