BMC Health Services Research | |
Implementing a patient-initiated review system in rheumatoid arthritis: a qualitative evaluation | |
Richard Byng2  Christian A Gericke1  Mark G Perry4  Victoria A Goodwin3  Sue Child2  | |
[1] The Wesley Research Institute, University of Queensland Schools of Medicine and Population Health and Queensland Brain Institute, Brisbane QLD 4066, Australia;PenCLAHRC, Plymouth University Schools of Medicine and Dentistry, ITTC Building, Tamar Science Park, Drake Circus, Plymouth PL4 8AA, Devon, UK;PenCLAHRC, University of Exeter Medical School, University of Exeter, Veysey Building, Salmon Pool Lane, Exeter EX2 4SG, UK;Department of Rheumatology, Plymouth Hospitals NHS Trust, Derriford Road, Plymouth PL6 8DH, Devon, UK | |
关键词: Direct access; Follow-up; Patient-initiated; Rheumatoid arthritis; | |
Others : 1171106 DOI : 10.1186/s12913-015-0837-9 |
|
received in 2014-06-12, accepted in 2015-04-08, 发布年份 2015 | |
【 摘 要 】
Background
The management of Rheumatoid Arthritis (RA), a chronic relapsing condition primarily affecting joints usually entails regular hospital reviews with a specialist. These reviews can occur when the patient is well. This study forms part of a service evaluation of a system wide implementation of a patient initiated review appointment system which we have called Direct Access (DA). The aim was to explore the experiences of patients and staff of a DA system in order to understand the process of the implementation and to identify potential improvements.
Methods
Twenty-three patients with RA that had completed one year of follow-up on the DA system and seven healthcare professionals (HCPs) involved in the implementation of the DA review system took part in semi-structured interviews. Thematic analysis was used to analyse the interview data and field notes.
Results
Four themes emerged in the data: (1) building patient confidence and empowerment, (2) right place right time, (3) safety, (4) the everyday challenges of managing change. These show that in order for implementation to be successful the patient needs to have confidence in using a new system of requesting a medical review, which, in turn, needs to be offered quickly and in a setting convenient to both patient and clinician. Embedded in the change process need to be systems for ensuring regular disease monitoring and general issues surrounding team working, communication and ownership of the change process also need to be considered from the outset.
Conclusion
The clinics offer increased patient autonomy and the opportunity for greater self-management of chronic disease. This fits with new models of care where the patient is considered to be ‘the expert’.
【 授权许可】
2015 Child et al.; licensee BioMed Central.
【 预 览 】
Files | Size | Format | View |
---|---|---|---|
20150419022704702.pdf | 353KB | download |
【 参考文献 】
- [1]National Institute for Health and Clinical Excellence: The management of rheumatoid arthritis in adults. 2011.
- [2]Hehir M, Hewlett S, Mitchell K, Kirwan J, Memel D, Pollock J, et al.: What happens in rheumatoid arthritis outpatient clinics? Rheumatology 2001, 40(1):146.
- [3]Hewlett S, Mitchell K, Haynes J, Paine T, Korendowych E, Kirwan JR: Patient-initiated hospital follow-up for rheumatoid arthritis. Rheumatology 2000, 39:990-997.
- [4]Kirwan J, Mitchell K, Hewlett S, Hehir M, Pollock J, Memel D, et al.: Clinical and psychological outcome from a randomised controlled trial of patient-initiated direct access hospital follow-up for rheumatoid arthritis extending to 4 years. Rheumatology 2002, 42:422-426.
- [5]Hewlett S, Kirwan J, Pollock J, Mitchell K, Hehir M, Blair PS, et al.: Hospital follow up in chronic disease: a randomised controlled trial of routine out-patient follow up versus patient-initiated direct access in rheumatoid arthritis, extending to 6 years. BMJ 2005, 330:171-175.
- [6]Paudyal P, Perry M, Child S, Gericke C: Evaluation of a patient-initiated review system in rheumatoid arthritis: an implementation trial protocol. BMC Musculoskelet Disord 2012, 13:120. BioMed Central Full Text
- [7]Marshall B, Cardon P, Poddar A, Fontenot R: Does sample size matter in qualitative research?: A review of qualitative interviews in IS research. J Comp Inform Systems 2013, 54(2):11-22.
- [8]Woodfield R: Women, Work and Computing. Cambridge University Press, Cambridge; 2000.
- [9]Miles M, M Huberman A: Qualitative Data Analysis: An Expanded Sourcebook. 2nd edition. Sage, London; 1994.
- [10]Green J, Thorogood N: Qualitative Methods for Health Research. Sage, London; 2004.
- [11]Braun V, Clarke V: Using thematic analysis in psychology. Qual Res Psychol 2006, 3(2):77-101.
- [12]May C, Finch T: Implementing, embedding, and integrating practices: an outline of normalization process theory. Sociology 2009, 43:535.
- [13]Thompson J: Understanding and managing organizational change: implications for public health management. Publ Health Manag Pract 2010, 16(2):167-173.
- [14]Whear R, Abdul-Rahman AK, Thompson-Coon J, Boddy K, Perry M, Stein K: Patient initiated clinics for patients with chronic or recurrent conditions managed in secondary care: a systematic review of patient reported outcomes and patient and clinician satisfaction. BMC Health Serv Res 2013, 13:501. BioMed Central Full Text
- [15]Department of Health: The Expert Patient. A New Approach to Chronic Disease Management for the 21st Century. Crown Copyright, London; 2001.
- [16]National Institute for Health and Clinical Excellence. The management of rheumatoid arthritis in adults. 2009 14 February 2014]; Available from: www.nice.org.uk/CG79.
- [17]Gately C, Rogers A, Sanders C: Re-thinking the relationship between long-term condition self-management education and the utilisation of health services. Soc Sci Med 2007, 65:934-945.
- [18]Levinson W, Kao A, Kuby A, Thisted RA: Not all patients want to participate in decision-making. J Gen Intern Med 2004, 20:531-535.
- [19]Pace AV, Dowson C, Dawes P: Self-referral of symptoms (SOS) follow-up system of appointments for patients with uncertain diagnoses in rheumatology out-patients. Rheumatology 2006, 45:201-203.
- [20]Smith E. Regional Trends. Portrait of the South West. 2010, Office for National Statistics.
- [21]Murray SA, Kendall M, Carduff E, Worth A, Harris FM, Lloyd A, et al.: Use of serial qualitative interviews to understand patients’ evolving experiences and needs. Br Med J 2009, 339:b3702.
- [22]Whear R, Abdul-Rahman AK, Boddy K, Thompson-Coon J, Perry M, Stein K: The clinical effectiveness of patient initiated clinics for patients with chronic or recurrent conditions managed in secondary care: a systematic review. PLoS One 2013, 8:10.