| BMC Medicine | |
| The ethics and editorial challenges of internet-based research | |
| Jigisha Patel1  Stephanie Harriman1  | |
| [1] BioMed Central, Floor 6, 236 Gray’s Inn Road, London WC1X 8HB, UK | |
| 关键词: Informed consent; Ethics approval; Ethics; Internet-based research; | |
| Others : 1123227 DOI : 10.1186/s12916-014-0124-3 |
|
| received in 2014-07-09, accepted in 2014-07-09, 发布年份 2014 | |
PDF
|
|
【 摘 要 】
The internet has opened up vast possibilities for research. An increasing number of studies are being conducted using the internet as both a source of data and a venue for research. Use of the internet in research has created many challenges, not just for those conducting and reviewing the studies, but also for editors publishing this work. Two key issues raised by internet-based research are ethics approval and informed consent.
While some guidance exists regarding the ethics and consent of internet-based research, and some institutions provide their own guidelines, there appears to be a lack of definitive national standards.
We discuss the issues surrounding ethics and consent for internet-based research and the need for a consensus on how to address these issues to ensure consistency.
【 授权许可】
2014 Harriman and Patel; licensee BioMed Central
【 预 览 】
| Files | Size | Format | View |
|---|---|---|---|
| 20150216020924590.pdf | 163KB |
【 参考文献 】
- [1][http:/ / www.theguardian.com/ technology/ 2014/ feb/ 04/ facebook-10-years-mark-zuckerberg] webcite Kiss J: Facebook's 10th birthday: from college dorm to 1.23 billion users.Guardian. .
- [2][http:/ / www.theguardian.com/ technology/ 2014/ jun/ 29/ facebook-users-emotions-news-feeds] webcite Booth R: Facebook reveals news feed experiment to control emotions.Guardian. .
- [3]Kramer A, Guillory J, Hancock J: Experimental evidence of massive-scale emotional contagion through social networks. PNAS 2014, 111:8788-8790.
- [4][www.hhs.gov/ohrp/sachrp/commsec/attachmentbsecletter20.pdf] webcite Secretary's Advisory Committee on Human Research Protections: Considerations and recommendations concerning internet research and human subjects research regulations, with revisions. 2013. .
- [5][http://www.wma.net/en/30publications/10policies/b3/] webcite World Medical Association: Declaration of Helsinki..
- [6][http://www.biomedcentral.com/about/editorialpolicies] webcite BioMed Central: Editorial Policies..
- [7][https://www.facebook.com/about/privacy] webcite Facebook: Data Use Policy..
- [8][http://www.legislation.gov.uk/ukpga/1998/29/contents] webcite Data Protection Act 1998..
- [9][http://www.beds.ac.uk/research/iasr/ethics/onlineresearch] webcite University of Bedfordshire: Ethical Guidelines for the Online Researcher..
- [10][http://about.brighton.ac.uk/hss/fregc/Ethical-internet.pdf] webcite University of Brighton: Ethical issues for consideration when conducting internet research..
- [11][http://irb.uconn.edu/internet_research.html] webcite University of Connecticut: Guidance for computer and internet-based research involving human subjects..
- [12][http:/ / www.research.psu.edu/ policies/ research-protections/ irb/ irb-guideline-10] webcite The Pennsylvania State University: IRB Guideline X - Guidelines for Computer- and Internet-Based Research Involving Human Participants..
- [13][http://www.irb.cornell.edu/faq/] webcite Cornell University Office of Research Integrity and Assurance: Frequently Asked Questions..
- [14][www.aoir.org/reports/ethics2.pdf] webcite Association of Internet Researchers..
PDF